COVID vaccines and neuropathy

I developed peripheral neuropathy in December 2021 after my first Moderna booster at the end of October 2021. At the time of onset, I could barely walk. As of early October 2022, I was walking and hiking three miles a day and was completely off of Gabapentin. On Thursday, I had an EMG test. The results were better than I could have imagined. My nerves are completely healed. The health of my nerves is excellent. I’m truly grateful for this turnaround. I feel very blessed to have come through this experience, back to my former good health. My doctor believes that my neuropathy was likely caused by an extreme inflammatory response to an overreaction of my immune system to my first booster. She has suggested a short term prescription for steroids if I have any future, immune response overreactions to medical conditions or at the first sense of a recurrence of any tingling or numbness. The suppression of the immune response by the steroids might keep my immune system from attacking my nerves again. The sole reason that I’m posting this is to let people know, that in some cases, healing is possible. I realize that everyone is different and that not everyone will come through this the way I have, but when I read of the frustration and desperation from so many similar cases, I hope that maybe this will help someone to feel a little better. To feel that there might be hope for resolution to their situation. I was extremely fortunate to have a wonderful doctor who heard me, believed me, and has done all that she can to see me through to this day. She gave me hope from the day I met her. We have a plan in place for any future problems. Knowing that and having such good results from the EMG gives me peace of mind. I wish that for all of you.

Hi @detc, You will notice that we moved your post to an existing discussion on the same topic here so that you could connect with other members like @dortj, @cue and others who are discussing the vaccines and neuropathy symptoms.

-- COVID vaccines and neuropathy
https://connect.mayoclinic.org/discussion/covid-vaccines-and-neuropathy/

You might be interested in seeing the treatments that have helped others with neuropathy symptoms on the Foundation for Peripheral Neuropathy website here: https://www.foundationforpn.org/treatments/

I am so sorry you experienced this too. It's horrible. The covid vaccine ruined my life and completely disabled me. Had the info about adverse reactions and neurological and dysautonomia issues been available and not actively suppressed and ignored, I wouldn't have been talked into it. It has been a year now and I am still unable to do basic tasks or personal care. Can't get a Dr to acknowledge it or do anything about it. Disability is giving me the runaround because the drs won't or can't figure it out bc they won't admit or even consider it was the vaccine despite the many links and studies and the fact that the onset was immediate and nothing changed 6 months before or after. And even if they did, my DDS caseworker already told me he doesn't believe in anything that can be proven definitively, not even cfs and fibromyaligia which I also have and counts as far as SS is concerned as long as it is disabling. I was lied to and coerced into getting it and now that I'm ruined because of it I can't get any help or assistance and I have no recourse since no one can be held liable and the CICP is a joke at best. Beyond ridiculous.

I developed peripheral neuropathy in December 2021 after my first Moderna booster at the end of October 2021. At the time of onset, I could barely walk. As of early October 2022, I was walking and hiking three miles a day and was completely off of Gabapentin. On Thursday, I had an EMG test. The results were better than I could have imagined. My nerves are completely healed. The health of my nerves is excellent. I’m truly grateful for this turnaround. I feel very blessed to have come through this experience, back to my former good health. My doctor believes that my neuropathy was likely caused by an extreme inflammatory response to an overreaction of my immune system to my first booster. She has suggested a short term prescription for steroids if I have any future, immune response overreactions to medical conditions or at the first sense of a recurrence of any tingling or numbness. The suppression of the immune response by the steroids might keep my immune system from attacking my nerves again. The sole reason that I’m posting this is to let people know, that in some cases, healing is possible. I realize that everyone is different and that not everyone will come through this the way I have, but when I read of the frustration and desperation from so many similar cases, I hope that maybe this will help someone to feel a little better. To feel that there might be hope for resolution to their situation. I was extremely fortunate to have a wonderful doctor who heard me, believed me, and has done all that she can to see me through to this day. She gave me hope from the day I met her. We have a plan in place for any future problems. Knowing that and having such good results from the EMG gives me peace of mind. I wish that for all of you.

That is great! Did you do anything besides gabapentin that may have helped with your neuropathy? I stopped taking gabapentin because of the side effects and found that it wasn’t helping with my neuropathy anyway. My neuropathy has never went away since my first and only Pfizer vaccine 4/21. It does get better here and there but always comes back just as bad and sometimes worse.

I developed peripheral neuropathy in December 2021 after my first Moderna booster at the end of October 2021. At the time of onset, I could barely walk. As of early October 2022, I was walking and hiking three miles a day and was completely off of Gabapentin. On Thursday, I had an EMG test. The results were better than I could have imagined. My nerves are completely healed. The health of my nerves is excellent. I’m truly grateful for this turnaround. I feel very blessed to have come through this experience, back to my former good health. My doctor believes that my neuropathy was likely caused by an extreme inflammatory response to an overreaction of my immune system to my first booster. She has suggested a short term prescription for steroids if I have any future, immune response overreactions to medical conditions or at the first sense of a recurrence of any tingling or numbness. The suppression of the immune response by the steroids might keep my immune system from attacking my nerves again. The sole reason that I’m posting this is to let people know, that in some cases, healing is possible. I realize that everyone is different and that not everyone will come through this the way I have, but when I read of the frustration and desperation from so many similar cases, I hope that maybe this will help someone to feel a little better. To feel that there might be hope for resolution to their situation. I was extremely fortunate to have a wonderful doctor who heard me, believed me, and has done all that she can to see me through to this day. She gave me hope from the day I met her. We have a plan in place for any future problems. Knowing that and having such good results from the EMG gives me peace of mind. I wish that for all of you.

Thank you.
I’m sorry to hear that you’re not finding permanent improvement with your neuropathy at this time. I was fortunate that the Gabapentin helped with no negative side effects. I gradually got off of it as my symptoms subsided. I did a 20 minute yoga nidra meditation every day which I think just helped to calm me mentally and physically. For those 20 minutes a day, it felt like I didn’t have neuropathy because I was so focused on the meditation that I forgot about the discomfort. My stated intention during the practice was, “I am healing”. I had to believe that I would completely heal one day. I also exercise walked on the days that my feet allowed. My neurologist told me from the beginning that walking does help, if you’re able. I think it helped that I was otherwise healthy and that apparently, my nerves were in good shape prior to the sudden onset of neuropathy. It’s difficult to stay positive in the midst of the pain and discomfort, but for me, it really was vital. I hope this helps and I wish you all the best.