Anyone taken Evenity (romosozumab) for Osteoporosis?

Posted by arlene7 @arlene7, May 27, 2020

Has anyone taken Evenity? I understand it’s only been on the market for a little over a year. I’m hoping it will help with my severe osteoporosis. Any information is helpful.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

@artscaping

@jerik, Good evening. Perhaps I can answer that question for you. Yes, you are correct bout the Fosamax (Alendronate) is a weekly pill and Prolia is a twice-a-year injection.

My own experience was not positive when I went on Prolia after 2 years of daily Tymlos injections. Evidently, the amount of medication in a 6-month injection was just too much for my body to handle. The half-life during which the medication is in your body is 3 months. I was used to a small daily dose with the Tymlos injection.

My Mayo endocrinologist figured this out for me. And now I take Alendronate (Fosamax) every Monday morning. I have no side effects.

Also with Prolia, there can be no breaks or drug holidays because of the danger of fractures.

Good luck with your decision.
Chris

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Chris, how long do you anticipate being on Fosamax?

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@dianestanley

I see him on Nov 22. In the Evenity Safety Precautions, it states that Osteonecrosis of the Jaw may occur. Since I can't stand for over five mins at a time, I want to take the risk. From what I have understood from the dentist was that if nothing is done to remove the under the gum situation after my crown broke off, it will probably get infected. He is sending me to the Oral Surgeon to cover all bases.

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I’ll be anxious to hear what the oral surgeon says.

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@kolika

Chris, how long do you anticipate being on Fosamax?

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Good evening @kolika, Although I have not discussed this issue with my endocrinologist, I would think that once my scans are stable and I have not had any further side effects, we will probably explore options. I am already 80 so it can't be too long.

I know that some folks are talking about going back to Eventy for another "bone growth episode". And I also know that more research is being done to support the continued introduction of new products.

I will want to be assured that there are no risks of fractures, as have been reported by those who have been on Prollia.

That's a very good question though and one I will be thinking about. My mother died as a result of a fracture.
Chris

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@marcd

I am interested in information about Forteo treatment after the 12 months of Evenity are complete. There seem to be many options but I am especially interested in Forteo, which continues to build bones. If anyone has experience with Forteo after Evenity, please respond. Also if anyone knows a doc who is knowledgeable about this option, please let me know.

I have been taking Evenity for 7 months. The only side effect has been a slight ache at injection site occasionally. Not enough to stop me from normal activity or fitness exercises.

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A separate post of mine elsewhere on this website addresses this issue. Instead of Forteo after twelve months of Evenity, I continued with Evenity. For more detail see that separate post.

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How do I find your separate post?

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@marcd

A separate post of mine elsewhere on this website addresses this issue. Instead of Forteo after twelve months of Evenity, I continued with Evenity. For more detail see that separate post.

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I took Forteo for approximately a year and a half ( I had to stop for several months at the request of the surgeon who operated on a broken elbow. I now don't believe I should have stopped. I did go back, but the result was probably altered by the time lost. I just completed a year of Evenity and now I don't know what to do. My rhumatologist wants me to go to Prolia, but I have heard mixed reports about Prolia. I would love to have more information. Marilynn at mbglad00@gmail.com

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I have two problems with Prolia. First, if I miss or delay a dose, there is a very high risk of fracture, since the medication wears off quickly and then bones quickly lose density. I am in reasonably good health, but there have been times in my life -- for medical or other reasons -- when I might not have been able to get a Prolia shot on time. That issue is more likely to arise as I get older.
Second, Prolia interferes with immune system response.
For me, both those are deal breakers.
In a week or two I will post my results from taking Evenity for more than one year. It will be in the Evenity discussion chain.

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@erikas

@rita55 It can't be easy to live in pain and I hope you find relief.

Members like @arlene7 @lilypaws @nancyguy @lioness @contentandwell @sue225 @cle60 have experience with this topic and may be able to offer you suggestions and/or support.

You said that you cannot afford to go to Mayo Clinic. Does that mean you are unhappy with your current care and/or you feel you are in need of care you are currently not receiving?

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I feel the same about Mayo Clinic! I would love to GET care that I’m not properly receiving!! Just can’t afford it and they don’t take my insurance. So sad to me!
I’m starting Evenity TODAY! Will let you know as I am “side effects Queen”. I could be a lab rat!

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@bruceandruth1970

I’ll be anxious to hear what the oral surgeon says.

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After discussing with my long term physician and the oral surgeon, the decision is based on the person's history/health, and what needs to be done. It is ultimately your decision if the oral surgeon agrees that work needs to be done. The warnings on the meds need to be considered, however it doesn't mean that the bad things are going to happen to you. Evenity is a bone producer, but the oral surgeon told me that it does have the "Bis" drugs in it like the other osteo drugs. For me, I had some erosion of jaw joint when I had a broken jaw years ago, so it could happen to me anyway without the drug. Although, I have had no problem in 30 years. I chose to go ahead with the surgery and know what to expect if it goes poorly. I want to be able to stand for over five mins. at a time again. I have become disabled at 69 due to the standing issue.

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@dianestanley

After discussing with my long term physician and the oral surgeon, the decision is based on the person's history/health, and what needs to be done. It is ultimately your decision if the oral surgeon agrees that work needs to be done. The warnings on the meds need to be considered, however it doesn't mean that the bad things are going to happen to you. Evenity is a bone producer, but the oral surgeon told me that it does have the "Bis" drugs in it like the other osteo drugs. For me, I had some erosion of jaw joint when I had a broken jaw years ago, so it could happen to me anyway without the drug. Although, I have had no problem in 30 years. I chose to go ahead with the surgery and know what to expect if it goes poorly. I want to be able to stand for over five mins. at a time again. I have become disabled at 69 due to the standing issue.

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Thank you for your reply. If you have oral surgery, how long will you wait to start Evenity again.

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