COVID vaccines and neuropathy

I did not have peripheral neuropathy UNTIL I got the Moderna vaccines. No booster for me. Life is a living hell since getting vaccinated for COVID-19.

Have you had any blood tests or scans? Everything I had tested has all been completely normal and yet the tingling, numbness and vibrations in my legs and feet and hands have continued nonstop for 9 months now. I have not found any supplement or medication helpful at all. Do you have any treatments that work for you? I wish you the best.

Hello John I was wondering how was your experience after the second jab of Covid-19 vaccination.

I am having CINP, I’ll be glad to hear experiences on this.

Thank you

Hi, Fortunately I only had a little soreness but I did have extreme fatigue on the day after the second Pfizer vaccine. I've since had the 3rd booster shot and so far none have had any effect on my small fiber neuropathy. I also contracted COVID after the booster shot but it was mild and I really wasn't sure I even had COVID until I did a home test and followed that with the monoclonal antibody infusion treatment.

Hi
Thank you for update.
That gives a relief.

I had a similar adverse neurological reaction to the Covid vaccine. My neurological symptoms began within 2 weeks of the first vaccination and worsened after the second. I developed sensory and motor peripheral neuropathy diagnosed by EMG. I also developed an elevated ANA titer that peaked when my neurological symptoms peaked. Most of the vaccine-injured patients begin to improve about 8 months after vaccination. I'm much improved, but still recovering at 18 months. Your timeline may be different given that you had 4 shots. I have greatly benefited from joining the Neuro V Long-Haulers Facebook group.

I am done with all COVID vaccines and boosters. Nope. Not gonna do it. It was poison to this Scot-Irish redheaded lass.

I am so sorry you experienced this too. It's horrible. The covid vaccine ruined my life and completely disabled me. Had the info about adverse reactions and neurological and dysautonomia issues been available and not actively suppressed and ignored, I wouldn't have been talked into it. It has been a year now and I am still unable to do basic tasks or personal care. Can't get a Dr to acknowledge it or do anything about it. Disability is giving me the runaround because the drs won't or can't figure it out bc they won't admit or even consider it was the vaccine despite the many links and studies and the fact that the onset was immediate and nothing changed 6 months before or after. And even if they did, my DDS caseworker already told me he doesn't believe in anything that can be proven definitively, not even cfs and fibromyaligia which I also have and counts as far as SS is concerned as long as it is disabling. I was lied to and coerced into getting it and now that I'm ruined because of it I can't get any help or assistance and I have no recourse since no one can be held liable and the CICP is a joke at best. Beyond ridiculous.

My small fiber neuropathy arrived in 2018 and was very painful. It is stable now (only tingling in my toes and hot feet at night that I treat with 5% Lidocaine patches.) I want to keep it in a treatable state but I also wanted some more covid protection because I haven't had any vaccine for a year when I had the J&J. Last week I had the Novavax vaccine (which is made with an old technology) and so far I haven't had any problems with my neuropathy.

During first rounds of chemotherapy, I had two Moderna vaccines and two Moderna boosters, with no reaction except a bit of sore arm and extra fatigue. Neuropathy symptoms get very slightly worse with each maintenance treatment, but are tolerable. Symptoms seem better after exercise and as the day progresses. I am as active as possible and my desire to live independently as long as possible motivates me to keep on keeping on.