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Where to start with multiple conditions? Symptoms don't add up

Posted by Valerie @lacy2, Jan 21, 2021

Honestly I am at a loss how to proceed.
History of depression anxiety; cancer of cervix and pelvic radiation damage; tinnitus and other ear issues; ibs-d or ?; glaucoma and probably a few other issues mabt of which shared on this site am happy to say I founhd a few week ago, and so helpful.
On and off for half a year on top of almost daily diarrhea (take Imodium and have poor diet)... and on top of occasional tinnitus and ear pain - for which I was given antibiotics a few times for pain, when it was NOT infetction in ears (internet docor as have no family doctor he left town). Thing is I am getting suddenly during day any time what I can only describe as a very woozy, but not dizzy, feeling in my head - like pressure...mostly ear area.
Half an hour ago, sitting at computer desk which I rarely do now, to sort out some photos.. after about half hour, both at same time I had another quick visit to the bathroom for another pasty b.m. and my ears and the area around them gets so painful, have the pressure in same area, yet also have soreness and pressure inside rectal area. Its like sides of head in a vice... 2 problems at the same time?
The last time I checked the end of the bowel and ears/head are not connected!
Years ago I read that vagus nerve can cause problems like tingling in head (which I also get, but when mentioned to my doctor in passing at that time he almost laughed at me so I never brought it up again.
i am fighting my way out of depression but it seems almost every day "something" hurts or scares or happens to me physically and it seems to bring me right back down. I have waiting over 6 months to again see one of our only two ENT's where I live; I turned down a colonoscopy 2 years ago as honestly at that time felt too ill to have it done. Last one was 2008...he said all ok. Is there another site on here that might have some suggestions for me? I had C.Diff (after 6 antibiotics in 6 months) 2018 and never been the same... but what about the ear/area pain and pressure - just a horrible .co-incience? The pains last for hours now.... and every day I get up trying my best, then this happens often... I keep checking but cant seem to find a cause or solution.
Sorry to be so vague and trying to keep short but like many have quite a history of illnesses (am now 77) Any help would be sincerely appreciated. J.s

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jlharsh | @jlharsh | Aug 27, 2022
In reply to @adr "I did go pick it up this morning. That's a start. I am going to try..." + (show)
@adr

I did go pick it up this morning. That's a start. I am going to try and make it my friend and not my enemy. My plan is to start on Monday. For someone who has never taken prescription meds, except for short term. It's a challenge. I may ease my way in and start with 2xs a week instead of 3. So I am processing right now.

Jump to this post

I was on statins from mid-twenties until early 40’s when they quit working. Mine, too is genetic. I tried since 2005 to try again and quit. I just started again in November taking 5mg two times per week per my doctors recommendation. I’m in this with you! 🙂

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1 reply
adr | @adr | Aug 27, 2022
In reply to @jlharsh "I was on statins from mid-twenties until early 40’s when they quit working. Mine, too is..." + (show)
@jlharsh

I was on statins from mid-twenties until early 40’s when they quit working. Mine, too is genetic. I tried since 2005 to try again and quit. I just started again in November taking 5mg two times per week per my doctors recommendation. I’m in this with you! 🙂

Jump to this post

Thank you so much for your support. It really means so much to read your story. I am so grateful.

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2 replies
Merry, Alumni Mentor | @merpreb | Aug 27, 2022
In reply to @adr "I did go pick it up this morning. That's a start. I am going to try..." + (show)
@adr

I did go pick it up this morning. That's a start. I am going to try and make it my friend and not my enemy. My plan is to start on Monday. For someone who has never taken prescription meds, except for short term. It's a challenge. I may ease my way in and start with 2xs a week instead of 3. So I am processing right now.

Jump to this post

It is a great start. The doctor wrote the prescription for a certain amount of medication to enter your body so that it will work well for you. I can understand why you would want to do this but be careful!

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jlharsh | @jlharsh | Aug 27, 2022
In reply to @adr "Thank you so much for your support. It really means so much to read your story...." + (show)
@adr

Thank you so much for your support. It really means so much to read your story. I am so grateful.

Jump to this post

On my previous try I never did better than this dosage at this frequency. More didn’t mean better. I have been told treatment can seem counter intuitive. Your doctor may even want to add a different drug instead of ever increasing this one. Some drugs actually help more when they are combined at lower levels than if they are taken separately, so this way you take less medication and get better results. I say this just to mean, in my opinion the best thing you may want to consider and focus on is developing a good relationship with your doctor. Understanding they are trying to help you and will want to know if it is not working. My doctor tells me statins do more than reduce cholesterol. They help the lining of our vascular system. Crestor stays in our bodies 3-4 days (I believe he said) so taking it at this type of schedule means there is always some vascular protection going on. Please, please double check me by talking to your doctor.

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1 reply
adr | @adr | Aug 27, 2022
In reply to @jlharsh "On my previous try I never did better than this dosage at this frequency. More didn’t..." + (show)
@jlharsh

On my previous try I never did better than this dosage at this frequency. More didn’t mean better. I have been told treatment can seem counter intuitive. Your doctor may even want to add a different drug instead of ever increasing this one. Some drugs actually help more when they are combined at lower levels than if they are taken separately, so this way you take less medication and get better results. I say this just to mean, in my opinion the best thing you may want to consider and focus on is developing a good relationship with your doctor. Understanding they are trying to help you and will want to know if it is not working. My doctor tells me statins do more than reduce cholesterol. They help the lining of our vascular system. Crestor stays in our bodies 3-4 days (I believe he said) so taking it at this type of schedule means there is always some vascular protection going on. Please, please double check me by talking to your doctor.

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Seems like there is so much to consider. This is my first experience with meds and I feel I have a lot to learn. I will definitely have a conversation with my doctor and explore all the different options. All good advice here.

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jlharsh | @jlharsh | Sep 3, 2022
In reply to @adr "Thank you so much for your support. It really means so much to read your story...." + (show)
@adr

Thank you so much for your support. It really means so much to read your story. I am so grateful.

Jump to this post

You say, “The last time I checked the end of the bowel and ears/head are not connected!“

I absolutely have figured out mine are!!!

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