Anyone had a problem with neuropathy after receiving the vaccine?
I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?
Interested in more discussions like this? Go to the Neuropathy Support Group.
Connect

The doctors are still trying to figure it out. I am sorry can't help with your daughter. I will post if they change for me
-
Like -
Helpful -
Hug
1 ReactionThank you, Debbie. In my own year-long quest for a diagnosis of what turned out to be "likely clinically isolated demyelination syndrome" I went down many rabbit holes of this type, including B6 toxicity. I'd had two doses of Shingrix several months before onset. Not knowing what I had made it easy to make wild guesses at causation. I finally got a diagnosis but of course causation was still an open question. In the past year, two very strong papers have come out suggestion that MS (and CIDS) are auto-immune reactions to re-activated Epstein-Barr. But most neurological conditions have no known cause other than genetics.
I have to disagree with you about "any database is good." The educated know that a database like VAERS is "GIGO" - garbage in, garbage out. A good database is one that is designed to answer a specific question and the manner of data collection is critically important.
There is no indication that SARS-CoV-2 started in multiple places in the world. The World Health Organization has a reporting system. There was a rapid outbreak in China, centered in Wuhan. The WHO was alerted on 12/31/19. https://www.cdc.gov/museum/timeline/covid19.html
-
Like -
Helpful -
Hug
1 ReactionKind of like weather forecasting, you take what data you have, experience, make all these models, and still hard to predict! But sometimes they get it right, and for many of us it’s not close enough.
Sorry to hear what you’ve been going through. I will say that the Shingrex vaccine is the worst I’ve ever had in my life! But not the cause of my neuropathy, since I already had that. But the shingles I had 6 months before my Shingrex vaccine was a lot lot worse.
As for this site, we read of those who think the Covid vaccine is the cause of their neuropathy. I know people who reported it’s caused their hair loss, heart palpitations, eczema, GI issues, and blurred vision. So the VAERS reports on what this vaccine is thought to have caused have to be all over the map and certainly no way of knowing true cause of people’s reported conditions. I wouldn’t want to be the one employed to decipher it. You are obviously well informed, and I do rely on WHO and CDC on providing information that they’re resourced better than we are to inform, but how do you propose that real, statistically correct data is collected and folks can contribute? Quite the conundrum…
We rely on trained epidemiologists. And adequate funding for the research and analysis.
-
Like -
Helpful -
Hug
2 ReactionsAwhile back I read an article about a study done on neuropathy caused by the covid vaccine. I'm sorry I cannot locate it to share, but it basically found that the vaccine could cause neuropthy in a small percentage of cases, but the covid infection caused it in a much larger percentage. The conclusion seemed to be that the risk of neuropathy is much great with an infection. I am providing a link to a somewhat similar article which is a bit more technical but pretty much tells the same story.
https://pubmed.ncbi.nlm.nih.gov/35233819/
-
Like -
Helpful -
Hug
5 ReactionsSadly, this is the reaction by, not only those who have not experienced an adverse reaction to the Covid specific vaccines, but the medical community, governments and the media. Those of us who had never had any adverse reactions to any other vaccines, who were healthy and well prior to the Covid vaccine, and who experienced devastating and long-term injury immediately after the vaccine, know full well the cause. Many of us have spent months or years trying to find 1. Doctors who will believe us. 2. Testing that shows something. SFN seems to be one of the few definitive diagnosis’ amidst the cascade of other ‘typical’ symptoms following Covid vaccination (for those unlucky enough to have an adverse reaction) which also mimics long-covid. Future study (should it take place) may find that those of us so affected are particularly sensitive to the spike protein itself, as opposed to any other ingredient in the vaccine. But until those of us vaccine-injured are taken seriously, there will never be an answer. My personal cascade of symptoms happened within 15 minutes and progressed over the next few days - tremors, facial numbness, brain-fog, cranial pressure, heart pain, lung pain, paresthesia, tinnitus, insomnia, and ultimately neuropathy. 17months on I still suffer from tinnitus, paresthesia and neuropathy. I am still trying to get medical assistance. I am still met with skepticism. Those of us who rolled up our sleeves to do the right thing are, by that very act, demonstrably not anti-vax. We played our part to protect ourselves, our loved ones, and strangers on the street. Yes, adverse reactions are rare, but all we wanted is for those entities who encouraged us to get jabbed to say, “if you’ve had a problem, we’ve got your back.”
-
Like -
Helpful -
Hug
9 ReactionsThe Pfizer and Moderna vaccines do not contain the spike protein. It contains mRNA (messenger RNA) that make antibodies to the spike protein, should that protein (i.e., the COVID virus) enter your body.
If you were exposed to the spike protein, it was because you contracted COVID.
That you were affected within 15 min is unusual but it couldn't have been due to exposure to the spike protein because the Prizer and Moderna vaccines do not contain the spike protein.
The J&J vaccine is basically a modified adenovirus that carries instructions to your cells to make the spike protein, to provoke your immune system to create antibodies. Did you have the J&J vaccine?
-
Like -
Helpful -
Hug
5 ReactionsThis is NOT A STUDY. It is just a description of the VAERS data. Self-reported data, not investigated or verified by anyone. People who assume that their conditions or systems were caused by a vaccine and chose to report those assumptions to VAERS.
It does NOT say CAUSE. It says REPORTED.
Correlation is NOT causation. I can't say that strongly enough.
And 1/10 of one percent is not even correlation. It is an extremely weak association.
-
Like -
Helpful -
Hug
1 ReactionI think your best bet would be a neurologist at a large teaching hospital, depending on where you are located. I am seeing one and she has been very helpful. That is to say, helpful in order ing lots and lots of tests that are all coming back normal, so she is going with a presumptive diagnosis of a small fiber neuropathy. She said she is seeing an increase of cases both from the vaccination and the covid infection itself. There is a study going on at the University of Vermont Hospital by Dr Waheed who reported one of the first cases of peripheral neuropathy post vaccination. Unfortunately, there is not much to be done for this type of neuropathy unless they can get to the bottom of an actual cause. Getting on Google just leads to a cesspool of misinformation and conspiracy theorists though. And VAERS, as someone pointed out, is a self reporting vehicle that anyone, anywhere can report anything.
-
Like -
Helpful -
Hug
2 Reactionshttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC8250971/
I don't know if this is allowed on this board, but this is a link to the first case study by Dr Waheer.
-
Like -
Helpful -
Hug
2 Reactions