Pancreatic Cancer Group: Introduce yourself and connect with others

Welcome to the Pancreatic Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with pancreatic cancer or caring for someone with pancreatic cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by fellow members and volunteer patient Mentors, when you post to this group. Learn more about Moderators and Volunteer Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Pull up a chair. Let's start with introductions.

When were you diagnosed with pancreatic cancer? What treatments have you had? How are you doing?

Interested in more discussions like this? Go to the Pancreatic Cancer Support Group.

@bobbiebailey

I was diagnosed with pancreatic cancer and had the whipple surgery done and I am awaiting the pathologist of which stage I am in...In the meantime my fatigue is so overwhelming that I cannot function is this normal..I am 77 years old and for the most of my life I have been active in triathlons and iron man so why is it so hard for me to recover...

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Be kind to yourself as you just underwent major surgery.

Healing takes a bit of time so do rest when you feel you need to whenever that may be.

Here's wishing you an uneventful speedy recovery.

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Hello Everyone,
My first day here. As you know, it’s a crazy few weeks after being diagnosed (10/27/2022). First infusion yesterday and working on an at-home pump for a few days. Staying positive and trying to stay in the moment. Love to all. Below is a picture of me and my mother. She just turned 93 this week.

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@bobbiebailey

I was diagnosed with pancreatic cancer and had the whipple surgery done and I am awaiting the pathologist of which stage I am in...In the meantime my fatigue is so overwhelming that I cannot function is this normal..I am 77 years old and for the most of my life I have been active in triathlons and iron man so why is it so hard for me to recover...

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Bobbie,
That is amazing that you are a triathlete. Use that strength and mental fitness you have from your training. Stay strong.

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@stephenkogler

Bobbie,
That is amazing that you are a triathlete. Use that strength and mental fitness you have from your training. Stay strong.

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thank you

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God bless you ! Enjoy the day today with your family 😊

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My father was recently diagnosed with stage IV pancreatic cancer with metastasis to liver and peritoneum. I am heartbroken. He just finished his first dose of folfirinox and is very weak and eating very little. He sleeps alot and says he feels "uncomfortable" but doesn't describe it as pain, he says he feels "bloated" in abdomen.
The radiologist that did his biopsy mentioned radioembolization for the liver tumors. I made a post about this already but no one has commented yet. Have you heard of this being used for liver metastasis? I'm wondering if it will make him more comfortable. Thanks for reading,
JessieLeigh

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@jessieleigh

My father was recently diagnosed with stage IV pancreatic cancer with metastasis to liver and peritoneum. I am heartbroken. He just finished his first dose of folfirinox and is very weak and eating very little. He sleeps alot and says he feels "uncomfortable" but doesn't describe it as pain, he says he feels "bloated" in abdomen.
The radiologist that did his biopsy mentioned radioembolization for the liver tumors. I made a post about this already but no one has commented yet. Have you heard of this being used for liver metastasis? I'm wondering if it will make him more comfortable. Thanks for reading,
JessieLeigh

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jessieleigh,

There could be a build up of fluids in the abdominal area due to ascites ... has this been assessed?

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@mayoconnectuser1

jessieleigh,

There could be a build up of fluids in the abdominal area due to ascites ... has this been assessed?

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Thank you for responding. I asked the RN if the bloating could be ascites and she said that he has gas, not ascites, and that this is a common side effect of his chemo. She said for him to move around and eat more frequently. Have you heard or read anything supporting this? He sees the oncologist this week, I plan to ask her then.

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@jessieleigh

Thank you for responding. I asked the RN if the bloating could be ascites and she said that he has gas, not ascites, and that this is a common side effect of his chemo. She said for him to move around and eat more frequently. Have you heard or read anything supporting this? He sees the oncologist this week, I plan to ask her then.

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I have had five Folferinox treatments to date for my stage 1 pancreatic cancer. Usually, for several days after treatment, I have digestive issues like heartburn, GERD, and bloating. It is a common side effect from what I understand from my oncologist. I take Omeprazole and Pepcid, plus OTC antacids like Tums and Gaviscon, and also Beano. Around halfway in the two-week cycle, my system recovers somewhat, but I eat small portions of food several times a day. I have found, in my case, the fatigue can linger as not having the endurance for moderate activity. I hope this is somewhat helpful.

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Thank you for sharing that. My dad got his chemo 1 week ago. Hopefully he will begin to feel better soon. I will also ask his doctor if he can try beano. How are you feeling now?

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