1. < Transplants

What helps with post liver transplant fatigue?

Posted by des46893 @des46893, Aug 16, 2019

I am 40 months post liver transplant. Prior to my transplant my only symptoms were muscle cramping and fatigue. Post surgery I no longer have issues with cramping but I am still dealing with fatigue. I googled for information and was surprised that this a common occurrence after the transplant. Some of the literature speculated that an exercise program might help. Any opinions or experiences to share would be appreciated.

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eparker6 | @eparker6 | Oct 3, 2022
In reply to @rosemarya "@myfablife, I don't remember what amount of Tacrolimus I started with, but it started high and..." + (show)
@rosemarya

@myfablife, I don't remember what amount of Tacrolimus I started with, but it started high and was gradually reduced to where I am now at 1.5 morning and evening (12 hours apart). This has been stable for at least 5 years. I take 2 immunosuppressant meds, I also am taking Cellcept. My routine labs are now drawn every 3 months. Please keep in mind that our medications are individualized.
It sounds good to hear that your CKD is stable right now. That must be a relief!
Some members have shared that they were switched to another medication. I don't know anything about our medications, but I did find this link that might provide you with some information.
Blogs>Transplant>Immunosuppression: Watching For and Managing Side Effects
https://connect.mayoclinic.org/blog/transplant/newsfeed-post/immunosuppression-watching-for-and-managing-side-effects/

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Thank you for the info!

REPLY
arqui02000 | @arqui02000 | Oct 3, 2022
In reply to @rosemarya "@myfablife, I don't remember what amount of Tacrolimus I started with, but it started high and..." + (show)
@rosemarya

@myfablife, I don't remember what amount of Tacrolimus I started with, but it started high and was gradually reduced to where I am now at 1.5 morning and evening (12 hours apart). This has been stable for at least 5 years. I take 2 immunosuppressant meds, I also am taking Cellcept. My routine labs are now drawn every 3 months. Please keep in mind that our medications are individualized.
It sounds good to hear that your CKD is stable right now. That must be a relief!
Some members have shared that they were switched to another medication. I don't know anything about our medications, but I did find this link that might provide you with some information.
Blogs>Transplant>Immunosuppression: Watching For and Managing Side Effects
https://connect.mayoclinic.org/blog/transplant/newsfeed-post/immunosuppression-watching-for-and-managing-side-effects/

Jump to this post

RoseMary I was trying to connect some members you send me the name, but I could not reach them could you help me? I need to find out the Pro and Con of the TIPS may be this is going to happen to me

REPLY
myfablife | @myfablife | Oct 4, 2022

I would like to know why the portal hypertension and return of cirrhosis also. I do hope the meds help and u will be fine.

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