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Long haul Covid: exhaustion, confusion and enhanced ADHD
I had Covid at the end of 2020 and early 2021. Thought everything was okay except that I began to feel exhausted almost all day, experiencing a lot of confusion, and enhanced ADHD. I went to a clinic and was diagnosed with the symptoms. I moved to Minnesota and was not able to continue treatment. Is someone here having this kind of symptoms? What have you done about it? People don’t believe this is real.
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People wth your symptoms have ben dagnosed (and I, too, self diagnosed) with reactvated Epstein Barr virus (EPV). Excellent support-research group, Stuff that Works. Many simlar sufferers, shaeing stiries, treatmenta, and empathy in this group. EBV reactvates because of the the immne compromising effects of Covid 19 andor the various vaccines. Group members are quck to provide empathy for what you are experiencing, as well as excellent sharing of info and personal experiences with "stuff that works." You are definitely not alone or nuts. Thousands of us are suffering with indescribable levels of fatigue and most with assorted body pains. WARM WISHES for your healing and effective solutions.
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4 ReactionsWelcome, @josecito. To help with focus and reducing the feeling of confusion and ADHD, you mind the tips in these related discussions helpful:
- Deep Breathing & Mindfulness Class: Anyone else having success? https://connect.mayoclinic.org/discussion/deep-breathing-and-mindfulness-educational-class/
- Post COVID Symptoms: Brain fog and tingling lips https://connect.mayoclinic.org/discussion/post-covid-symptoms/
What treatment were you getting before moving state, Jose?
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2 Reactions@josecito Welcome to Mayo Connect and to my home state, where we take pride in helping others. There are some excellent post-Covid programs in Minnesota, but they can take some time to get into because of high demand.
When you say you are "not able to continue treatment" is it because you no longer have health insurance, or because you don't know where to find it?
Sue
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1 ReactionHi @colleenyoung
The MAYO email sent earlier today had terrific suggestions for dealing with some of the after effect of long term COVID.
Perhaps this has been covered before I a conversation. Has there been mention of an itch that creates great pain. This is deep under the skin no rash.
Thank you
Patsy
@hopeful1953, I see you started a discussion related to this to find others with a similar experience. Thank you.
- Irritated and itchy skin with no rash https://connect.mayoclinic.org/discussion/irritated-and-itchy-skin-with-no-rash/
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2 ReactionsHi @colleenyoung
I will send some of the actual products I used for relief.
My medication prescribed this week has started to have an effected.
I have suffered this skin condition since July. The experiences I’ve had regarding the diagnosis’s from the doctors have been a few. They have that attempted to relieve the itch. They have tried.
I’ll connect with Mayo Clinic discussion.
💕 @hopeful1953
2 DAYS BEFORE I GOT COVID. I ITCHED FROM HEAD TO TOE AND BROKE OUT WITH HIVES. THEY GAVE ME PEDNISONE A VERY HIGH DOSAGE 50MG A DAY FOR 5 DAYS, ITS WAS GONE AFTER MY 3RD DAY ON IT. . I TESTED POSITIVE 2 DAYS AFTER THE ITCHING. POST COVID RASH AND ITCH. HANG IN THERE
Curious, did you get a blood test? I’ve had the same symptoms for over 2 years and asked my pcp for one. Results are usually inconclusive unless it shows a current active infection. I and most people have been exposed at some point to Epstein Barr, some without knowing it and it’s an interesting theory that could make sense. Anyone who has ever had mono and gets the test will show a previous infection reaction. I’m going to ask my Dr about it since we never discussed the results. Everything was positive except the current status and I had a bad case 50 years ago. Interesting stuff. Let’s ALL get better anyway we can because this suc*s! Good luck
I belong to a support research group "Stuff that works" with everyone either coping with hidden or overt EBV. Great protocols and good support.
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1 ReactionI never got a blood test, but have recently moved from small town Oregon, where the medicine was like third world. Got used to dagnosing and treating myself, because my primary's support staff never called me back after five requests following Moderna vaccine injury, or scheduled appts to interpret tests, when I finally had the strengh to go to office for appt. God's truth, an echocardiogram was never read following shortness of breath, which recenly resolved using a protocol aare by Mayo Connect member (also Stuff that works member) who shared her private doc protocol for the EBV. If you are interested, I can share it with you.