1. < Neuropathy

Stimwave user here: What's been your experience?

Posted by donw @donw200, Aug 20, 2019

Like most of us, I did not want a battery implant so I went with Stimwave scs. Its been permanently placed on my spine about 10 days ago. I do feel a little less pain, but my right foot nerve pain still prevents me from sleeping normal hours, preparing home meals and doing normal tasks. I am disappointed. I was hoping for more relief. My worst pain bursts went from 10 to 9. Plus, I still need pain pills.

Interested in more discussions like this? Go to the Neuropathy Support Group.

pusher | @pusher | Jun 5, 2022

That was me who said my Nevro is now working good (maybe more than one of us with Nevro). And, of course, my Nevro SCS is NOT doing the job by it's self, I'm also taking 600mg of Pregabalin/day. Lawrence.

REPLY
martyk | @martyk | Aug 30, 2022

When you say you have nerve pain in your toes, is it from a stump neuroma?

REPLY
1 reply
martyk | @martyk | Aug 30, 2022
In reply to @depueman "I have excruciating right calf neuropathic pain associated with the Peroneal Nerve. I am getting the..." + (show)
@depueman

I have excruciating right calf neuropathic pain associated with the Peroneal Nerve. I am getting the 7 day trial of the Stim Wave at the Pain Clinic at Northwestern Univ in Chicago. The doctor there has done literally hundreds if not thousands of them.

He initially tried three injections, two right into the peroneal nerve, and one in the base of the spine, to try and reduce the pain if only for an hour. This would help him determine if the Stim Wave would be efficacious. Since I did get short pain relief, this is an indicator. So I do the trial starting May 19.

I have tried everything else, gaba, tegretol, CBD oils and creams, chiropractic, acupuncturist, let's see, how many other disciplines have I left out. Right now I am getting about 25% relief from gaba and teg with the addition of 75 mg Amitriptyline. This combo is helping a bit but the Amitrip makes you so dopey it really is not a best way to live a life.

I shall check in after the implant if anyone is interested. Let me know. ken

Jump to this post

Hi,depueman, did you try the stimwave? If so, did you get 50% relief from the trial?

REPLY
martyk | @martyk | Aug 30, 2022
In reply to @sprinrosa64 "I did the trial , had numerous adjustments had got no relief at all. Stemwave rep..." + (show)
@sprinrosa64

I did the trial , had numerous adjustments had got no relief at all. Stemwave rep great, whenever I called he was there but it did nothing for me. BEST OF LUCK

Jump to this post

Hi sprinrosa, can you share with us where your pain is located?

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1 reply
sprinrosa64 | @sprinrosa64 | Aug 30, 2022
In reply to @martyk "Hi sprinrosa, can you share with us where your pain is located?" + (show)
@martyk

Hi sprinrosa, can you share with us where your pain is located?

Jump to this post

my pain is just below my knee on left leg. I would honestly say the TKR , joint of knee is fine . The main pain is at the very top of tibia , and runs down about 6-8 inches. For my if I am seated I am fine, stand and try to walk is terrible, even the movement of riding a big is terrible but I push through, otherwise I wouldn;t be moving

REPLY
mecha | @mecha | Aug 30, 2022

Tengo neuropatia desde hace más o menos 10 años. Nunca experimente El más mínimo dolor. Comenzó en la planta y empeine de los pies y ya tengo una insensibilidad casi total hasta la altura de la rodilla. No manejo bien los movimientos de los pies.

REPLY
1 reply
pusher | @pusher | Aug 30, 2022
In reply to @martyk "When you say you have nerve pain in your toes, is it from a stump neuroma?" + (show)
@martyk

When you say you have nerve pain in your toes, is it from a stump neuroma?

Jump to this post

If you are asking me, Lawrence, the answer is no. That's where my neuropathic pain shows up.

REPLY
medman18 | @medman18 | Aug 31, 2022

Has anyone tried a " Tens unit" for pain management? It stops the pain message from going to your brain. It costs under $100 on Amazon. It has been used for years in Physical Therapy and pain management.
Jack

REPLY
1 reply
martyk | @martyk | Aug 31, 2022
In reply to @depueman "I have excruciating right calf neuropathic pain associated with the Peroneal Nerve. I am getting the..." + (show)
@depueman

I have excruciating right calf neuropathic pain associated with the Peroneal Nerve. I am getting the 7 day trial of the Stim Wave at the Pain Clinic at Northwestern Univ in Chicago. The doctor there has done literally hundreds if not thousands of them.

He initially tried three injections, two right into the peroneal nerve, and one in the base of the spine, to try and reduce the pain if only for an hour. This would help him determine if the Stim Wave would be efficacious. Since I did get short pain relief, this is an indicator. So I do the trial starting May 19.

I have tried everything else, gaba, tegretol, CBD oils and creams, chiropractic, acupuncturist, let's see, how many other disciplines have I left out. Right now I am getting about 25% relief from gaba and teg with the addition of 75 mg Amitriptyline. This combo is helping a bit but the Amitrip makes you so dopey it really is not a best way to live a life.

I shall check in after the implant if anyone is interested. Let me know. ken

Jump to this post

Please let us know if you recommend the Stim Wave to reduce pain. Thanks

REPLY
Mentor
John, Volunteer Mentor | @johnbishop | Sep 1, 2022
In reply to @mecha "Tengo neuropatia desde hace más o menos 10 años. Nunca experimente El más mínimo dolor. Comenzó..." + (show)
@mecha

Tengo neuropatia desde hace más o menos 10 años. Nunca experimente El más mínimo dolor. Comenzó en la planta y empeine de los pies y ya tengo una insensibilidad casi total hasta la altura de la rodilla. No manejo bien los movimientos de los pies.

Jump to this post

Hello @mecha, Welcome to Connect, Your symptoms sound very similar to mine. I don't have total insensitivity but I do have numbness that started in the toes more than 20 years ago. I shared my story and what helps me in another discussion here - Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/.

Here is another discussion you might find helpful where others with similar symptoms have shared what helps them:
-- Neuropathy: Numbness only, no pain: https://connect.mayoclinic.org/discussion/neuropathy-numbness-only-no-pain/

@mecha, have you found anything that makes your feet and legs feel better?

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