Body vibrations when falling asleep or waking?

This started for me a couple months after having COVID but prior to receiving
any COVID vaccines.

Oh wow thanks for that! Ill try taking the daily vitamins. I thought it was only happening when I was drinking alcohol like a glass of wine with dinner but it happens even if I don’t drink.

Yes! I have told three neurologists about this condition and not one of them had heard of it before. They knew about internal tremors which occur in the daytime, but they knew nothing about the type of internal body vibrations which happen when asleep/waking up/falling asleep exclusively. One of the neurologists said that this can be an early sign of Parkinson's disease, but that there are additional cause of internal tremors as well. If anyone here gets a firm diagnosis of the cause, please let us all know. Thank you. In the meantime, I have been watching out for diagnoses for this condition on two private facebook groups called Internal Tremors and Sleep Tremors/Internal Vibrations. One way, the scientific community will finally know what this medical condition is, I hope.

I did read that some where else. But how sure can they be if they have never heard of this happening. I honestly think this is a pretty new thing since healthcare providers have never heard of it, ppl are just starting to talk about it and there’s not too much information on it. That too is making me wonder if this is a symptom related to having Covid or the vaccine. Its the only thing I see a lot of us in the discussion have in common. Thank you so much for sharing!

@johnbishop, @shaynonof3, @martinashton, and all... A voice from another corner of our world. I began having this shaking inside, internal upper abdomen vibrations, shaking I feel and others can feel if they touch the area...in 2019 while in rehab recovering from a 4-day stay for severe edema and heart failure. It usually happened at this time after eating at the table with folks. I'd begin to get up...use my muscles to push the chair out... and bam! The diaphragm area began shaking inside. It actually felt similar at first to when I was pregnant and felt the baby moving. I'm 75, and no baby! Thankfully! But, very real tremors.

They continued, worsened and now, I have them throughout my body. I believe after the abdomen, I had them in my right hand and then both hands/arms, then the entire abdomen, legs, feet, and head. Now, I have full body tremors, almost 4 years later.

Now, these tremors occur on waking, most days., especially when I get up to go to the bathroom. Early morning is the worst. The entire body stretches in bed, pulling down my heels and then stretching the entire body, feels good and helps relieve the discomfort, but the tremors continue. I often end up in the fetal position, hugging my body to relax in a different position. It helps at times.

They're much worse now. Almost daily. I also now have PTSD nightmares and take Prozasin nightly to relieve them, which does reduce the severity of the horrors. The nightmares occur usually at 3-6 a.m., tremors are extreme and don't stop. I take my morning medications, including a 1/2 Xanax tablet, Robaxin muscle relaxant, and BP meds, thinking that should help. It may, but they continue. There are days I can't get up due to these tremors for several hours. I've spent a few days in bed unable to get control of my body enough to move well and be steady.

I take Requip for restless leg syndrome, a Parkinson's med and it helps my sleep tremendously. As does Iron w/C supplement and 2 Iron infusions last year. They've given me some life back with increased energy, better sleep, better balance, and outlook. But, the tremors are now worsening.

My sleep is improved, and my legs don't hurt, and ache as much as they did keeping me awake in pain often at night. Then, the days were tough. Now, with heated therapy pool PT and nightly marijuana tincture, I've improved in that area. But, the body tremors are worsening.

I'm leaning towards Parkinson's or some form of this disorder. I should revisit my wonderful Mayo Parkinson's specialist soon but have put it off due to other more vital life struggles taking the lead. A disabled son who's getting worse, hurricane as I live in Florida, and such. But, after this discussion and your input, I'm heading back to my doctor at Mayo for a talk. Perhaps I need some other meds, levodopa, or whatever. Not diagnosing, but beginning to see signs that need to be addressed.

I wish you all the best and pray you to find your answers. You're in the right place on Connect. This site has helped me tremendously through the individual personal support from folks with the same issues, sharing my experiences with others gave me such peace and strength. I thank everyone for your giving, your sharing, and your support.
Blessings to all...Elizabeth

Thanks for your post. I’m experiencing a similar sensation and I would be very interested to know what you are being recommended to take for supplements, if you are willing to share. I’m taking fish oil, phospholipids, and mucuna pruriens for the dopamine boost but I’m still experiencing this symptom some nights / mornings. Neuro tests normal so far but will have a brain mri in a couple of weeks. I’m very interested in anything to help reduce neuroinflammation which is what I believe is causing this. No family history of MS and no other symptoms of Parkinson’s or essential tremor.

Welcome @rubyinparadise, While we wait for @vitaminnd to respond to your question on what supplements they are taking to reduce neuroinflammation, I thought I would share this article on the topic that you might find helpful.

"Vitamin C, vitamin E, vitamin D, and riboflavin are key dietary antioxidants which simultaneously protect against excitotoxicity, oxidative stress, and neuroinflammation."
-- Micronutrients May Be a Unique Weapon Against the Neurotoxic Triad of Excitotoxicity, Oxidative Stress and Neuroinflammation: A Perspective:
https://www.frontiersin.org/articles/10.3389/fnins.2021.726457/full

Did your doctor or neurologist offer any suggestions on supplements?

Thanks John! I take those already and will certainly continue to do so.
I’m also going to do a heavy metals test and possibly try a heavy metal detox though I’ve had no known exposure.
Neurologist was largely unhelpful sadly. I’m seeing a second neuro soon though. My doctor was also not helpful but thankfully I also have a naturopath and she is very knowledgeable and most importantly, she actually listens and she believes me.

Thank you for your comments and information. I am curious as to how many of us started having this issue after either getting the vaccination or having Covid. Mine did start after my third Covid vaccination and I have not had Covid that I know of. But I am nervous about getting the new booster for fear it might worsen my vibrations. Thinking it might be good for me to get an antibody test to see if I have unknowingly had Covid if my doctor will do it. If it was a positive then I would feel it would more likely to have been the infection rather than the vaccination.

It definitely feels that way. I had both vaccines and 1 booster and also Covid in June….I’m reluctant to get another booster as well. It started for me about 6-8 weeks after I had Covid.