1. < Brain & Nervous System

Internal Body Tremors and Tinnitus

Posted by kkinsley @kkinsley, Jun 29, 2021

I am a 47 year old female who has been in very good health most of my life. I work out daily. In January I had sudden elevated blood pressure and feelings of heart racing/palpitations. I was put on 25 mg of Losartan. An Echo and 7 day heart monitor were normal. 3 weeks into taking the medication, I developed ear ringing and feeling shaky. I was switched to Coreg (beta blocker) to see if symptoms improve.

Symptoms progressed to feelings of internal head vibrations/quivering and sometimes into chest and abdomen as well as a feeling of shakiness in my limbs off and on. I had a CT Scan and MRI as well as lots of blood tests including checking thyroid and hormonal/adrenal gland issues. All tests normal. Saw an ENT for the tinnitus and also tell me everything looks normal. Only reference in MRI was that the bilateral anterior inferior cerebellar arteries are coursing in close proximity to their respective 7th and 8th cranial nerves. Neurologist didn't think symptoms were typical of neurological diseases so these are ruled out for now. He isn't sure but only speculation that it's possible arteries have irritated cranial nerves but had no treatment to recommend. I have days when the head and body vibrations are unbearable and days when they are more manageable.

Sleeping is challenging and I started on Gabapentin (Neurontin) at bedtime which has helped my sleep. I am also now off all blood pressure medications and my blood pressure is normal again. I have perplexed my doctors. Seeking any insight here. I am beyond frustrated. Not even sure if the Blood Pressure issues and meds caused this or just coincidence in timing. Seems I have some sort of internal tremors but no tests show why yet.

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kris101 | @kris101 | Oct 18, 2022

Hello. I have the head tremors and slight vibrating. I am on Coreg and Losartan. Were you able to find out anything on this condition?
Thank you!

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willows | @willows | Oct 19, 2022
In reply to @claredsf "Can’t ringing in the ears be just á normal head condition? Í ám 80+ years öld..." + (show)
@claredsf

Can’t ringing in the ears be just á normal head condition? Í ám 80+ years öld and don’t know if Í never had tinnitus. Í remember being súrprised when á college friend with á head cold complained about hér ears rigning. To me it’s just part of á normal condition.

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I think it’s a normal head activity taking place in the brain. The problem is we shouldn’t hear this activity which is tinnitus.

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wisusa | @wisusa | Oct 22, 2022
In reply to @marko82 "Hi, I've had tinnitus since I was about 17. It's been getting louder in the past..." + (show)
@marko82

Hi,
I've had tinnitus since I was about 17. It's been getting louder in the past few weeks. I didn't connect it to the vibrations which I have now.They go from barely noticeable to 'have hardly any hand control' and I notice that them bottom lip will vibrate a bit. With the sports minerals I go to sleep w/o vibrations but have them in the AM.. You mentioned Neurotin. Monday I asked my Dr if she had anything that's not Ambien (messed with my mind - won't take it). She said no. Now I'll ask her about it specifically. Is it a mind-altering drug?
Thanks for the info.
Marko82

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What sports minerals? I have tremors from Fluoxetine (Jan 2021) that won’t go away. Have also had Tinnitus for quite a few years. I drink Amino Energy sometimes because of the Aminos in it, but can’t tell a difference. Would like to maybe try the sports minerals.
Thanks!

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buzzingblonde | @buzzingblonde | Nov 6, 2022

Did you ever find a diagnosis or help? This sounds very similar to me. I’m so frustrated.

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buzzingblonde | @buzzingblonde | Nov 6, 2022
In reply to @mj953 "I have the same symptoms What was your diagnosis and what were the meds? I’ve been..." + (show)
@mj953

I have the same symptoms
What was your diagnosis and what were the meds?
I’ve been to three neurologist and pt and primary care Dr
This is a mystery to them . None of the meds work that they prescribed. At wits end
Maybe you can help me

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I’m in the same boat. Any Diagnosis or new information?

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stevegrinstead | @stevegrinstead | Nov 7, 2022

You guys are suffering from nerve damage. If you have a cure please let me know.

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stevegrinstead | @stevegrinstead | Nov 7, 2022
In reply to @nursejudith "I developed a persistent case of tinnitus in my left ear that began in 2004 when..." + (show)
@nursejudith

I developed a persistent case of tinnitus in my left ear that began in 2004 when I had a (SCS) spinal cord stimulator threaded down through C4-5 to the L-4, S1 area (SCS was removed in 2010). I have seen an ENT specialist and had a CT scan done in 2005 with the diagnosis of tinnitus, “etiology unknown”. To this day in 2022
I still have very loud pulsations in my left ear which sounds like a loud tinny echo that just never goes away. I’m taking CBD hemp oil, 50mg which helps me to relax and sleep at night. This constant ringing in my ear has become my new normal now…

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O
Please check for a dural leak.

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kevinator | @kevinator | Nov 14, 2022

Hi my name is Kevin I have The same symptoms you are describing been to eeg, sleep study, I am waiting for an MRI . I have had several visits to er for hypothyroidism problems maybe unrelated. However shorty after getting the 3rd booster and contacting Covid I have developed these weird internal vibrations that come and go. My wife can feel them on the back of my neck and on my chest. I feel them in my mid section and in my head. Some days are really bad. I can barely stand them.☹️
Most of the time it happens when I try to sleep or shortly after waking up. My doctor put me on jamp quetiapine 50 mg. Some days it doesn’t help me at all.
I think it’s the same thing Heidi Ferrer had.
I also heard of this happening to another guy similar age to me 55, but he said he didn’t get Covid and that it happened a couple of months after the booster shot.
I was completely fine before this pandemic thing!
Can anyone help me

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1 reply
krishnashastri | @krishnashastri | Nov 21, 2022
In reply to @kkinsley "@nrd1 Thank you for your thoughtful response. I totally agree that the ongoing tests and medications..." + (show)
@kkinsley

@nrd1 Thank you for your thoughtful response. I totally agree that the ongoing tests and medications started an unneeded spiral of worry. That is why I went off all the blood pressure medications, perhaps after it did some unwanted damage to my body, because I felt that they weren't really needed. I have also been in perimenopause for almost 3 years so did wonder about hormonal changes causing the palpitations. This was not explored sufficiently by my doctor other than doing some basic hormonal blood tests. I am not working with my ongoing workout activity, healthy eating and supplements to return to my homeostatic state. I will say, however, I do believe I have some nerve/nervous system issue caused by something because of the way the internal vibrations/tremors present. I continue to return to the neurologist to try to determine how to resolve these or perhaps over time they will go away. I am now over 2 months off all medications.

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Hi Kinsley I have exactly the same issues with tinnitus and internal tremors. The issues began with a bout of dengue after which I developed high BP and I was prescribed Beta Blockers (Atenolol). Soon after I developed severe tinnitus and internal tremors.

What was your treatment like and did your issue get resolved? Thanks.

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jimmy 370 | @jimmy370 | Nov 22, 2022
In reply to @amesmassage "I would highly recommend you go to a Mayo Clinic near you if possible! They use..." + (show)
@amesmassage

I would highly recommend you go to a Mayo Clinic near you if possible! They use a team approach to get down to a diagnosis!
I had gone to 7 neurogists seeking a diagnosis and got different diagnoses and was prescribed different medications, but kept getting sicker.
I got into a physical therapist who said i needed to go to Mayo, so she called my Primary Care Physician, and the two of them both wrote letters to get me in.
Within 2 days i had a CORRECT diagnosis and was given a prescription that IMMEDIATELY made me feel better!!!

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That's my problem, No good Drs around I always want to to Mayo Clinic but my insurance won't Approve it!

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