Living with Neuropathy - Welcome to the group

Have been on gabapentin for several years and within two months of starting it , I, too, developed a constant case of tinnitus.

Good evening @deb1972, I just ran back on my calendar and realized that I, too, may have developed Tinnitus from a medication. No one mentioned that it could be Gabapentin. I was just happy that one of the benefits of wearing hearing aids is that my Tinnitus is significantly reduced. Thanks.
Chris

I have a pretty severe case of neuropathy starting at my feet and continuing up to my hips. You know how you can hold an ice cube in your hand until it's so cold that it 'burns ' ? You can just drop it. I can't. The whole lower half of my body feels like it's encased in solid ice. I'm telling you it burns like someone is using a blowtorch on my legs. I wake up screaming for my husband. Does anyone else face this horrible mess but me ?

Good evening @deb1972. Hello again. I think you have described the feeling that I get in my feet and lower legs. I call it "liquid ice". Unfortunately, sometimes when my MFR therapist works on my feet, she says they are not as cold on the outside as they appear to be for me on the inside.

Do you wear socks at night or use a heating blanket?
May you be free of suffering and the causes of suffering?
Chris

I too have Peripheral Neuropathy, it’s been about 6 years or so since it started. I believe the cause is from either damage to my feet from standing on my feet for 10 hours straight/5 days a week at work or when I was getting burning itchy welts all over my body-my only relief was to scratch my feet on the concrete steps at the front of the house. My pain has gotten gradually worse over the years and I’ve tried EVERYTHING- Lyrica, Gabapentin, T1s, Vitamin B12, CBD/THC, magnesium, custom orthotics, compression socks, hot/cold foot baths, stretching, massage therapy. Nothing works! My pain has gotten so bad that I’ve had to call off work the last 2 days because it’s so painful to walk. I am using a walker just to take some of the pressure off my feet. I too have high blood pressure and am on meds for that and my thyroid. Yup I am a mess!! Sorry I’m not much help here but I am commenting to let you know you’re not alone and to follow your feed to learn more and talk to others going thru the same thing.
Best of luck,
Kristin

I see you have Tinnitus in your ears, my exhusband had that from being a mechanic for 30 years. He took Biaxin when he got Pneumonia and lost his hearing completely. I don’t want that to happen to anyone else so please don’t take Biaxin if it’s prescribed to you, ask for an alternative. We had no idea that if you have Tinnitus and take Biaxin, it can cause permanent hearing loss.

Hi, Chris. Yes, I wear socks all the time. They only come off for changing into clean ones after my bath. I can't bear to be without them. I stay under a heating blanket all the time, too. Just feel like I am frozen solid from the waist down. My feet and legs don't feel cold to the touch either. Question- do you feel like you are walking inches above the floor?

Kristin, are you taking anything now to help give you some relief?
Gabapentin helps me get through the night. During the day I’m using a cream called Naturulz ultimate healing cream on legs. Amazon has it. It’s a world of hurt isn’t it. So sorry!

Yes I listened everything I’m taking in my last comment including Gabapentin. Haven’t tried the cream, will have to look into that.
Thanks

I found out I had NSLCancer almost a year ago did 3 chemo meds intervenienus every 21 days 5 or 6. It didn’t stop the growth of my cancer. Also I developed numbing stinging and sharp pains in hands and feet, taking meds to help it, working very little. So chemo did not help me with my cancer it made my life terrible. Jorce