Living with diverticulitis

Posted by marshelly1 @marshelly1, Dec 17, 2020

How do I keep this from coming back? My Dr. Has no solutions, and I wish I could be more aware when it will flare up.

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@mcmaya

Can u tell me how many days u had to be on the meds?

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Mcmaya
I think it was 7 days of hell each time. Once might have been 10 days. And I think the dosage was 500 mg?

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@bbarbiee

Mcmaya
I think it was 7 days of hell each time. Once might have been 10 days. And I think the dosage was 500 mg?

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I have fought diverticulitis for many years now. My Dr. sometimes puts me in hospital for about 3 days, where I am on nearly liquid diet and taking very strong antibiotics by IV (reason for hospital). Usually snaps me out of it for awhile. I've taken Cipro too many times in the past, so doesn't work anymore.

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Between 2017 and 2018 my diverticulitis flare ever two months or so. Flagyl and cipro were my constant companions. Finally the gastroenterologist recommended surgery. I went for the consultation but was not convinced. I suffer from numerous autoimmune diseases and was afraid that removing 1/3 of my large intestines may not help.
I asked for alternative treatment. A dietitian was recommended. She suggested a change in diet and recommended FODMAP. This helped but I started having heartburn and other issues. Doctor recommended the elimination of all raw vegetables. I remained on FODMAP but eliminated raw veggies. The ones I was permitted under FODMAP had to be cooked.
I received a second opinion from the Mayo Clinic. In addition to having slow moving intestines the signal for the need to defecate was weak. This led to constipation which led to the diverticulitis flare. Doctors recommended Miralax and a return to eating raw vegetables. Surgery was not necessary. Currently with the use of omeprazole, miralax, lubiprostone and diet I have avoided surgery,

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How do you love a normal life. When diverticulitis keeps attacking me. I’ve lost over 20 pounds. Sacred to leave the house and the medications are just as worst as the disease. I’m so miserable and tired of crying being up all Times of night alone. How are you all functioning with this condition

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@ciebrown

How do you love a normal life. When diverticulitis keeps attacking me. I’ve lost over 20 pounds. Sacred to leave the house and the medications are just as worst as the disease. I’m so miserable and tired of crying being up all Times of night alone. How are you all functioning with this condition

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Maybe time to see a new Gastro Dr? Make sure to read reviews online at like Health grades or other sites before making appt .
I’ve gone to 6 Gastro Dr’s in 10 years, and waiting in 7 th in Oct . I’ve even been to Mayo Clinic Jacksonville Dr’s and testing there . I have 6 diff diagnosis and tried everything. Yet still each day is a nightmare for me . I understand so completely what you are going through . It makes one want to give up . Keep searching , get a 2 nd , 3 rd opinion. Praying 🙏 you get healed . Me too …

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@ciebrown

How do you love a normal life. When diverticulitis keeps attacking me. I’ve lost over 20 pounds. Sacred to leave the house and the medications are just as worst as the disease. I’m so miserable and tired of crying being up all Times of night alone. How are you all functioning with this condition

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Yep. I seen a new one yesterday. Not sure how my old one kept putting me on meds and never thought about telling me to take a probiotic knowing that would mess me up. This is crazy. It’s okay. I will feel bette r soon I pray

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@ciebrown

How do you love a normal life. When diverticulitis keeps attacking me. I’ve lost over 20 pounds. Sacred to leave the house and the medications are just as worst as the disease. I’m so miserable and tired of crying being up all Times of night alone. How are you all functioning with this condition

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Try stop eating lettuce and stay away from milk. Sure help my stomach issues. And no small seeded foods also.

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@niganatubbs

Try stop eating lettuce and stay away from milk. Sure help my stomach issues. And no small seeded foods also.

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So what are u eating to push your fiber. U said no small seeds. So what do u have

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@ciebrown

How do you love a normal life. When diverticulitis keeps attacking me. I’ve lost over 20 pounds. Sacred to leave the house and the medications are just as worst as the disease. I’m so miserable and tired of crying being up all Times of night alone. How are you all functioning with this condition

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I have the same diverticulitis along with Ehlors Danlos syndrome and Fibromyalga and mass cell activation syndrome. Fiber replacement comes from Juice+ I take. It's a whole food nutrition addition to my diet.

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@ciebrown

How do you love a normal life. When diverticulitis keeps attacking me. I’ve lost over 20 pounds. Sacred to leave the house and the medications are just as worst as the disease. I’m so miserable and tired of crying being up all Times of night alone. How are you all functioning with this condition

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Juice + what is that.

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