Anyone taken Evenity (romosozumab) for Osteoporosis?

Posted by arlene7 @arlene7, May 27, 2020

Has anyone taken Evenity? I understand it’s only been on the market for a little over a year. I’m hoping it will help with my severe osteoporosis. Any information is helpful.

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@smcg58

I’m so happy to have found this group. I just visited my endocrinologist yesterday, and Evenity was recommended for me, as well. My osteoporosis is also very bad in my spine. I’m praying that my insurance will cover it! Would love to hear any other feedback.

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If you have broken a bone due to Osteoporosis are on Medicare and have Parts A & B along with a Supplement, I believe that it will be taken care of. I have broken bones in my back, and have all of the above. I could not get surgery due to my Osteoporosis so I am enjoying getting the injections. I have some fat on my arms so most times, I feel very little of the shot. If you are a skinny person with a lot of muscle, I don't know about.

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Many, many thanks to all of you who have shared your Evenity experiences, they have been so helpful and encouraging to me. I have been thinking about this drug for a long time and have finally decided to try it, in part because of your posts. (I have severe osteoporosis as low as -5.2 spine, -4.4 femoral neck and -4.5 total hip.) Part of the reason for waiting is the desire to clear up any question about possible hyperparathyroidism, which will come soon I'm hoping. In the meantime, I'm holding my breath, exercising and being careful. Thus far in life, no breaks since being diagnosed many, many years ago. I'm grateful. Best to all of you already on Evenity, and I look forward to reading about your successes. Kolika

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@dianestanley

If you have broken a bone due to Osteoporosis are on Medicare and have Parts A & B along with a Supplement, I believe that it will be taken care of. I have broken bones in my back, and have all of the above. I could not get surgery due to my Osteoporosis so I am enjoying getting the injections. I have some fat on my arms so most times, I feel very little of the shot. If you are a skinny person with a lot of muscle, I don't know about.

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Thank you! I’m not really too worried about the shots… the risk of fractures are my real concern. I’ve had 4 bad breaks since I was diagnosed. I’m not on Medicare until next year, so am hopeful that my ridiculously expensive insurance will cover it.

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@betsee

Hello,
I also started Evenity in August, and will be having second injection next week. I haven’t experienced any issues I can really pinpoint. Sometimes it’s difficult to differentiate normal aches and pains, from the possibility of something new. Looking forward to taking the Evenity journey with you. Stay strong

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That’s very helpful information! Thanks for sharing and for the link to the journal article. I didn’t realize there were blood tests to show effect of Evenity.

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@arlene7

Yes, I took for one year, with no side effects. My scans afterwards showed significant improvement ( (my Endocrinologist was very pleased). After Evenity I had a Reclast infusion and continued to improve. Had my 2nd Reclast infusion this August. Next year I will have another set of scans to determine next course of action. Doctor mentioned maybe Evenity again.
Hope this helps. Good luck with your journey…it’s a very personal decision but for me it was the right choice.

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Hi Arlene,
Sounds like a success story! I’m having injection #4 next week. Can you clarify how soon after your last injection you had the Reclast infusion? And what was spacing between that injection and following injection? Thank you in advance for the info. Setting my sights on a possible path after my 12th injection.

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@meomurian

That’s very helpful information! Thanks for sharing and for the link to the journal article. I didn’t realize there were blood tests to show effect of Evenity.

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I will be starting evenity soon as well and I am quite nervous. I didn’t see the journal article. I would love to read it. Where can I find that.
Thank you for sharing.

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@candy209

I will be starting evenity soon as well and I am quite nervous. I didn’t see the journal article. I would love to read it. Where can I find that.
Thank you for sharing.

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I would also like to see the journal article.

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@betsee

Hi Arlene,
Sounds like a success story! I’m having injection #4 next week. Can you clarify how soon after your last injection you had the Reclast infusion? And what was spacing between that injection and following injection? Thank you in advance for the info. Setting my sights on a possible path after my 12th injection.

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I had my first Reclast infusion two months after the last Evenity injection. The Reclast infusions are once a year, so I had my second one a year later. The infusions took about 30 minutes. You need to hydrate well before, during, and after the infusion. I felt a little tired and sluggish for a few days afterwards, but nothing terribly bad.

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@candy209

I will be starting evenity soon as well and I am quite nervous. I didn’t see the journal article. I would love to read it. Where can I find that.
Thank you for sharing.

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Here it is:
J of Bone Mineral Res - 2018 - McClung - Effects of 24 Months of Treatment With Romosozumab Followed by 12 Months of (J-of-Bone-Mineral-Res-2018-McClung-Effects-of-24-Months-of-Treatment-With-Romosozumab-Followed-by-12-Months-of.pdf) https://asbmr.onlinelibrary.wiley.com/doi/pdf/10.1002/jbmr.3452

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@meomurian

Here it is:
J of Bone Mineral Res - 2018 - McClung - Effects of 24 Months of Treatment With Romosozumab Followed by 12 Months of (J-of-Bone-Mineral-Res-2018-McClung-Effects-of-24-Months-of-Treatment-With-Romosozumab-Followed-by-12-Months-of.pdf) https://asbmr.onlinelibrary.wiley.com/doi/pdf/10.1002/jbmr.3452

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Thank you so much!

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