COVID vaccines and neuropathy

Thank you for your reply. I’ve never had a traditional flu vaccine. I am 64. I have not had vaccines for shingles. At this point I have no idea whether I should take these precautions or just let it go. I would value your opinion. Also, what state are you located in? I would be open to finding another Doctor who would take me seriously. I am located in New Jersey. Thanks again and all the best!

I am in southern Colorado. I travel up to the University of Colorado Hospital in Denver, which is a 14 hour round trip from where I live, so it's an overnight stay for me. I am 68. There is just about zero medical care where I live. The doctor I see is Dr Kang, a neurologist,at UCH. I have been told she is booked out till May 2023! Ridiculous. It took me 3 months to get a video appointment with her. She is running a million tests, all normal so far and honestly if this is a small fiber neuropathy triggered somehow by the vaccination, she admits there is not much to do about it. I am going to get my flu vaccine next week sometime, so I will let you know how it goes. She is OK with that, but she wants me to wait for the Omicron till all my tests are back, which could be another month. And she also said, getting covid could make it worse, along with all the bad respiratory stuff that covid gives you. Honestly, this is such a mess. I am hoping my body just returns to semi normal state in the coming months. I don't know what to say about getting other vaccinations. As, I said, I have taken everything, flu, shingles, tetanus, hepatitis and 3 Pfizer shots without a problem. It was the 4th one that did me in! And I have always been pro vaccination, and I still am. My doctor, like me, thinks it is the spike protein of this new virus that is causing all these issues. It's as if I have long covid without ever having covid. Crazy. So for now, I am still wearing a mask indoors and following all the public health precautions despite no one else doing these things.

Yes, please stay in touch. I would certainly recommend the supplements I am taking as I’ve had much improvement since taking them regularly. Epson salt baths are nothing short of amazing, albeit short lived. I would love to hear how you are doing. Nice to meet you.❤️

I'm jumping in on this conversation because my situation is also quite similar! I'm a professional musician so the neuropathy is limiting and debilitating to my livelihood. I also had good luck with epsom salt baths and certain vitamins that my chiropractor recommended, including one that is called "receptor detox". I more recently started seeing an acupuncture person who has studied classical chinese medicine and the herbs he has given me have been nothing short of a miracle. I went from my muscles feeling like beef jerky (tight, brittle, dry, spasming) to almost normal in just a matter of 2 weeks. I felt my anxiety downshift, as well. I'm sleeping better and feel much more like my energetic self. My acupuncture person said he is treating many people with covid or vaccine symptoms.....and we all have very similar issues. I think the more folks that get boosted, the more this will come to light. Best of luck to all on this site. I'm grateful for the conversation and for the support!

Nice to meet you too! I will keep you updated. I have the flu vaccine scheduled for the end of the week.

I think acupuncture and Chinese herbs would be very helpful, also the epsom salt baths. I think that there are certain triggers that set the immune system into overdrive, and the covid spike protein is one of them. I am trying everything to get mine to settle down, and hoping that I am not crazy to get the flu shot this week. I will keep you all updated. Best wishes!

lindasue, would you please explain what NAC is? Dosage, brand and frequency… for my peripheral neuropathy. Appreciate it, Bcool123

NAC: N-Acetyl L-Cysteine https://www.the-well.com/editorial/benefits-of-nac-supplements

My experience with neuropathy began two weeks after I’m received my Pfizer Covid booster on 10/5/2021. From that time on I have become increasingly miserable and am so severely affected by the heat and sun that I have to take ice packs with me if I think I am going to be exposed to these triggers. I have not been helped by a neurologist, an infectious disease physician, or a pain specialist. Needless to say, this continues to not only greatly impact my quality of life, but continues to severely limit what I can do with my family and friends.

Hi bybee,

Could you tell me what symptoms you have when you encounter heat or the sun? I have developed hyperhidrosis (excessive sweating) and wondered if there was a link with the vaccines.