cramping with no ovaries, cervix, or uterus?

I have this off/on achy pain in the back of my left thigh. Four years ago I had a total hysterectomy for endometriosis, and I do have celiac disease. I did not know if it was related to any one of those or not. I have had sciatica but that was 2 years ago, and that is well now. It seems most noticeable at work, which is a semi-sedentary job (I do deliver important paperwork, but not everyday). My chair at home does not seem to aggravate it. Was wondering what it was.

Hi, @airey2 - glad you have gotten some answers on the vaginal bleeding and some cramping since your total hysterectomy for endometriosis. You mentioned you would be having a procedure to cauterize/remove some breakthrough endometriosis around your scar. Have you now had this done? If so, how did it go?

I came here looking for answers about the same thing. I have no uterus nor ovaries now but I did keep my cervix. I had continued monthly bleeding after the hysterectomy so my doctor did a second surgery to remove my ovaries and some wayward endometrial tissue. I thought that the ovaries would take any monthly cycle with them. But every month I bloat, cramp, crave chocolate, and then after a couple days it passes but the bloating goes down more slowly these days unless I take a “water pill”. I’m fine the rest of the time but this still keeps happening in a cyclical pattern. Do our other glands signal the stupid endometriosis to keep kicking our butts once a month?

I have endometriosis also and I found out that endo. is feed by estrogen, and it will even produce its own supply. I was determined to 'starve' the endo. of its food source. Through trial and error, I found that food helps or worsens it. No doctor has ever told me that diet can affect endometriosis.
I was already gluten free for Celiac Disease and one day was eating gluten free bread with flaxseed. I got very sick and couldn't understand why, since it was gluten free. I researched flax and at least 6 different websites said that flax topped the list of having a lot of natural estrogen (plant source estrogen) that our bodies can use. Those same articles also listed soy and gluten as 2nd and 3rd highest sources, respectively. But other sources of natural estrogen, not as high as flax, soy, or gluten, but enough to bother me was in mustard (the turmeric). I also found out that fresh strawberries bothered me, but strawberry jelly did not. I asked my Primary doctor, and she told me to cook all my fruits and veggies because they will all contain natural estrogen in varying amounts. Cooking them will kill it. Also chocolate, coffee and anything that contains caffine will cause inflammation and make the pain worse. Sugar also is an inflammatory food. So yes, food does matter. While diet may not help everyone, and I won't guarantee that it would help you, it did help me.
Start a journal of everything you do and see if you can find common ground.
Stress also will worsen pain.

@airey2 Thank YOU for what you shared, I did not know about FLAX and ESTROGEN. For sure we all are wired differently. Because of hot flashes I have to result to Premarin, no oral, the cream will bypass the liver. At my age I should not be flashing, EVERYTHING has been removed, was left with one Ovary and eventually it had to go also...Non-synthetic Vitamin E helps most of the time.
Stress is worse than many people think..
You shared some valuable information.

@airey2 I still get hot flashes and found Black Cohash helps it's an herb

Hi, @cmd03 - wondering what type of dietary questions you may have (e.g., for patients with a certain disease, general health, those who weight train)? We may be able to refer you to an appropriate thread on Connect.

Also wondering, in light of this thread on cramping with no ovaries, cervix, or uterus, if you may have experienced this situation?

I'm 66 and had a total hysterectomy three years ago for uterine cancer (stage 1) and all was fine until I experienced pain in my abdomen a year ago. Turns out I had a port site metastasis from the laproscopic surgery for the cancer. (Yes, in treating me for cancer, they dropped a few cancer cells on the way out.) No worries - it was fixable with more surgery to remove the small tumor from my abdomen wall followed by plastic surgery to rebuild the abdomen wall. Btw, I was not really considered a candidate for any of these things. No cancer history, no problems with my period, I'm at ideal weight and exercise and eat well. But I have not had children and was taking bio-identical hormones for years so perhaps those factors contributed.

Now, a year later, I'm suddenly having mild chronic pelvic pain like menstral cramps and bloating...also I'm a little moody. Exercise and moving a lot helps. Is this the result of these two surgeries? Should I be concerned or is this "normal" after so much disruption to my midsection?

I know that at the moment, endometriosis can only be diagnosed through surgery. But surgery is expensive and carries high risks for many people. Many women cannot afford surgery or may be high risk and don't want to take the chance of serious complications.
Isn't there some other way that endometriosis can be found and diagnosed accurately? I hear of many tests where a dye is injected and it shows up damage to soft tissue. (for example: when I was a kid, I injured my knee. A dye was injected into my knee to see if I had torn cartilage, which I did not)
Can something similar be done for endo?
I am not a nurse or scientist, but I do suffer from endometriosis. I suffered with it for 20+ years because drs either did not know or didn't care. Finally it was severe enough to have formed a cyst, but meanwhile it had spread all over my abdomen. I feel if there had been a test where dye could be injected, it would've been caught sooner and done less damage. The test(s) while still expensive, would be less than surgery and less invasive.
Is there such a method in the works for endo?

I for one, occasionally experience what feels like menstrual cramps, mostly in right side. Had complete hysterectomy in 2008, and have had issues for past 3 to 4 years of very greasy, sloppy stools, after taking many antibiotics for repeated UTIs. Taking some fat digestion tablets for some time now, which seems to at least keep my bowel issues (mostly) in the morning, usually 3-5 dumps within about an hour or hour & 1/2. Then done with it until either just before bed, or again in the morning. Have been maintaining weight at about 130 to 135 for these past few years. Also now taking D-Mannose for the UTIs, which usually helps, but when I do get them is always the same bacteira (ecoli). Just wondering mostly about the feeling of menstrual cramps, what that might be from. I am 71 years of age.