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Does anyone have Hemicrania Continua migraine headaches?

Posted by keithtombs @keithtombs, Sep 3, 2012

Hi all. where do I start. i have had a 24/7 migraine/headache for a decade now. I have just started using a tricyclic to "dampen" its severity and so far it has helped me get my ibuprofen use down from 3 to 6 doses a day to one or two doses.i am upset with all doctors i see here in Australia who continue to call it migraine when it seems more like hemicrania continua. But all of them dismiss me when i ask them if it could be this and say the treatment is the same.does anyone else here experience a 24/7 migraine like headache?by the way... upon starting the tricyclic i have started to experience real aura migraines about once a month... this truly tells me the 24/7 headache is not actually migraine!

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keithtombs | @keithtombs | Sep 3, 2012

...My only reservation with calling it hemicrania continua, is that all stories is how the pain is severe... however, my pain is not exactly severe... it wavers up and down in scale and at times it can't be very strong but i don't let it get severe anymore.

anyway... looking forward to any comments or similar sufferers comments.

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mouser | @mouser | Sep 9, 2012

I did until I went to a physical therapist who specialized in migraines. He taught me relaxation techniques. I found when I can control my stress that I have less migraines

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mouser | @mouser | Sep 10, 2012

I am curious why you say your migraine is not a true migraine just because now you are experiencing an aura with the "real" ones?

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headacheallthetime | @headacheallthetime | Jul 3, 2013

I have had headaches ever since 2004 and it seems like I can't find anything that work or a doctor that can help.

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1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Apr 4, 2018

Hello @headacheallthetime, @mouser, and @keithtombs,

I ran across this inactive discussion after reading an interesting Mayo Clinic article on a new device to prevent migraine attacks. I thought you might be interested.

Mayo Clinic Minute: New device can prevent migraine attacks
-- https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-minute-new-device-can-prevent-migraine-attacks/

John

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3 replies
skk15 | @skk15 | Apr 15, 2018
In reply to @headacheallthetime "I have had headaches ever since 2004 and it seems like I can't find anything that..." + (show)
@headacheallthetime

I have had headaches ever since 2004 and it seems like I can't find anything that work or a doctor that can help.

Jump to this post

My 22 year old son has suffered migraines for almost 18 years. He is treated at Mayo Clinic. Nothing helps very much, but he has some reduction in frequency with Botox injections. He has "transformed" migraines, where he has a constant headache pain level of. 3 to 5 all the time for most of those 18 years. You might want to investigate Botox.

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skk15 | @skk15 | Apr 15, 2018
In reply to @johnbishop "Hello @headacheallthetime, @mouser, and @keithtombs, I ran across this inactive discussion after reading an interesting Mayo..." + (show)
@johnbishop

Hello @headacheallthetime, @mouser, and @keithtombs,

I ran across this inactive discussion after reading an interesting Mayo Clinic article on a new device to prevent migraine attacks. I thought you might be interested.

Mayo Clinic Minute: New device can prevent migraine attacks
-- https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-minute-new-device-can-prevent-migraine-attacks/

John

Jump to this post

Is this device expensive ? Are patients offered a free trial period?

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Mentor
John, Volunteer Mentor | @johnbishop | Apr 15, 2018
In reply to @johnbishop "Hello @headacheallthetime, @mouser, and @keithtombs, I ran across this inactive discussion after reading an interesting Mayo..." + (show)
@johnbishop

Hello @headacheallthetime, @mouser, and @keithtombs,

I ran across this inactive discussion after reading an interesting Mayo Clinic article on a new device to prevent migraine attacks. I thought you might be interested.

Mayo Clinic Minute: New device can prevent migraine attacks
-- https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-minute-new-device-can-prevent-migraine-attacks/

John

Jump to this post

Hello @skk15, I wished I could answer your question but I think you have to go through a doctor or headache clinician according to the manufacturer. Here are some other links to information on the device:

Treating Migraine with the sTMS mini by eNeura
-- http://www.eneura.com/treating-migraine-with-the-stms-mini-by-eneura/#

Transcranial Magnetic Stimulation for Migraine: A Safety Review (link on the page above)
-- https://onlinelibrary.wiley.com/doi/abs/10.1111/j.1526-4610.2010.01697.x

John

REPLY
skk15 | @skk15 | Apr 15, 2018
In reply to @johnbishop "Hello @headacheallthetime, @mouser, and @keithtombs, I ran across this inactive discussion after reading an interesting Mayo..." + (show)
@johnbishop

Hello @headacheallthetime, @mouser, and @keithtombs,

I ran across this inactive discussion after reading an interesting Mayo Clinic article on a new device to prevent migraine attacks. I thought you might be interested.

Mayo Clinic Minute: New device can prevent migraine attacks
-- https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-minute-new-device-can-prevent-migraine-attacks/

John

Jump to this post

Thank you for the additional info. I feel an appointment with his neurologist is warranted.

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gfisher100 | @gfisher100 | Jun 2, 2018

The use of CMD oil or similar for relief of Migraine headaches?

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