Dietary changes for lichen sclerosis

@scarlettoh Hi, is this a new diagnosis for you? Have your doctors been able to help you? I, personally, have not heard of a diet specific to Lichen sclerosis, but i know that many members swear by the AIP (auto-immune protocol) diet. Here is a link:
https://www.healthline.com/nutrition/aip-diet-autoimmune-protocol-diet
I also found this support group for lichen sclerosis:
https://www.lssupport.net/lichen-sclerosus-and-diet-does-the-research-look-good/
I will see if any other members can help
Will you let me know how you like the diet?

I feel that my LS is under control and I eat just about everything. I occasionally use Clobetasol. Ointment if I sense a bit of a flare up but that doesn’t happen often. What I didn’t understand about my LS was that there is a difference between a flare up of LS and the nerve damage caused by LS that has been undiagnosed and untreated for a long time. The steroid ointment will take care of a flare up but it won’t do anything for the nerve damage which I believe remains permanent. This is an important distinction that needs to be made. I always puzzled over why I had pain even after using the ointment until a new GP prescribed a combination pregabalin and amitriptyline and bingo, pain gone. I realize that not everybody can tolerate these medications, I am just fortunate to have no side effects except occasionally have a dry mouth. The important distinction I am trying to make is that a LS flare up and LS caused nerve damage and pain are two different things and need to be tackled in a medically different way. Dietary changes may reduce flare ups but I doubt that they would tackle nerve damage.

@scarlettoh We can ask the following members if they have any tips on diet for you: @bustrbrwn22 , @sue225 , @artist01, @620

I have not flared since adding collagen powder to coffee daily? Has anyone else noticed a difference?

No but I haven’t tried it either.

Don’t know massaging the area helps , but your right when it is painful it isn’t easy to get rid of.

Yes! I have had great success with dietary changes.
I currently eat no dairy, no flour of any kind, no sugar or artificial sweeteners. I also abstain from caffeine and all grain except for 4 oz of rice a day.
I weigh and measure all of my food. The only time I have had a flare in the last few years of eating like this has been when the 8 oz of fruit I eat per day is overly sweet. ( For example, if I eat watermelon for my fruit several days in a row, I will begin to get itchy.)
I am currently considering giving up the rice since I think it could be contributing to a mild flare.
But on the whole, my experience of eating like this for 7 years, I seldom have flares and use the clobetasol for maintenance.
When I was eating flour and sugar, my lichen schlerosis was out of control.

I followed the link on AIP. But since I'm also pescatarian, it eliminated almost my entire diet! I get nearly all of my protein from legumes, nuts/seeds, eggs and dairy.
Is there any research into developing a testing process for auto-immune sensitivities similar to what is done for allergy testing?

I have LS going on30 years. Fortunately I rarely get a flare now. I have never been a fan of diet changes to deal with a sickness except for high blood pressure and high cholesterol, or diabetics controlling sugar. I pretty much eat what I want and have not associated any flare up as a result of any food but I believe you if you can identify the cause of the problem in your case.

Dietary changes…that depends…each carb/fat/vitamin/mineral etc within us has a different effect on our genes and in waking up our dormant genes…