Living with diverticulitis: How do I keep it from coming back?

Posted by marshelly1 @marshelly1, Dec 17, 2020

How do I keep this from coming back? My Dr. Has no solutions, and I wish I could be more aware when it will flare up.

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@susanf22 7 in 5 years seems pretty aggressive. Of course details matter and we don't have any details on your flare-ups, tests/scans, treatment and their effectiveness, etc. But if I had it to do over again, knowing then what I know now, I'd have had my Sigmoidectomy after my 5th or 6th, or maybe even 3rd or 4th episodes. I just had it after 11-12 in as many years and I feel a bit lucky to have been able to do a planned surgery vs emergent, using laparoscopic vs open surgery technique, with a surgeon I was able to consult and collaborate with for months vs whatever surgeon is on ER duty if I needed an emergent surgery, and to do so without a colostomy bag. Surgery avoidance is a very natural and powerful reaction. But it concerns me when I see people say things like "I am not ready for that". It is a concern because it usually means they are letting it be a mental decision when it needs to be a physiological decision. Consider, research, and talk to your Doc's about questions like these:

- What are the chances you will stop having diverticulitis episodes (either flare-ups or smoldering)?
- What impact have your previous flare ups already had on your body?
- If you don't stop having episodes, what are the chances of further diverticulitis complications occurring and what risks do those have?
- What is the increased frequency indicating about the progression of your disease?
- What is the antibiotic resistance you're experiencing indicating about the progression of your disease?
- If they don't stop, will the likelihood of the need for planned surgery increase?
If they don't stop, what is the likelihood of the need for a more complicated surgery, recovery, and need for a colostomy bag versus doing it at this point in time?
- If they don't stop, what is the likelihood of the need for an Emergency Surgery?
- If I need and have surgery later, how does my age impact the surgery, its success, and the recovery from it?

Surgery isn't risk free or a promise that you'll never have a gut issue in your life again, so certainly ask about those as well. But the main point I am recommending is - make your decision based on the answers to those types of questions versus "am I mentally ready to make the decision to have surgery?".

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@bc321 once I made my decision, I had all my information I needed. My primary Dr., GI Dr and colon surgeon were all involved. It was Thanksgiving and my last visit to ER. I decided I would have "elected surgery" after the winter cold and flu season because I did not want to be in the hospital at the time!
I had my round the clock anti-inflammatory meds and my antibiotics. I stayed on a low fiber diet and stayed on my exercise program. I wanted to be in the best shape possible.
I also had my blood work to make sure all was "under control"
The closer I was to my surgery the less I was "scared" I was actually relived and calm.

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After all these 25 years I still cannot figure out why I get these painful flar ups. No change in diet or activity and sudden sigmoid pain. I get very anxious which I know makes it all worse..
I had the sugery 25 years ago so as not to be a prisoner to this disease. But after 3-4 years I was gettin attacks again. The antibiotics make me sicker and cause lots of other problems. One time I landed up with C-Diff!
I try not to run to the meds, but get fearful about perforation.
I use heat and Levsin and tylenol, but takes many many days to resolve( if it does).Makes me miserable
Any other self treatments suggestions??.

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