1. < Post-COVID Recovery & COVID-19

Post Covid Symptoms and what has helped me.

Posted by lle04 @lle04, Nov 19, 2022

I have fibromyalgia and post thyroid cancer in 2000. Got Covid May 2022. Have all of the symptoms long haulers experience. Dizziness, hair loss, canker sores in mouth, brain fog, trouble focusing, fatigue, muscle aces and pain, muscle weakness, etc, etc. Have had eye exam with a small spot behind my retina that was not there on exam before Covid. Working with PT doing the same exercises others have explained. Seems that Covid has increased my fibromyalgia symptoms. Working with my primary doctor with treatment. I have started low dose naltraxone and this helps with brain fog, decreasing the pain and helps with sleep. Along with the PT I hope this is going to help in the long haul. I also take an antihistamine for my ears and head stuffiness, thyroid replacement, celexa for anxiety and calcium with vitamin D. Hoping to be on the mend soon. Hope this may help anyone else dealing with this too

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

holly1972 | @holly197205 | Nov 21, 2022
In reply to @hopeful1953 "These comments and suggestions give hope. Sometimes trying to explain the symptoms that have developed from..." + (show)
@hopeful1953

These comments and suggestions give hope. Sometimes trying to explain the symptoms that have developed from Covid are not understood. Having a forum such as this is like therapy.
The itch that I have experienced began a few days after my positive Covid test. The itch isn’t just a discomfort it causes much anxiety. At times there is a deep burn which is preferable to me. It has continued since July. Either one of these conditions are visible.
I was recently was diagnosed with a neurological itch last week.
Gabapentin was prescribed. I wonder how your prescription was written.
The shortness of breath and a deep cough has developed. My arthritis discomfort has increased. Amazingly the joint paint changes in locations from knees, fingers or neck. Has anyone experienced the occasional scent of metal?
Do temperature swings seem to effect anyone’s symptoms?
I am wondering if different geographical areas could be a source of certain symptoms.

Thank you to all, who have discussed their Covid experiences and conditions. They are real.
Wether our stories are different or similar it’s reassuring to speak openly.

May God bless and prayers to everyone.

@hopeful1953

Jump to this post

I occasionally have a smell of something that is burnt or scorched. As for my gabapentin I'm prescribed 800 mg 3x per day . And I have noticed more aches and pains in my joints but I chalked it up to getting older lol... I'm 50. But I do have some deep bone pains from time to time .. it's not muscle or joints, it's the bone itself. When I was sick with covid my legs especially my upper thighs hurt so very bad and that's happened to me about 4x since I got better. But it's almost debilitating.
And you're right , this forum is like therapy because it's good to know we're not alone and it's not all in our head. It's very real and there's still so much that's not known about it. Another bit of info I have NOT taken the Covid vaccine and I absolutely refuse to. I understand that everyone have their own reasons for taking it and that's perfectly fine. I'm just saying it's not for me .
Thanks to all who have commented as I feel it helps us all. Oh and another thing about my neuropathy I have a spot on my back about the size of my hand that is completely numb but sometimes it will itch and burn so bad and it does no good whatsoever to scratch it because I can't feel it.
Anyway thanks for listening to my rambling and I appreciate others comments more than you know!!!

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holly1972 | @holly197205 | Nov 21, 2022
In reply to @jennifergillan03 "I have been missing in action… but happy to report significant success in my recovery.. I..." + (show)
@jennifergillan03

I have been missing in action… but happy to report significant success in my recovery.. I finished Mayo PRC program in June and In July began hyperbaric treatment at Aviv Clinics in the Villages. I am almost fully recovered. I intend to be healed by June 2023.

I was diagnosed with COVID September 2020.

I’ve decrease my inflammation with my diet.

I restored my sleep with strict sleep hygiene.

I have eliminated 13 medications I need after my initial.

I only take supplements.

I have advice if you all have questions..

I credit my success to the WHOOP, I reprogrammed my neurological system and symptoms. It allowed me to avoid the push and crash.

PRC with Dr Sletten taught me how to minimize my symptoms, supervised medication with drawl, increased my activity tolerance. Literally reprogrammed my brain.

Stop talking about your symptoms with people that can’t help you. They are only reinforcing them and creating stronger neurological symptom pathways.

Aviv clinics has a COVID protocol. Dr Elamir took care of me. He was in New Jersey when COVID hit. He is amazing my life line. I understand how depressing and anxious it can be thinking about the future. I have so much hope for the future.

The hyperbarics created a physiological pathway to begin healing my body and my brain. I couldn’t feel my feet and hands I couldn’t see. I struggled walking talking and anything else you can imagine.

I’ll post some links. Below. I wish you all well.

Most of my content and information is on Instagram from the beginning you can look up the content under #covidrecoverymama BE WELL.

Jump to this post

Thank you for all you're helpful advice! I wish you much more success! May God bless us all!

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jennifergillan03 | @jennifergillan03 | Nov 21, 2022

I could give a lecture in HRV and you symptom recovery.

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jennifergillan03 | @jennifergillan03 | Nov 21, 2022

If you have questions or need help. I have a few rules.

Due to the neurological nature of my recovery. I can experience a relapse in symptoms. I allow people to describe their symptoms one time and after that insist you refer to them as symptoms.

I am a retired Bonemarrow Transplant Nurse. I’m an advocate for myself and other. The best way I can help you is to teach you how to advocate for yourself and the roles health care providers play, coverage insurance companies can provide. More importantly how you can take back your life.

All I ask is you give me the feedback of how my advice has helped. We are all in this together.

You are the biggest influence on your recovery. The healthcare system is learning as we are. Have a hopeful outlook. Remember what you knew before you were struggling.

Even though COVID is the first pandemic of our age. There are many know. Modalities to treat yourself and recover.

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sonyamagee1964 | @sonyamagee1964 | Nov 22, 2022

My husband has long covid. He has experienced many dental issues post covid. He has had root canals and had to remove teeth that got abscesses after covid. Any others experienced this?

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1953 | @hopeful1953 | Nov 22, 2022
In reply to @holly197205 "I occasionally have a smell of something that is burnt or scorched. As for my gabapentin..." + (show)
@holly197205

I occasionally have a smell of something that is burnt or scorched. As for my gabapentin I'm prescribed 800 mg 3x per day . And I have noticed more aches and pains in my joints but I chalked it up to getting older lol... I'm 50. But I do have some deep bone pains from time to time .. it's not muscle or joints, it's the bone itself. When I was sick with covid my legs especially my upper thighs hurt so very bad and that's happened to me about 4x since I got better. But it's almost debilitating.
And you're right , this forum is like therapy because it's good to know we're not alone and it's not all in our head. It's very real and there's still so much that's not known about it. Another bit of info I have NOT taken the Covid vaccine and I absolutely refuse to. I understand that everyone have their own reasons for taking it and that's perfectly fine. I'm just saying it's not for me .
Thanks to all who have commented as I feel it helps us all. Oh and another thing about my neuropathy I have a spot on my back about the size of my hand that is completely numb but sometimes it will itch and burn so bad and it does no good whatsoever to scratch it because I can't feel it.
Anyway thanks for listening to my rambling and I appreciate others comments more than you know!!!

Jump to this post

Your symptoms were so well stated. You will never know how reassuring it is to know that others are experiencing these conditions. At the time of the initial “itch” I developed a very light brown area about the size of my hand (upper left shoulder blade). So interesting that we have had some of the same conditions, including the smell of metal.

Finally I visited an immediate care.
The “itch pain” was so uncomfortable, weeks later went to the NWMH ER immediate care in Chicago at 8:00am on a Sunday.
The ER DR. checked me for shingles which had negative
results. I understand her visual observations and TRYING to understand what it could be for her patient. Her photographs of my itch area did not capture the brownish spot. 🙁 only the small scratch marks.

Thank God, for my neurologist and my prescriptions.
Will this itch continue and be a permanent condition?
Truly, at this time, I do not think there is an answer.

Strength and prayers.

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