Infundibulum or aneurysm?

Posted by lilcountry @lilcountry, Jul 15, 2018

Hi. So last week, my neurologist gave me the results of my MRI and MRA and said they have found what is either an infundibulum or an aneurysm, they can’t be sure which without doing a cerebral angiogram. It’s over 3mm in size. I originally went to him because I had been having “spells” as we had been calling them, where I seemed to zone out, almost like a seizure but without shaking, a non epileptic seizure if you will. He insists this has no bearing on it and seems to think those are triggered only by stress. He also showed me numerous white “spots” all over the MRI which he said were probably just from my migraines. A friend of mine had the same white “spots” on hers and her doctor did not brush it off as migraines. I’ve never had any problems like this before, and to be honest I am scared. Should I get a second opinion? Any advice would be appreciated.

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feelingthankful | @feelingthankful | Aug 22, 2022

In reply to @rebhof "I have left several messages to him direct with no answer." + (show)

Hi,
If helpful at least sometimes They just watch things of that smaller size (or would need an angio they might not do) (since they would watch it either way )to confirm what it is between the two. However talk to your doctor of course for specifics. But take a deep breath as they may not know/tell you specifics unless they do more testing. Hang in there. The vs. typically means they can’t confirm what it is between the two. I understand this can be frustrating. The small size is a good thing.

tkeys | @tkeys | Sep 20, 2022

Get a second opinion at a Large well know University hospital that has a specialist that can address your situation .Don’t think twice about!

feelingthankful | @feelingthankful | Sep 26, 2022

In reply to @tkeys "Get a second opinion at a Large well know University hospital that has a specialist that..." + (show)

Good advice

roseyro | @roseyro | Dec 18, 2024

Hi friends. I have been experiencing extreme lightheadedness, Dizziness headaches and nausea since October following a severe double ear infection. After numerous visits to my ENT and GP, a CT scan and a balance test, they all came back normal. It is also not a blood pressure or nlood sugar issue. I had an MRI and an MRA 2 days ago with and without contrast. The MRI was normal. My MRA says :

RIGHT ICA: Patent. There is a 1 to 2 mm
outpouching extending posteriorly from the
ICA terminus (series 4, images 145-147 ano
series 6, image 1) which may represent an
infundibulum versus a tiny aneurysm "
Nothing else in the report was abnormal.

I have not yet spoken to my GP but I could read the report on my portal.
I'm finding that infundibulums are usually left alone. My question is, with my symptoms, do you think they will recommend further testing?
My ear infections are gone and ENT says this is not related to ears.
My lightheadedness and nausea vary day to day but are still present and I am on medical leave from work. I hate missing work this year as it is my last year as a 6th grade teacher before I retire.
Any advice or others with these issues?

Thanks so much!
Ro

tainan | @tainan | Dec 19, 2024

In reply to @roseyro "Hi friends. I have been experiencing extreme lightheadedness, Dizziness headaches and nausea since October following a..." + (show)

In 2022, I developed pulsating of brain, dizziness and lightheaded and collapsed in the floor. After several doctors visit and MRI, MRA results is I have Brain Aneurysm 4mm behind my left eye ball. There is no any medical treatment but I developed a regimen that helps me symptoms free and BA stay in 4mm.
I took medication for BP, maintain with normal range. Eat low salt diet.
Elevate the bed 45 degrees to sleep.
Water aquatic exercise. 7/3/2024, I had MRA done and result is my BA stable, not remarkable.
Hope this information is helpful to you. Good luck.
Tainan

roseyro | @roseyro | Dec 19, 2024

In reply to @tainan "In 2022, I developed pulsating of brain, dizziness and lightheaded and collapsed in the floor. After..." + (show)

Thank you so much for sharing your experience and strategies. I really appreciate it!

tainan | @tainan | Dec 19, 2024

In reply to @roseyro "Thank you so much for sharing your experience and strategies. I really appreciate it!" + (show)

BA is like a balloon attached to the end of artery. When your BP high, heart pumps blood into your BA. When you change your position like getting up from bed the blood falls off from BA then you feel dizzy. The key is controlled your BP.

mkoch | @mkoch | Dec 20, 2024

In reply to @tainan "BA is like a balloon attached to the end of artery. When your BP high, heart..." + (show)

Just curious, Tainan, were you ever offered the possibility of coiling the aneurysm?
Also, why do you keep your pillow at a 45 degree angle? I was watching a 6 mm. aneurysm for six months and the neuro doc never suggested that I do that. (Just wondering if he missed giving me an important instruction.)

tainan | @tainan | Dec 20, 2024

In reply to @roseyro "Hi friends. I have been experiencing extreme lightheadedness, Dizziness headaches and nausea since October following a..." + (show)

No, I saw two neurosurgeon in 2022 and was told that BA size under 10mm is very dangerous for surgery.
Elevate your bed at 45 degree to prevent blood upflow to BA.
If you lay flat in bed, blood easier flow into BA.