Pancreatic Cancer - No signs of spread, Whipple Candidate

Posted by mjennison @mjennison, Sep 27, 2022

Hi and so glad to be part of this group. My husband was diagnosed with Pancreatic Cancer this month. 5.8 cm in the head of the pancreas. CT Scan, MRIs, PET/CT Scan, Diagnostic Endoscopy all show no signs that the cancer has spread and he is a candidate for Whipple Surgery. However, his CA-19 was 1,900 (earlier in the month while experiencing pancreatitis after ECRP procedure to insert stent in Bile Duct and perform Biopsy). Latest CA19 has dropped to 1700. Doctors feel chemo (16 weeks) to ensure no messenger cells are there then Whipple in early 2023. has anyone experienced this? We would love to go in and do the Whipple now, but they are holding off until after chemo based on CA-19 tests being elevated. Thank you for your input.

Interested in more discussions like this? Go to the Pancreatic Cancer Support Group.

@slosammie

I have Stage III PC. Its inoperable. I am taking chemo and it is working. You are fortunate your PC is caught early and has not spread! Think of your surgery as an opportunity to survive - think positive thoughts. Think wellness. You can do this!

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Dear Slosammie, what type of Chomo treatments have you had and what have your reactions been to the treatments? Thanks and God Bless.

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@thebobk

Perhaps you can focus on the fact that the Whipple offers you an opportunity which isn't available to cancer patients with mets (such is my case)? So, while your surgery has its own risks and challenges your prospects after surgery should be much improved. Good luck and I look forward to learning how you're doing. Best,

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@thebobk, thanks for your encouragement to focus on the positive. I pray for your continued progress.

I am located in Barbados where very few Whipple procedures are done because of very late diagnoses - mine is scheduled for Saturday and my surgeon advises that I am very fortunate and have a good prognosis one I come through the surgery.

I will post an update when I am able.

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@mjennison

Hi @catrinka58. Thank you for sharing. I will continue to update on my husband's progress. He started his first round of chemo on 10/5 and will have 8 infusions (every other week) along with a 46 hour pump he comes home with after each chemo visit. This leads us up to mid-January if he tolerates the chemo and no setbacks. At that time we determine whipple and then another 2 months of chemo or radiation then whipple (need to see the CA-19 lowered) Please keep me posted as to how you are doing. Sending positive thoughts and best wishes!

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mjennison, thank you for your kind words and it appears myself and your husband are on the same therapy path. I start chemo on the 19th and will be sent home with a pump as well. This will be every other week for six months than evaluation for possible radiation or whipple surgery. I do hope that your husband continues on a positive path as now we have hope of being cured. Medical technology has progressed tremendously 🤗

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@dubbscopper

I hope all goes well - I got my tumor in the middle and it’s so close to the arteries they keep trying to shrink
It so I can have surgery (caught very early 2cm) - I lived a great life but I am torn between constant pain chemo and otherwise and the burning desire to see my 12 y/o grow up. He is acting pretty cool but kinda clams up when any body talks to him about it. I have always been factual with him including now. I’m hoping that you have a successful surgery. I use terms like just in case stuff goes wrong and in the future I’d I get really sick... just trying to prepare him... I also find a cool uncle or auntie makes conversation a little less intense. Sorry to be scattered but in pain meds -sending good vibes your way.

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@dubbscopper, thanks so much for this very salient advice in the midst of your treatment! I pray you see your 12 year-old grow to manhood - he sounds like a cool kid doing his best to be brave for you.

My boys are 15 and 17 years but I still see my babies. The younger is very introverted like his Dad, and even harder to read than most teens at that age but my firstborn is super positive and has a 'no matter what' attitude I frankly draw strength from. My father and brother are the consummate 'cool grandpa and uncle' and I know they will be there for the boys, especially when my hubby needs a break.

Thanks again for connecting ... I wish you WELL!

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@slosammie

I have Stage III PC. Its inoperable. I am taking chemo and it is working. You are fortunate your PC is caught early and has not spread! Think of your surgery as an opportunity to survive - think positive thoughts. Think wellness. You can do this!

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@slosammie, glad to know you chemo is working! I hope the side effects are managable.

Having lost my mother to cancer at 57 years, literally 3 months after I myself became a mother, and with heredity for the illness high on her side, I guess this situation is emotionally loaded for me for a long time personally and from a parental perspective.

I will THINK POSITIVE, THINK WELL, and pray for strength and healing for us and our families both. Thanks for connecting.

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@elliek

@thebobk, thanks for your encouragement to focus on the positive. I pray for your continued progress.

I am located in Barbados where very few Whipple procedures are done because of very late diagnoses - mine is scheduled for Saturday and my surgeon advises that I am very fortunate and have a good prognosis one I come through the surgery.

I will post an update when I am able.

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@elliek Good luck and looking forward to your update. Best,

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@elliek

@slosammie, glad to know you chemo is working! I hope the side effects are managable.

Having lost my mother to cancer at 57 years, literally 3 months after I myself became a mother, and with heredity for the illness high on her side, I guess this situation is emotionally loaded for me for a long time personally and from a parental perspective.

I will THINK POSITIVE, THINK WELL, and pray for strength and healing for us and our families both. Thanks for connecting.

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Hi Ellie ~ Thank you for your response! Cancer runs high in my family on both sides too...we must be aware for the signs, Mine were ignored by my diabetes endocrinologist over 10 months of pain complaints. Luckily, I had other doctors who made referrals and I was properly diagnosed, hopefully in time. Its close and I am not sure of the outcome yet. My gastroenterologists were on the ball and recognized my having melanoma 46 years ago precluded me for additional cancer flaring up...that is now with the PC. I was given the proper tests MRI, CAT Scan CA-19 then a biopsy. I wish you a long life with your family. I will add you to my prayer list if that's ok with you...Sammie

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I had a Whipple in 2015 due to MCNs and IPMNs. After the CT, ERCP, MRCP my doctor met with a panel of 7 doctors to discuss my case. The cyst in head of pancreas was in worst spot and would eventually cause problems. Within a week I was having the Whipple. Unfortunately I had complications with a fistula. A lung collapsed and ended up with a feeding tube because everything made me sick. I was their longest Whipple patient being in hospital 30 days. Went home, had to go back for a week due to an abscess. It took a while but I got better. No cancer. Now 7.5 years later I was hospitalized for gastritis after taking pain meds for a hand surgery. Did CT and doing another cyst on what’s left of pancreas (tail) and on liver (the part the tail was reattached to). In 2 weeks I’m having another CT of pancreas and liver with contrast followed by another scope to aspirate cyst and biopsy. Long story. I’m so glad yours doesn’t appear to have spread. That’s awesome. I’ll pray for you.

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@catrinka58

mjennison, thank you for your kind words and it appears myself and your husband are on the same therapy path. I start chemo on the 19th and will be sent home with a pump as well. This will be every other week for six months than evaluation for possible radiation or whipple surgery. I do hope that your husband continues on a positive path as now we have hope of being cured. Medical technology has progressed tremendously 🤗

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Yes, please keep us posted. I’m doing same process, chemo #2 on Friday.

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@elliek

Hi All. Over the past two weeks I have learnt I have 3cm tumour - mucinous cystic neoplasm with nodule presence - in the pancreas head with no spread to other organs, and am headed into whipple surgery in 7 days. Presence of cancer and spread to lymph nodes to be determined via biopsy. I am a mother under 50, obese but relatively healthy otherwise. Nervous about this high risk surgery, as I have a young family including teenaged boys.

Any thoughts about how to mentally prepare children for this, especially when one is barely holding it together oneself? Thank you.

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Ellie, you got great advice from @dubbscopper about talking to teens about cancer. I think you both might appreciate this related discussion:

- Family dynamics challenging when a parent has cancer: Want to connect https://connect.mayoclinic.org/discussion/group-focused-on-families-and-parent-with-cancer/

I provided a few additional resources in that discussion. My personal thoughts are: 1) be honest with your teens, including to share your feelings even if they mean sharing that you're scared or worried, and 2) don't be alarmed if they don't seem worried or are able to continue with teen behavior. It's a stage of life where self-absorption is their primary brain function.

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