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Anyone had a problem with neuropathy after receiving the vaccine?
I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?
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Sorry to find another sufferer from an adverse neurological reaction to the Covid vaccines! I recommend joining the Neuro V Long-Haulers Facebook group. There are many patients on that site who developed small-fiber neuropathy after the vaccines, which can be difficult to diagnose. I have sensory and motor nerve damage documented by EMG. On the Facebook site, there is a Danish physician with expertise in vaccine injuries who has been helping us.
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1 ReactionMy appointment is a video appointment in September . I will let you know how it goes. I tried to get an in person appointment with a neurologist at the university hospital there, but they are booked 6 months and further out with long waiting lists. Maybe if another doctor referred me, I could get in sooner. Medical system is so frustrating. And I am an RN.
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2 ReactionsI wonder if you would mind sharing some of the non prescription treatments that are helping your patients? In the small town I live in, there doesn't seem to be much available .
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2 ReactionsAre u getting another vaccine? Has Evusheld been recommended to you for COVID protection? I had the same reaction as you to vaccine.
Last week I read a research report on NMBI based on findings at VAERS about side effects of the mRNA vaccines (Pfizer and Moderna) and apparently there are many, including neuropathy and Bell's Palsy. I knew it but doctors didn't take my complaints seriously. And in september we are advised to take a second booster but I'm hesitating- I would probably take half a dose of Moderna, but not a full dose as after every shot my symptoms got worse and lasted longer: neuropathy in both legs, stiff legs, pain all over, woozy 'out of it' feeling...the last time it stayed for 2 months. Horrible. But obviously I don't want Covid again either -had it in March 2020 and got it from my physiotherapist (I hardly saw people during the lockdowns). Ugh. The vaccines obviously were not tested on people with nerve issues.
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1 ReactionAfter 16 months of disability due to sensory and motor peripheral neuropathy that began within 2 weeks of the first Pfizer vaccine, I would not even consider the current boosters. As stated in the following article, the antibodies induced by the boosters have minimal effectiveness against the current Omicron strains. The booster therefore is not worth the risk for someone who previously had an adverse reaction. Hopefully, as the article indicates, a vaccine will be developed that does not encode the toxic spike protein (and also aggravate autoimmune reactions induced by the vaccine). At that point, I might consider another Covid vaccine.
https://www.news-medical.net/news/20220805/Study-identifies-broad-spectrum-antibody-that-neutralizes-SARS-CoV-2-variants-of-concern.aspx
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2 ReactionsHi @lynndenver @selene53 @cbdh19,
I see we are all in the Denver/Colorado area and wanted to connect. I've been reading through this board absolutely horrified that there are so many of us suffering from neuropathy after the COVID vaccines and yet we are all still begging for help from the medical community. I will share that several of my doctors here have admitted to me that they have other patients like us with neuropathy injuries after the COVID vaccines. Perhaps we have seen some of the same providers, or more likely, there are many of us out there who have not yet found forums like this. Please know you are not alone.
I was very healthy, in my early 30s, when I got the first two COVID vaccines in 2021, so to develop this horrible neuropathy from it at my age was a complete shock. I am so sorry you are all suffering as well. I hope your appointments go well and we can all find healing.
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4 ReactionsHas your dr recommended evusheld injection of antibodies?
I totally agree. I had an adverse reaction to the first Pfizer vaccine within 15mins, with a cascade of symptoms to follow - brain-fog, tremors, heart/lung pain (lasted 4 days), paresthesia, neuropathy, tinnitus... The tremors and brain-fog got better after 2 months. The paresthesia and neuropathy in my legs/feet, and tinnitus have not gone away - 16months later. Concerned about catching Covid, I got the Novavax jab 5 months ago, which had fewer side-effects (fatigue and heart arrhythmia that lasted a week), but still got Covid 6 weeks ago, which exacerbated the paresthesia and brain-fog, and took 3 weeks for the brain-fog to lift. Even though the Covid was pretty bad, I’d rather have that again than do another vaccine. I think it is just too risky for someone like myself, with these vaccine-induced neurological issues. Until they develop a vaccine without the offending spike, I’ll take my chances…
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1 ReactionMy PN got considerably worse after second Pfizer. Didn’t have another one after that and frankly what I now know about the MRNA vaccine I won’t go near another one
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