Anyone had a problem with neuropathy after receiving the vaccine?
I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?
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I’m in the same boat, except it’s been over a year. I’ve been to GP, podiatrist, neurologists and had the EMG and tests. All normal. They all tell me the same thing, “ it doesn’t matter what caused it, neuropathy is neuropathy and we treat the neuropathy and not the cause” . So I’ve accepted this answer. Each prescribed a different dose of Gabapentin. I don’t take it because it makes me feel impaired. I take my vitamin B12, alpha lipoic acid and turmeric. Use my CBD cream at night. I do believe I was getting somewhat better, and then caught the Covid for a second time over July 4 weekend. Now the neuropathy is worse than ever, back with a vengeance. Yesterday I had a consultation with a chiropractor who does treatment for neuropathy with an “extra corporal shock wave therapy” machine. He did a better job of testing the different sensation levels of my feet and legs than any of the MDs I have seen. I tried the therapy for a quick bit to see if I could tolerate it, which I did fine. But then….the treatment plan and cost. Oh my!! Twice a week for 10 weeks, which I can do, but almost $4000, which I cannot. No insurance pays for this and no guarantee it will regenerate nerves. I just can’t . I guess I will keep on with what I’m doing and hope for the best.
I’d love to know if anyone has tried the shockwave therapy with any good results.
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2 ReactionsIt sounds like we have travelled the same path. I am on those supplements too. Also, cannot take Gabapentin. I also saw an acupuncturist who was a "neuropathy specialist" and wanted to do the shock wave treatment too, sounds like the same thing. But after the first sample treatment, I would have had to buy the package which was 10 to 20 treatments at a cost of thousands of dollars and no guarantees, so that was a no go for me. I guess it is something to have all the "bad stuff" ruled out. I do have a video appointment with a university hospital neurologist in a few months, but honestly all I can see are more tests and any specialized tests would be a long overnight trip to the university hospital. As my favorite (and smartest) doctor says, "New virus, new vaccines. We just don't know". My conundrum now is whether to take another vaccination when it comes out as I am older and had alot of chemotherapy in the past which didn't leave my immune system in good shape. Also my husband is very high risk. As an RN, I know that any vaccine (not just covid) can trigger some strange reactions, but this has never happened to me before and I have had just about every vaccine there is. I wish you the best and hope and pray that what we are experiencing will just go away!
Are u just wearing mask instead of another vaccine? That is what I have been doing? Have u been offered the avusheld antibodie injections?
I have had chemotherapy also. My body did not have the best reaction to the therapy. My immune system was destroyed to the point I am on Ivig. Before the Ivig I did cold laser therapy, I thought it improved my neuropathy. It did not go away but it is more tolerable. I also was prescribed Metanx. I thought it also contributed to my neuropathy improving. Now my Bs are very high.
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1 ReactionI never had neuropathy or paresthesia until I took the Pfizer vaccine 16 months ago. The paresthesia started immediately but it took a month or two until the burning (feet) and numbness started. The symptoms are still with me (including tinnitus) and it flares up every week or so (I can’t seem to pinpoint a trigger). And a Covid infection 4 weeks ago exacerbated the paresthesia, though the intensity is starting to reduce.
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1 ReactionWelcome @seachel, Sorry to hear you got a double whammy from the Pfizer vaccine and then a COVID infection. I had the 2 Pfizer vaccines and the 1st booster with only normal side effects and then got COVID which turned out to be mild. I did get the 2nd booster with no effects. I also have idiopathic small fiber PN which didn't seem to get worse so am happy about that. There is another discussion you might find helpful to learn what others shared that helped them:
-- Paresthesia, abnormal sensations: https://connect.mayoclinic.org/discussion/paresthesiaabnormal-sensation/
Did you start on any treatments after you were diagnosed with paresthesia?
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1 ReactionThank you for your comment and recommendation. It has been a battle for those of us who’ve had a reaction to the jab to get any sort of diagnosis or treatment. After over a year, I have only 2 weeks ago found a Dr who is ‘investigating’ the paresthesia/neuropathy with tests. She is Dr no.8. I have just been prescribed gabapentin while she investigates (MRI, which was fairly normal, nerve conductivity to follow, biopsy- last resort, she says). However, I found the side effects more than I can handle, so I’ve back to trying to manage it with non-prescription supplements, etc... Drs have been reluctant to attribute any causality to the vaccine (other than myo/pericarditis) and ‘anxiety’ is usually the ‘diagnosis’, as blood tests tend not to show anything ‘abnormal’, despite other manifestations - such as mine -paresthesia, neuropathy, tinnitus…
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3 ReactionsHi Selene,
I'm in Denver also. Please let me know how your dr visit goes. This is happening to me also and I didn't realize it may be because of the Covid vacinnes! I am a full time caregiver for my elderly mother 24/7, so this has become beyond words for me, let alone hindered caring for someone else felling this way!
I pray you find encouraging answers!
Blessings,
Lynn
There can definitely be neuropathy from these shots. I use non prescription treatments for my patients.
I suggest you see an integrative physician with an open mind and lots of experience
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3 ReactionsI recently embraced Integrative Medicine - I must have been living in a cave. It was through great people in this forum mentioning it for me to ask my PCP to help me explore that direction. Like a lot of folks here, I had neuropathy before the pandemic, and have been trying to share and learn from others to live with this medical mystery.
I’ve read some folks with existing PN report no change with the vaccines, and some report temporary regression with it or with actual Covid (same with Shingles). Now there are new cases of PN attributed to vaccines or illness. PN is awful and I hope research for helping us all inflicted is elevated, so we can learn, if possible, how to avoid it and not manufacture it, and pray for a cure.
For now, I am so grateful for finding this group with great mentors, moderators, and researchers, and participants sharing their tried and true (or false) remedies. Extra kudos to you and some others (@artscaping and Rachel) for promoting Integrative Medicine and/or positive & mindful thinking therapies. This horse has started drinking some of the water and finding these an integral part of the mix for dealing with the journey we’re on.
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