Fragrances and Asthma / Allergies

I wanted to increase awareness about the dangers of fragrances to those of us with breathing difficulties, and those who are affected by fragrances that are all around us. In my own home, I use cleaning products without fragrances and run a HEPA filter with activated carbon that absorbs chemicals from the air so my home is a safe place to breathe. We built a home with building products that didn't have formaldehyde and without carpet because it triggers my asthma. Going out in public is a problem because I'll be bombarded with all kinds of chemicals. My lungs react quickly and I've started carrying a respirator so when I'm in the car and pass something that bothers me, I can get the respirator on to try to avoid problems. I did use the respirator at a play holding it over my face with a cloth over it so no one could see what it was and it worked, and I put it away after the lights came back on. There were people right near me with heavy fragrances that would have caused an asthma attack. As I understand this, it is the chemicals that help distribute the fragrances that are the big offenders... things like phalates. While traveling this weekend, I was happy to see a sign at a rest area that the soap in the washroom was fragrance free because of allergies to fragrances. That is a step in the right direction. It's my hope that people reading this might consider not wearing personal fragrances in public. Workers in health care often do this to help their patients. I hope that sometime in the future, there is some kind of regulation in the fragrance industry. Ingredients are not disclosed and those of us who are affected can have serious reactions. This is a medical problem. I thank those people who are fragrance free in support of those who are like me.

Interested in more discussions like this? Go to the Asthma Support Group.

Bravo! Mayo Clinic.
Today, I checked my patient portal about my upcoming appointment schedule, and I sa new feature that I want to share. Each each appoinment (so far) has a red exclamation mark and the words, "Important Instructions -
Perfumes: Do not wear scented products (for example: perfume,hair spray, aftershave, powder,lotion) to this appointment. These products can cause breathing problems for some patients."

Has anybody else seen this or something similar anywhere?

REPLY

I have not seen that information posted in the Allergy & Asthma Center where I go in Fort Wayne, Indiana but the staff does not wear fragrance, and there are no room fresheners. I have been there a couple of times when other patients come in the office wearing heavy fragrance and wonder WHY? Being an asthmatic and also having an asthmatic Cat, we don' use fragrance in our home, not even cut flowers and I am a gardener.

REPLY

Here is a website that talks about non toxic house cleaning with safer common ingredients like dish soap, baking soda, vinegar, hydrogen peroxide, etc. We don't really need special cleaning products full of chemicals.

https://learn.eartheasy.com/guides/non-toxic-home-cleaning/
REPLY

@colleenyoung Thank you Colleen for your comments. I am grateful that Mayo recognizes the problems of fragrance sensitivities to people with lung problems and includes a recommendation in their patient appointment information that asks patients and visitors not to wear fragrances in the pulmonary exam and waiting areas because it will cause problems for sensitive patients. Many medical providers also are not wearing fragrances at their patient appointments and everyone at Mayo who saw me as a patient in multiple departments had no fragrances. Lung problems can start after an illness or exposure to something, and that person may become sensitive to exposure to chemicals, fragrances or smoke. If you have some respiratory infections or pneumonia, you can develop asthma after that which has no cure, but is managed instead. Sometimes it can be an impaired ability to detox from the exposures in the everyday world that makes a person sensitive to chemicals including environmental exposure to chemicals. This is a disability, and may not improve even with medical expertise, and if it were possible to choose, no one would want this disability. Lungs are fragile and easily damaged. It can happen to anyone and be very debilitating, and no one knows how many people are affected. It used to be that people were allowed to smoke in public buildings, at work, and at bars and restaurants. That has changed because of awareness, and because of an understanding of the health problems that are caused by smoke exposure. Even having allergies can change a person's lungs over the years causing permanent resistance to breathing. I have seen signs at other doctors offices asking people not to enter if they are wearing fragrances or scented lotions and that helps everyone. Even if you feel well, the body has to work harder to detox all this extra stuff in addition to the detoxing required from living and processing the food we eat. The question is.... how long will a person be able to do this detoxing effectively and how and why does it change over time? It can happen to anyone.

REPLY

You are so right about the fragrance problem. I do not have allergies but I do have a hyper sensitividy to fragrances. Ever as I walk daily thru our neighborhood, the fragrance from the scented drier sheets can be smelled outside. Due to scents, I have had to move from church seats, restaurants and some stores in the mall. A few doctors' post no fragrance signs.
Thank you for bringing up this subject. Perhaps, those who wear scents will be advised how it affects those with allerigies and those without allergies.

REPLY
@shaneilya

You are so right about the fragrance problem. I do not have allergies but I do have a hyper sensitividy to fragrances. Ever as I walk daily thru our neighborhood, the fragrance from the scented drier sheets can be smelled outside. Due to scents, I have had to move from church seats, restaurants and some stores in the mall. A few doctors' post no fragrance signs.
Thank you for bringing up this subject. Perhaps, those who wear scents will be advised how it affects those with allerigies and those without allergies.

Jump to this post

@shaneilya I notice the dryer sheet fragrances outside too in the neighborhood. I am glad for the doctors who post and enforce no fragrances policies. I have been at hospitals before (not Mayo) where a nurse comes in to check on the admitted patient and in with her comes a cloud of fragrance that lingers long after she is gone. Frustrating if medical personnel don't recognize it. I think once a person becomes hyper-sensitized to fragrances, they don't have a choice to stop that from happening. I do have HEPA air filters that also have activated carbon to absorb VOCs from the air.

REPLY

I realize it's my problem and I don't expect the world to change for me. I just wish there was a little more compassion and a desire to understand something they don't. No one gets it until they see what their fragrances do to me. I hope I am making a difference and helping others one asthma attack at a time.

REPLY

Hi Msabu,

Why not expect the world to change for those of us that experience fragrance like cigarette smoke? Fragrance is the new secondhand smoke and is another environmental assault among many every day. Companies do not have to disclose the chemicals they use in creating fragrances or as the label says, "perfume or parfum" because it's considered proprietary information.

I've had people say in a very smug way, well, it doesn't bother ME. I tell them, it may not now but don't count on that forever. Your body and what it can tolerate changes.

We need to become a force for change just the way nonsmokers became a force for change. Let's get people educated so that we can help prevent more generations of more people with lung dis-eases.

REPLY
@jenniferhunter

Thanks for asking. Some mild fragrances in lotions are tolerable and some are not. My mom got in my car with some highly fragranced lotion on her face and I started reacting right away with trouble breathing and I put on my respirator. She washed her face when we got where we were going. I have trouble at hotels. Some have fancy designer soaps that set off my asthma. Basic Neutrogena soap at the hotel hasn't bothered me, but at home I use unscented soaps and lotions. Some things which natural scents like lemon or grapefruit are fine. I did have trouble with a rose scented liquid soap, but that wasn't a natural scent, it was manufactured and really smelled awful to me, not anything like an actual rose flower. I have trouble just walking through the grocery store sections with laundry detergent (I use fragrance free) and even outside when neighbors doing laundry with fragrances coming out of the dryer vent will bother me. I always sniff test anything in the store first before bringing that home. Jergens and Johnson's might be tolerable, but I'd have to test that and let you know. Another issue at hotels is carpet powder that is not only scented, but has fine talc dust in it. I now take a respirator to sleep with if I find myself in that situation. I try to ask about that before I make reservations, and sometimes the staff doesn't know what the cleaning staff does.

Jump to this post

I have this issue. Natural products with scent are often okay. Manufactured scents are devastating. Makes life difficult. Just have to do the best I can. Thanks for sharing. Good to know that I'm not alone.

REPLY

@mjo4094 Welcome to Connect. Manufactured fragrances have chemicals in them to enhance the dispersal into the air like phthalates. This link has some information on their use in cologne and if you scroll down you can see amounts listed in parts per million. These are only some of the chemicals used in personal products.

https://www.fda.gov/cosmetics/cosmetic-ingredients/phthalates-cosmetics

Our lungs get hit by everything all the time; smoke from wildfires, pollution, pollens, dust, mold spores and manufactured chemicals. I also have trouble in a store with bagged lawn chemicals and fertilizers. I often hold my breath and try to escape when there is something I know will trigger my asthma.

REPLY
Please sign in or register to post a reply.