HCM-ers: Introduce yourself or just say hi

Posted by Colleen Young, Connect Director @colleenyoung, Oct 25, 2016

Welcome to the Hypertrophic Cardiomyopathy (HCM) group on Mayo Clinic Connect - a place where you can connect with others, learn about living HCM, share experiences and exchange useful information.

I invite you to follow the group. Simply click the follow icon on the group landing page.

I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. I look forwarding to welcoming you and introducing you to other members.

Why not start by introducing yourself here?

Interested in more discussions like this? Go to the Hypertrophic Cardiomyopathy (HCM) Support Group.

escogido | @escogido | Aug 23, 2022

In reply to @mistymopps3 "Good to meet someone else with apical cardiomyopathy as it's quite rare" + (show)

Hi, I have also HCM Apical, I would like to be in contact with you.

indigogirl | @indigogirl | Aug 27, 2022

Hi,
I have DCM. I know it isn't the same, but we don't have a forum. So is it safe for me to be in this one? I have so many questions

indigogirl | @indigogirl | Aug 27, 2022

In reply to @onewholovesrock "Hello. Joe from Wisconsin. HCM (apical) and poraximal afib. ICD. Seeing Dr. Tajik in Milwaukee. Never..." + (show)

I'm from Wisconsin as well

melindaruiz | @melindaruiz | Sep 4, 2022

Hello-I am looking for a HCM support group for my nephew in his early 20’s that has been struggling with depression more and more lately. He is not on hospice yet, but medications are the last and only thing for him to extend his life after his 5 open heart surgeries.
Is there an online group that can be recommended?
Thank you!

fitchizumi | @fitchizumi | Sep 5, 2022

In reply to @melindaruiz "Hello-I am looking for a HCM support group for my nephew in his early 20’s that..." + (show)

Hi, sorry to hear about your nephews health. Hypertrophic cardiomyopathy association. Lisa Salberg chief executive officer and founder.(973)983-7429 Denville New Jersey. 4HCM.org ; support@4hcm.org;
Facebook: @4HCM.org ; Instagram 4HCMwarriors
It’s a 501(c) (3) Organization
66 Ford Rd. Suite 216 B
Danville, New Jersey 07834
Objective. Provide information & support to patients ,families&medical community regarding HCM. Your nephew is in our prayers

joyce1109 | @joyce1109 | Nov 18, 2022

In reply to @colleenyoung "Hi Connect HCM-ers @cynaburst @lynnkay1956 @PatMattos @Sensation @ronaldpetrovich @rmcmillan @lepadelford @catiemorris @wandikarnadi @barbararickard @FrancineFafard @lisa7 @lucindag..." + (show)

Hi. I'm Joyce and was just diagnosed with HCM at 71. I have hypertension, high cholesterol, pre-diabetic. I am also overweight which I know for general health is necessary. I lost 60 and gained back 30. I need to lose 40 pounds. I have a diagnosis of binge eating which is actually a medical diagnosis.

I'm looking forward to discussions and information on HCM.

joyce1109 | @joyce1109 | Nov 18, 2022

Joyce, I forgot to mention I am in Wisconsin.

Colleen Young, Connect Director | @colleenyoung | Nov 19, 2022

In reply to @joyce1109 "Hi. I'm Joyce and was just diagnosed with HCM at 71. I have hypertension, high cholesterol,..." + (show)

Welcome @joyce1109. I'm tagging fellow HCM-ers to join me in welcoming you, like
@escogido @fitchizumi @janetcf @karukgirl @manning2000 @bxr227 @hazmat1 @jakegeorge823 @thomasandmichelle.

Congratulations on having the will to lose weight. It's not easy, especially if you have a medical diagnosis and history of binge eating. What healthy approaches have you learned to reframe your relationship with food? You were successful with the initial 60 pounds. I'm confident that despite the setback you can do it again for your heart. :-)❤

fitchizumi | @fitchizumi | Nov 19, 2022

In reply to @colleenyoung "Welcome @joyce1109. I'm tagging fellow HCM-ers to join me in welcoming you, like @escogido @fitchizumi @janetcf..." + (show)

Hi Joyce1109, welcome to the club. hang in there you will get the 40 pounds off. Think positive at all times our hearts are damaged but, we can learn and help each other get through this. I am in my 80s with many Health problems. water is our friend, I don’t think about eating if I have a glass of water. You can pretend it’s a milkshake anything to help. if you’re able to walk do so I know I should walk more. we will fall back with some thing so don’t be discouraged keep strong and do the best you can. PS have a full glass of water before you have your Thanksgiving dinner. It helps to fill you up and you eat less. fitchizumi

valeriecowart | @valeriecowart | Nov 20, 2022

Hello,
I am Valerie and have received a recent dx of OHCM. I am losing weight (started at 220), but am curious to know if dramatic weight loss might lower the necessity of open heart surgery.
I am 63 and live in New Hampshire, not far from Lahey. Thank you kindly.