Post COVID: Anyone experiencing internal vibrations?

Hello. Im new to this forum, but I was wondering how and who tested you for POTS. I am trying to figure out if it is that or long covid causing my internal tremors. I am seeing a functional med dr. and we have discovered I have a huge viral load in my body from shingles & EBV. These viruses may have attacked my nervous system and kickstarted this whole mess. Just trying to at least eliminate any possible options other than long covid.

Hi there. Well, I’m not a medical professional but I can share a few things that I’ve learned so far. From what I understand, those of us who already have Epstein Barr in our system may be more susceptible to long-haul Covid. EBV is a very common virus but some people have more viral load than others. POTS is often caused by long-haul but there are other reasons someone may have it. I had a cardiac specialist check mine but ultimately it was a very simple test that I probably could have done at home.

The nervous system can be overstimulated for any number of reasons. My personal theory is that my immune system was severely depleted, and my nervous system was already totally overwhelmed due to ongoing work stress and long term emotional trauma, plus I know I have EBV (from a case of mono years ago). In my case, it was the perfect storm to make me susceptible to long haul Covid. Treating the nervous system does wonders. I hope this helps!

my wife has had this internal shaking for 6-7mos, we have been to a couple doctors- both think it's anxiety. we have most recently tried to strengthen her vagus nerve via the advice of a functional health therapist.
i found Dr Sletten 's video on YouTube.
helpful to hear him not just relegate it to psychosomatic issues- i will watch more of his talk with my wife

i am so sorry for what many if you are going through! this is a strange disease that is no respecter of persons... we are praying a lot for healing and seeking out any means, doctors or otherwise, whom God might use to recover my 32yo, former NCAA track athlete, wife's health! she is experiencing the internal shaking, low bp/hr in the 120/130's, especially first thing in the am/later in the evening, and cortisol rushes as she lies down for sleep or a nap.

@jostermann I see that you wished to post the link to Dr. Sletten's video. You will be able to add URLs to your posts in a few days. There is a brief period where new members can't post links. We do this to deter spammers and keep the community safe. Allow me to post it for you.

I think @rwinney would agree wholeheartedly with your statement "helpful to hear him not just relegate it to psychosomatic issues". She may have additional videos or information to share with you since she attended Dr. Sletten's 3-week program at Mayo Clinic in Florida, and can answer any questions you might be exploring.

Hello @jostermann, welcome to Connect. Thank you for joining us. I'm sorry your wife is experiencing these annoying vibrations. Regardless of age, these neurological symptoms are unwanted! At 32 years old, I can only imagine she is scratching her head wondering why, and ready to move on with her athletic life without disruption.

The good news is that these symptoms may very well dissipate or become better regulated. I'm thrilled that you are watching Dr. Sletten's video with your wife. You'll gain a better understanding of the central nervous and peripheral sensory systems. Anxiety can be an instigator to the CNS so yes, it can be a contributing factor but most likely not the cause. I'm no expert, just have my own experiences to go on and what I've learned from Dr. Sletten at Mayo's Pain Rehab Center.

Do you mind sharing more about your wife's situation? Has she had COVID? Has she been seen by a neurologist? If so, what tests have been done?

Hi…I am sorry fir what you are going through!! I don’t have health insurance so I can’t see specialists and have lab work done unfortunately. But I am wondering if EBV is contributing to my horrible long Covid. I had a severe case of mono when I was in high school so I wonder if that is part of the problem. I also got shingles 1-1/2 months before Covid. I have been a mess since. How do you treat the over stimulated nervous system if that is what it is? Thanks for any tips you have!!

To Mentors/Moderators:
I'm new on this feed. Here is my story in short: Diagnosed with Non-Sustained Ventricular Tachycardia I 47.2 and PVC's I 49.3 in 2017. Given Metoprolol did not tolerate due to GI symptoms. Given Bystolic did well took it for 12 months daily. At 12 mth follow up was told I could PRN it. Had no symptoms after that at all for 4 years. History of tinnitus 15 years. Has been worse the last 4 yrs.
Had COVID 4/28/22 very mild case. Husband had COVID Aug 31st very mild case as well. I was exposed of course but did't get COVID again. Neither of us were vaccinated. Our primary care Dr was hesitant with our heart backgrounds. On about Sept 23rd I woke up to heart symptoms (like in 2017) and this new odd symptom. LEG VIBRATIONS. I was a former Chiropractic assistant that did therapy on patients. I described these leg sensations like the electric stimulation (E-Stim) I used on patients that never goes away. After a couple of weeks it progressed into my thoracic region. Front, back and sides depending on how I was laying. Most of my symptoms increased at night. Or laying down for a nap mid day. NONE of my Dr's would address this, only cared about my heart of course. I kept saying it's too odd that BOTH heart/vib's same at the same time! I was put back on he Bystolic which in turn helped the Vibrations! That was another google search! However.... now the tinnitus and a new 'ear congestion' feeling has come about from the Bystolic. My Right ear is like being up in an airplane and wants to pop. I don't feel pressure, just the clogged/no hearing symptom. So a call into my Cardio Dr. to switch RX has resulted in him reaching back out to the 'Electrical Cardiologist' to recommend another RX outside the Beta-blocker family. Not good.... bc the vibrations were being helped by that! Oh my...
So now I have my heart symptoms, the vibrations, and somewhat increase in tinnitus since covid. Removing the Bystolic takes away the 'airplane feeling." I'd appreciate any/all info on my story that could help all the way around. Blessings.... Megg

Anyone have weak legs after covid..no pain just jelly like and very weak

Hi Megg, @meggr, welcome to Connect. Thank you for joining the conversation about post-COVID internal vibrations, and sharing your journey thus far. You have a lot going on between tinnitus, heart and neurological, I'm sorry for that. Medications can be such a balancing act, sometimes you don't know if your coming or going.

If you're heart is safe and taken care of with proper medication, do you feel that your vibrations definitely need medication? I've never had COVID, but do live with central sensitization syndrome and from that I've learned that too many meds can stir the pot and add to symptoms. I'm hoping your vibrations dissipate over time and it was simply a central nervous system upregulation from COVID, as can happen. How have you been dealing with vibrations when they come? Do they inhibit you from activity?