1. < Osteoporosis & Bone Health

Anyone taken Evenity (romosozumab) for Osteoporosis?

Posted by arlene7 @arlene7, May 27, 2020

Has anyone taken Evenity? I understand it’s only been on the market for a little over a year. I’m hoping it will help with my severe osteoporosis. Any information is helpful.

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bettersleep68 | @bettersleep68 | Nov 13, 2022
In reply to @kolika "Many, many thanks to all of you who have shared your Evenity experiences, they have been..." + (show)
@kolika

Many, many thanks to all of you who have shared your Evenity experiences, they have been so helpful and encouraging to me. I have been thinking about this drug for a long time and have finally decided to try it, in part because of your posts. (I have severe osteoporosis as low as -5.2 spine, -4.4 femoral neck and -4.5 total hip.) Part of the reason for waiting is the desire to clear up any question about possible hyperparathyroidism, which will come soon I'm hoping. In the meantime, I'm holding my breath, exercising and being careful. Thus far in life, no breaks since being diagnosed many, many years ago. I'm grateful. Best to all of you already on Evenity, and I look forward to reading about your successes. Kolika

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Your numbers are almost like mine...I just keep hope they will not drop and maintain
..I will not take drugs as long as my dexa stays the same...

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1 reply
ppat4pr | @ppat4pr | Nov 14, 2022

I have no idea about this particular drug but someone told me that medicine for osteoporosis can make bones so hard that they shatter when broken & that is scary to me. The person who told me this is a professional holistic chiropractor. She is very intelligent and knowledgeable.

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mbgcx Marilynn | @mbgcx | Nov 14, 2022

I finished a year of Evenity and will get a bone density test , hopefully next week to see if there has been an improvement. My doctor wants to put me on Prolia immediately, but I am very concerned because I had a bad reaction to Fosamax .

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2 replies
lynnmw | @lynnmw | Nov 15, 2022

I’ve been getting the monthly injection of Evenity for 6 months. It is a 12-month treatment. My rheumotologist gives me two shots per visit - into fatty tissue. I’ve not had any adverse reactions, other than some soreness at injection site for a day or two. I can’t say if it’s helped my bone loss yet. I am scheduled for a Dexa scan next month. I’m hopeful. I’ve tried many other treatments without much improvement.

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1 reply
windyshores | @windyshores | Nov 15, 2022
In reply to @mbgcx "I finished a year of Evenity and will get a bone density test , hopefully next..." + (show)
@mbgcx

I finished a year of Evenity and will get a bone density test , hopefully next week to see if there has been an improvement. My doctor wants to put me on Prolia immediately, but I am very concerned because I had a bad reaction to Fosamax .

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@mmbgcx Prolia and Fosamax are different types of drugs, as you probably know. I am going to do Reclast after Tymlos and am nervous because I also had a bad reaction to Fosamax, and both are biphosphonates.

My doc won't use Prolia because of the abrupt drop off in bone density when stopped. Amgen makes both Evenity and Prolia and suggests Prolia as a follow-up, naturally, and it seems many docs are going along with that. It's tough: no good options!

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2 replies
mbgcx Marilynn | @mbgcx | Nov 15, 2022
In reply to @windyshores "@mmbgcx Prolia and Fosamax are different types of drugs, as you probably know. I am going..." + (show)
@windyshores

@mmbgcx Prolia and Fosamax are different types of drugs, as you probably know. I am going to do Reclast after Tymlos and am nervous because I also had a bad reaction to Fosamax, and both are biphosphonates.

My doc won't use Prolia because of the abrupt drop off in bone density when stopped. Amgen makes both Evenity and Prolia and suggests Prolia as a follow-up, naturally, and it seems many docs are going along with that. It's tough: no good options!

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Thanks for your reply - What is Tymlos and did you get a good result from it?

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1 reply
ericsr | @ericsr | Nov 15, 2022

Has anyone had bone density improvement just with calcium supplements and vitamin D?

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bruceandruth1970 | @bruceandruth1970 | Nov 15, 2022
In reply to @lynnmw "I’ve been getting the monthly injection of Evenity for 6 months. It is a 12-month treatment...." + (show)
@lynnmw

I’ve been getting the monthly injection of Evenity for 6 months. It is a 12-month treatment. My rheumotologist gives me two shots per visit - into fatty tissue. I’ve not had any adverse reactions, other than some soreness at injection site for a day or two. I can’t say if it’s helped my bone loss yet. I am scheduled for a Dexa scan next month. I’m hopeful. I’ve tried many other treatments without much improvement.

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Would you please post your results when you get your dexa scan. I am just starting Evenity. Thank you.

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1 reply
lynnmw | @lynnmw | Nov 15, 2022
In reply to @bruceandruth1970 "Would you please post your results when you get your dexa scan. I am just starting..." + (show)
@bruceandruth1970

Would you please post your results when you get your dexa scan. I am just starting Evenity. Thank you.

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Yes, of course.

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jerilk | @jerilk | Nov 15, 2022
In reply to @mbgcx "I finished a year of Evenity and will get a bone density test , hopefully next..." + (show)
@mbgcx

I finished a year of Evenity and will get a bone density test , hopefully next week to see if there has been an improvement. My doctor wants to put me on Prolia immediately, but I am very concerned because I had a bad reaction to Fosamax .

Jump to this post

Just so I'm clear fosamax is a pill? And Prolia is a shot every 6 months

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