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Living with Neuropathy - Welcome to the group
Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?
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HugInterested in more discussions like this? Go to the Neuropathy Support Group.
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Hello @kristin8. I would like to add my welcome along with @artscaping. You will notice that I have moved your post into an existing discussion for new members, which you can find here:
- Living with Neuropathy - Welcome to the group: https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/
What other testing are you having done?
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3 ReactionsHello I’m Joyce
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1 ReactionTesting for my lung cancer or my neuropathy
does anyone out there have have tshds antibody and Igm monoclonal gammopathy causing small fiber neuropathy
my name is robert and i have a small fiber neuropathy caused by an Igm monoclonal protein in the blood and tshds antibody . does anyone else out there have this i would like to talk to you
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1 Reactionwow, never heard anything about alcohol and neuropathy. I have neuropathy bad, but never liked alcohol. I have 2 ex alcoholic husbands, wonder how they are doing. Probably after a few ice tea glasses of scotch, they most likely feel no pain.
I cannot even wear shoes mine is so bad. House slippers only. I wish I didn't have it and that they both had huge ugly warts on their noses (my mother always said that!! In fun)
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4 ReactionsI quit Gabapentin because of “weird” issues but had to go back on it because the pain was getting too bad again. But now I am having ringing/static in my ears. Anyone else have this side effect from Gabapentin?
Hi @glokart1957, There is another discussion on gabapentin side effects that may be helpful here:
-- Gabapentin side effects:
https://connect.mayoclinic.org/discussion/gabapentin-side-effects-2/
Have you discussed possible alternatives to gabapentin with your doctor?
@glokart1957
I was curious how long you took Gabapentin before you quit because of side effects?
Are you having those same weird issues this time around?
How long have you been on it this time?
Jake
Jake
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1 ReactionHello,
I have peripheral neuropathy. The doctor who diagnosed this had no explanation for why. She simply said it was pn and progressive. Start with low dose of gabapentin.
I feel that there has to be a reason and have considered trying to go to Mayo Clinic.
I also have high B/P and take lisinopril and spironolact.
A research dr. In Stanford has written a article as to possible causes and mentions the above.
It is getting worse and trying to find a cause gives me hope.
Thank you for this blog,
Shara
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