Chronic pain - Let's talk

Posted by leh09 @leh09, Mar 23, 2016

Are there any discussions for chronic pain?

Interested in more discussions like this? Go to the Chronic Pain Support Group.

@calygirl84

I have severe chronic pain all the time from muscular skeletal problems, bone on bone, fibromyalgia, hypothyroidism, Hoshimotos, chronic fatigue, severe migraines. I have had surgery on almost every part of my body, recent back surgery, facining bilateral shoulder, surgeries 23 and me, told me I was 50 % askanazi Jewish, I know the Med issues are a mile long 56 markers came neg however please help Calygirl

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I am so sorry Calygirl. I wish someone would take your pain away. I hope you know that others care a lot for you, and I hope you can get some relief.

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@calygirl84

I have severe chronic pain all the time from muscular skeletal problems, bone on bone, fibromyalgia, hypothyroidism, Hoshimotos, chronic fatigue, severe migraines. I have had surgery on almost every part of my body, recent back surgery, facining bilateral shoulder, surgeries 23 and me, told me I was 50 % askanazi Jewish, I know the Med issues are a mile long 56 markers came neg however please help Calygirl

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Hello @calygirl84. I am so sorry to hear of your chronic pain from your varying diagnosis. You will notice that I have moved your post into an existing discussion with others who also have chronic pain so that you may find solace in not being alone. You can find it here: https://connect.mayoclinic.org/discussion/are-there-any-discussions-for-chronic-pain/

Members such as @lioness @queenmother56 and @kimmiesue55 have recently shared in this discussion and may be able to come back in to share with you.

Do you feel there is a correlation between your 23 and Me results and your health?

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@calygirl84

Wide spread deep burning pain, also musculoskeletal pain, multiple back surgeries, Massage and trigger point therapy and so many things help temporarily, but, my insurance doesn’t pay for so much of this. Please advice.
Calygirl.

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@calygirl84 I have moved this post into the Chronic Pain discussion here too: https://connect.mayoclinic.org/discussion/are-there-any-discussions-for-chronic-pain/

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Age 80, increasing severity of chronic pain from multiple spinal compression fractures from osteoporosis. I anticipate eventual paraplegia. My health plan counselor says I should not think negatively - only positively. I believe she is reading from a script.

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@notmoff I agree with your counselor Think Positive you,ll have a better quality of live this way I have osteoporosis,fracture L2@L4 Piriformis muscle damage nerve problems can't walk far Dr ordered a scooter for me I'm 80 in Oct still do what I can daily chair exercises if you don't move your muscles you,ll lose them .Be a fighter don't give up

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@notmoff

Age 80, increasing severity of chronic pain from multiple spinal compression fractures from osteoporosis. I anticipate eventual paraplegia. My health plan counselor says I should not think negatively - only positively. I believe she is reading from a script.

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I too have 4 compression fractures from Osteoporosis as well , 66 yrs old . Have you tried by chance a intercostal nerve block? I had one after a Kyphoplasty but did not have good luck… I hope to have radio frequency nerve ablations next month. I only had pain when I exercised until I sadly went to a Chiro that injured me. Hoping you find something to help you….

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@lioness

@notmoff I agree with your counselor Think Positive you,ll have a better quality of live this way I have osteoporosis,fracture L2@L4 Piriformis muscle damage nerve problems can't walk far Dr ordered a scooter for me I'm 80 in Oct still do what I can daily chair exercises if you don't move your muscles you,ll lose them .Be a fighter don't give up

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I appreciate your reading and responding to my post. We all need encouragement here. I realize the counselor was doing her best with a sleep-deprived, teary, frustrated, angry old lady, tired of pain and increasing limitations on mobility and independence.
Like you, I have nerve issues (poor balance due to peripheral neuropathy). I do try to keep moving.
The thought of an electric cart didn't occur to me - it would limit my pain and enable me to grocery shop for myself. Worth exploring.

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@leigh17

I too have 4 compression fractures from Osteoporosis as well , 66 yrs old . Have you tried by chance a intercostal nerve block? I had one after a Kyphoplasty but did not have good luck… I hope to have radio frequency nerve ablations next month. I only had pain when I exercised until I sadly went to a Chiro that injured me. Hoping you find something to help you….

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I'm sorry to hear that your pain increased when a Chiro injured you!
My medical provider only mentioned a kyphoplasty, but I declined based on his saying my unstable fractures were probably too severe to support one. I haven't heard of intercostal nerve blocks or radio frequency nerve ablations. From what I briefly read, a nerve block uses a steroid - might that worsen osteoporosis?

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Yes that’s a good point about the steroid with osteoporosis I had asked my provider and he said that the amount he was using was safe. My next step will be the radio frequency ablation I had one done in the past and my SI area and it was very effective. I have an integrative pain management doctor. Praying that this works because I like you have severe pain in that area. Good luck to you , I hope one of these options might work for you.

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Yep! However I always try to make each day a wonderful day and enjoy it the best as possible!

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