1. < Breast Cancer

CA 27-29 numbers rising: Does anyone else have an issue like this?

Posted by sandyjr @sandyjr, Jul 1, 2019

My Ca 27.29 seems to be high....in the 40’s....and my oncologist says that that is probably normal for me. He checked the records from my first bc. Does anyone else have an issue like this?

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jemma17 | @jemma17 | Sep 20, 2022
In reply to @mssewest "@jemma17 What was your treatment for the growth in your clavicle? Did you have radiation treatment?..." + (show)
@mssewest

@jemma17 What was your treatment for the growth in your clavicle? Did you have radiation treatment? Was cancer found in your lymph nodes? I found a lump in my clavicle area and Onc said it is in my lymph nodes so I did chemo and just finished radiation treatment. My throat/esophagus is literally burning and wondering if you had any similar side effects.

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I’m ten years in with breast cancer, so my oncologist is thinking I’ve maxed out to radiation in that area. My lungs have damage as I’ve also treated sternum growth. When the clavicle mass appeared, we found other growth at the same time, so I switched to Piqray since I had the right mutation. Unbelievably, it shrunk, along with the spit in my liver and my uptake in my other bones is down. Don’t know how long it’ll be effective, but I’m grateful!

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cctoo. Catherine Crowley | @cctoo | Sep 21, 2022

Two oncologists told me anything under 38 is normal. I started feeling not well so had markers checked. kept rising and sure enough an ultrasound found enlarged node in armpit...had biopsy and is cancer recurrence... But!! My 27-29 marker went down to 9!!! It had been 17 before biopsy.

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kseanob | @kseanob | Sep 23, 2022
In reply to @oilermama "I keep a chart where I track the monthly results. I like to see the changes...." + (show)
@oilermama

I keep a chart where I track the monthly results. I like to see the changes. I also have the CA15.3 done and it looks like a roller coaster most of the time. The oncologist laughs at my excel chart but I want to know what the numbers are doing. Are you able to see all of your results without consulting the doctor?

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Hey, I'm a freelance journalist (as well as a BC survivor) who is doing an article for CURE magazine on patient access to their lab results. Because of a new federal law, they get see results immediately, sometimes before their oncologist can. It seems you like getting that info promptly. I'd love to interview you about the pluses and minuses of seeing test results super-fast. Apologies if you find this email intrusive; I'm just anxious to get some patient voices in my piece instead of the "experts."
Kathleen O'Brien

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2 replies
lisakinpa | @lisakinpa | Sep 24, 2022
In reply to @kseanob "Hey, I'm a freelance journalist (as well as a BC survivor) who is doing an article..." + (show)
@kseanob

Hey, I'm a freelance journalist (as well as a BC survivor) who is doing an article for CURE magazine on patient access to their lab results. Because of a new federal law, they get see results immediately, sometimes before their oncologist can. It seems you like getting that info promptly. I'd love to interview you about the pluses and minuses of seeing test results super-fast. Apologies if you find this email intrusive; I'm just anxious to get some patient voices in my piece instead of the "experts."
Kathleen O'Brien

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I would be happy to help as well as I have a lot of thoughts regarding the use of the medical portal, both positive and negative.

I also enjoy reading Cure magazine. 👍🏻👍🏻

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1 reply
kseanob | @kseanob | Sep 24, 2022
In reply to @lisakinpa "I would be happy to help as well as I have a lot of thoughts regarding..." + (show)
@lisakinpa

I would be happy to help as well as I have a lot of thoughts regarding the use of the medical portal, both positive and negative.

I also enjoy reading Cure magazine. 👍🏻👍🏻

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Thanks! This site blocks my email address as potential spam, but maybe you can private message me, then I can respond with my email? I'm Kathleen O'Brien, and worked as a journalist for many years in NJ, should you want to Google me.

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Sep 24, 2022
In reply to @kseanob "Thanks! This site blocks my email address as potential spam, but maybe you can private message..." + (show)
@kseanob

Thanks! This site blocks my email address as potential spam, but maybe you can private message me, then I can respond with my email? I'm Kathleen O'Brien, and worked as a journalist for many years in NJ, should you want to Google me.

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Kathleen, You will be able to add URLs to your posts and private message in a few days. There is a brief period where new members can't post links or initiate a private message. We do this to deter spammers and keep the community safe. We also recommend that members not share personal contact information on a public forum.

@lisakinpa can send you a private message so that you can exchange personal contact information securely.

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1 reply
kseanob | @kseanob | Sep 24, 2022
In reply to @colleenyoung "Kathleen, You will be able to add URLs to your posts and private message in a..." + (show)
@colleenyoung

Kathleen, You will be able to add URLs to your posts and private message in a few days. There is a brief period where new members can't post links or initiate a private message. We do this to deter spammers and keep the community safe. We also recommend that members not share personal contact information on a public forum.

@lisakinpa can send you a private message so that you can exchange personal contact information securely.

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Cool! Thanks for the clarification.

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jaynep | @jaynep | Sep 25, 2022
In reply to @kseanob "Hey, I'm a freelance journalist (as well as a BC survivor) who is doing an article..." + (show)
@kseanob

Hey, I'm a freelance journalist (as well as a BC survivor) who is doing an article for CURE magazine on patient access to their lab results. Because of a new federal law, they get see results immediately, sometimes before their oncologist can. It seems you like getting that info promptly. I'd love to interview you about the pluses and minuses of seeing test results super-fast. Apologies if you find this email intrusive; I'm just anxious to get some patient voices in my piece instead of the "experts."
Kathleen O'Brien

Jump to this post

That sounds like a very interesting piece you are writing. I found out that 1) I had breast cancer and 2) the lumpectomy (I had 2) did not achieve clear margins, which would mean a mastectomy. I feel very ambivalent about this. I was devastated.

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1 reply
kseanob | @kseanob | Sep 25, 2022
In reply to @jaynep "That sounds like a very interesting piece you are writing. I found out that 1) I..." + (show)
@jaynep

That sounds like a very interesting piece you are writing. I found out that 1) I had breast cancer and 2) the lumpectomy (I had 2) did not achieve clear margins, which would mean a mastectomy. I feel very ambivalent about this. I was devastated.

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Wait.....you found these things out via your patient online account?!?! Holy moly!

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1 reply
dianemh | @dianemh | Sep 26, 2022

Mine have been rising for over a year. Last one was 695!! Had PET scan and found nothing. It is scary but not diagnostic and I continue with treatment.

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