Anyone taken Evenity (romosozumab) for Osteoporosis?

@beachesanddreams
Why the prunes ? Is this to help with osteoporosis? I’m sorry as I’ve missed out on something

@passerby
I did....Because I go to an infusion center for injections, it is covered by Medicare Part B and co-insurance (after a deductible of $257), therefore, my cost is $0.

My honest opinion is that it all depends on each individual's specific situation, medically and financially. My family has a history of heart disease, but fortunately, I have been managing my high cholesterol for years and have tried to maintain a healthy diet, etc. When I decided to take Evenity, I spoke with my cardiologist, who had treated both my parents as well, and he agreed I should take it. Therefore, it made my decision easier. Yes, I was afraid of the side effects; however, I felt I should try. Evenity did help my bones, so it worked for me. Hoping my second go-around with Evenity will be successful as well.

Please let me know if you would like more information.

@passerby The necrosis of the jaw is the worst s/e of all these drugs for Osteoporosis. That is why I have never taken any over the last 30yrs after being diagnosed at just 30. I did not take as much notice of the other s/e but they do not sound good

@arlene7
Thank you so much. I’ve had a couple people, one a retired cardiologist, not in favor of me getting Evenity because of coronary artery disease. I’m so happy to hear you did well and have improvement and no side effects. 🙂 I haven’t heard from my cardiologist.
I wish I wasn’t scared of treatment. Dr said if not Evenity then Reclast. All this mention of jaw pain & other stuff.

@passerby

Make sure you do your own research on both drugs/all osteoporosis drugs so that you can be a well informed participation in your treatment.

@gravity3

I’m reading everything & feeling scared about the meds. And my back with the fracture. And my bones being weak. And my heart.
If I hadn’t picked my dog up the wrong way in August none of this would be happening.

@patwerthman Penn State can explain it far better than I can, and I have read lots of other articles about it too. I hope it helps!

Of course, prunes have other benefits, and just 4-6 per day is all it takes.
https://www.psu.edu/news/research/story/got-prunes-prunes-may-preserve-bone-density-and-strength-older-women

@arlene7
Thank you so much. I’ve had a couple people, one a retired cardiologist, not in favor of me getting Evenity because of coronary artery disease. I’m so happy to hear you did well and have improvement and no side effects. 🙂 I haven’t heard from my cardiologist.
I wish I wasn’t scared of treatment. Dr said if not Evenity then Reclast. All this mention of jaw pain & other stuff.

@passerby
I'm sorry you are going this. I understand your concerns. There is lots of support and wisdom here. I know it can be overwhelming. As you go along let the group here know what your questions are and what kind of support you need.

@passerby my Neurosurgeon required at least three rounds of Evenity. He stated something to the effects of Reclast is horrible ... it takes bone away. Evenity builds bone fast. All you can do is hear and listen to the pros and cons and when you are ready silence the noise outside and when you are ready share your decision and why. Then silence the noise again and be confident in your decision