MGUS: Please, let me know I not alone

Hi T, I’ve seen 2 Endocrinologist nothing new except how it’s playing on my mind. My therapist has twisted the narrative all things together have caused me to spin out of control.
The support I need has abandoned me... too many problems I think which interestingly cause more trouble.
After vegetating inside for a few days I’m telling myself to get out for a walk when it warms up. I need to push through the chest pains and throat closing and 2 hours of sleep and imagine another time and hope it’s not a walk and cry session.
Thanks for asking

Thanks C, my brain is overwhelmed with negativity so I can’t think straight although I’ve written some amazing poetry but reading it only reminds me of someone who is fading away

@stuckonu Yes! go for a walk when it warms up. Focus on the colors around you, the air, and I hope the chest pains and throat closing will subside. It's not easy to step up and say "I need help" but that is what your words seem to say to me. Is there anyone else besides your therapist that you can turn to for face-to-face talking, and sorting out your concerns?
I hope you will let us know how your day goes.
Ginger

Hello @stuckonu,

I am sorry to read that you are going through a difficult time right now. I am glad that you posted an update. As I looked at your posts I see there was a time when you posted a lot in the Gratitude discussion group. Maybe you could look back over those posts and see if they could encourage you right now.

Here is the link to that discussion, https://connect.mayoclinic.org/discussion/gratitude-discussion-group/.

Will you consider posting one thing you are grateful for today?

Hello @stuckonu. I see Teresa is there for you and I really can’t improve on what she says. The only thing that I feel doctors sometimes miss is when the stress of all this navigation tends to cause a chemical imbalance that can lead to a very treatable depression. Have you ever had experience with this or have any of your professionals talked with you about an evaluation? Nancy

So Teresa, I hired a health care profession who is very positive and send morning greetings everyday. How can one not be grateful for her presence? I even tell her often, maybe everyday! On the same theme, she had a near fatal event so I do things with and for her. I’m very grateful that I put my complaint bag aside and it makes me feel good to do it. I never forget that bag that I leave behind and I’ve already heard from many to “ fa’getta bout it “ maybe if I believed in wishes or hope I might get dementia so I can just put it away.
I’ve become very negative about the whole medical field in general and as much as people like “ sharing “ their concerns and maladies they don’t like hearing a trashing of the system that they surrender to.
So, for instance I carried the 7 page report about the biopsies done in 2017 where “ MGUS “ was mentioned on half of the pages. My VA doctor ordered follow up testing and everything came back “ negative “ Good right? But as I saw it I wanted to know why the hospital that did the biopsies never discussed, showed concern, ordered more definitive testing as: the nodules were discovered in a cervical MRI the lead to the biopsies with no mention of Hyperparathyroidism and their GOOD NEWS was NO CANCER! Also no plans going forward. I have no voice and when I told the same doctor the no one seems interested or concerned about my voice he replied: “ I resent that! “ 1 hour with him. He listen to my heart from my back. No blood work or urine test when the last test had: blood and calcium in urine, extremely low vitamin D and two other chemical in my blood suggesting Hyperparathyroidism. I’ve been taking 50,000 units of D2, every 4 days 2000 Units of D3 liquid several times a day in coffee and juice fortified with D and Calcium, but perhaps his “ RESENTMENT “ effected his behavior.
One week later my concierge doctor did the D test and reported that it’s on the low side of normal.
I wonder what DXs come and go?
One last curiosity: I did a search for most missed diagnosed illness are since two best friends suddenly passed away from misdiagnosed ALS. Pretty scary to me

Sounds like me! No pain...kind of forgot I was diagnosed with mgus!! Have other health issues but compared to all my friends who do not have mgus, I am doing the best of all of us!! I just attribute some issues to older age!!! Go in Every six months. for blood work. No tests on bone marrow etc. Mainly I get tired day after I have done anything g extra! Used to have numbness in legs but that disappeared .

With covid19 now so rampant, I stay away from Drs.! That is big worry now for us!!!

I have thyroid nodules..more every year...was told Hashimotos disease..no treatment...also take d2...no idea why! Wonder now if any of this relates to mgus. D2 for osteoporosis I guess but no falls, fractures or pain!! Thank God!!

@cctoo, it would be interesting to ask your doctor about the possible relationship between Monoclonal gammopathy of undetermined significance (MGUS) and thyroid issues. People with MGUS are known to be at an increased risk of bone fractures. You'll want to careful to lower your risk for falls. I'm glad to hear you don't have any bone pain. Have you had a bone density test?