Anyone with PMR have experience with 4th COVID vax jab?

Posted by klpintx @klpintx, Jan 28, 2022

I just got notification from UTSW that I was eligible to receive my 4th Pfizer vaccine. I was wondering if anyone has does that yet? I have an appointment with my rheumatoligist next week, so I will ask her. But I was just wondering about anyone's experience with this.

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@vandyms1974

I am on 2.5mgs and it does not totally control the pain. 5mgs will, but I fear some of the side effects as well. At 5mgs, I will gain weight and the bruising is worse. The 2.5 mgs worked fairly well for me until I took a long car ride. Haven't been able to get control back yet. I am afraid to get off prednisone because of the risk of GCA. It that a wrong assumption?

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Hi @vandyms1974, I read that about 30% of those with PMR develop GCA. I also read somewhere that diagnosis and treatment of PMR with prednisone has no bearing on the development of GCA. I have been able to taper down from 40 mg Prednisone for GCA down to .5 mg every other day in the last 15 months. I hope you get your pain under control.

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@loyal

Have any of you that think your PMR was caused by a covid vaccination gone ahead and had another covid shot?
What were your results?

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Shortly after my first Covid vaccination in January of 2021, I experienced a severe flare of PMR which left me incapacitated. Not realizing that my symptoms were related to the vaccine, I went ahead with the second shot. When the symptoms persisted and became even worse, I saw my primary doctor, then a rheumatologist. Both doctors opined that the vaccine had triggered the PMR. With prednisone treatment, the PMR went into remission and I successfully tapered until I was able to discontinue the drug. When the third shot became available, I was in a quandary, not knowing whether to take it or not. I spoke to my rheumatologist who advised that people with PMR are at greater risk of Covid complications. He encouraged me to proceed with the booster and go back on prednisone if needed, since the effects of Covid can be dire. I recently received my fifth dose of the Covid vaccine and the PMR has remained in remission. After I had the third booster, I did contract Covid, but the symptoms were extremely mild, except for an autoimmune reaction of severe hives and facial swelling. Everyone is different and we are all just feeling our way through this PMR journey. Covid and the vaccines for it have added a new complication. Best wishes to all for remission and freedom from PMR!

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