1. < Kidney & Bladder

Is there a link between bladder cancer and over-active bladder?

Posted by birdieman @birdieman, Jul 29, 2022

I had bladder cancer but was fortunate enough to have the malignant lesion cut out before I got in real trouble. Then was blessed with no recurrence, verified by 16 follow up cystoscopies over the years. But I was left with bad OAB. Does anyone know if there is a clinical link between BC&OAB? Or even OAB and a high quantity of cystoscopies?

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Moderator
Colleen Young, Connect Director | @colleenyoung | Jul 29, 2022

@birdieman, first off, congrats on being cancer-free for over 20 years. Fellow bladder cancer survivors @spooz2 @predictable @blades @sue225 @plugger may have some experience with over active bladder (OAB) to share.

Birdieman, is your over-active bladder a new symptom? Or have you had it for years?

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2 replies
Martin Jensen, Volunteer Mentor | @predictable | Jul 29, 2022

Hi @birdieman. Welcome to the fellowship of bladder cancer survivors. Mine -- a group of epithelial papillaries -- were surgically removed 13 years ago, and like you, I have had regular cystoscopies to watch for more tumors. None has turned up so far. I suspect your "overactive bladder" is similar to mine, although I don't regard mine as overactive. I think I have lost space in my bladder, forcing me to urinate more often -- especially overnight. I also suspect that my bladder lining is more sensitive on one side than the other, so I try to sleep with the sensitive side up and above accumulating urine. My guesses are based on the fact that most times my urine is not strong or high volume. In my case, the problem might be related to medications I take for hypertension or to a syndrome related to hypokalemia or to a "mass" on one of my adrenal glands (which could be pumping excess aldosterone into my blood). I'm working on these issues with a nephrologist and a urologist and an endocrinologist. Let's keep in touch so we can share information. Martin

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1 reply
birdieman | @birdieman | Jul 29, 2022
In reply to @colleenyoung "@birdieman, first off, congrats on being cancer-free for over 20 years. Fellow bladder cancer survivors @spooz2..." + (show)
@colleenyoung

@birdieman, first off, congrats on being cancer-free for over 20 years. Fellow bladder cancer survivors @spooz2 @predictable @blades @sue225 @plugger may have some experience with over active bladder (OAB) to share.

Birdieman, is your over-active bladder a new symptom? Or have you had it for years?

Jump to this post

I've had it for years. It began shortly after the TURPT.

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1 reply
birdieman | @birdieman | Jul 29, 2022
In reply to @predictable "Hi @birdieman. Welcome to the fellowship of bladder cancer survivors. Mine -- a group of epithelial..." + (show)
@predictable

Hi @birdieman. Welcome to the fellowship of bladder cancer survivors. Mine -- a group of epithelial papillaries -- were surgically removed 13 years ago, and like you, I have had regular cystoscopies to watch for more tumors. None has turned up so far. I suspect your "overactive bladder" is similar to mine, although I don't regard mine as overactive. I think I have lost space in my bladder, forcing me to urinate more often -- especially overnight. I also suspect that my bladder lining is more sensitive on one side than the other, so I try to sleep with the sensitive side up and above accumulating urine. My guesses are based on the fact that most times my urine is not strong or high volume. In my case, the problem might be related to medications I take for hypertension or to a syndrome related to hypokalemia or to a "mass" on one of my adrenal glands (which could be pumping excess aldosterone into my blood). I'm working on these issues with a nephrologist and a urologist and an endocrinologist. Let's keep in touch so we can share information. Martin

Jump to this post

Thanks! Will do.

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birdieman | @birdieman | Jul 30, 2022
In reply to @birdieman "I've had it for years. It began shortly after the TURPT." + (show)
@birdieman

I've had it for years. It began shortly after the TURPT.

Jump to this post

Correction. It wasn't TURPT procedure. Just cystectomy. Some may call it TURBT.

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1 reply
birdieman | @birdieman | Aug 4, 2022
In reply to @colleenyoung "@birdieman, first off, congrats on being cancer-free for over 20 years. Fellow bladder cancer survivors @spooz2..." + (show)
@colleenyoung

@birdieman, first off, congrats on being cancer-free for over 20 years. Fellow bladder cancer survivors @spooz2 @predictable @blades @sue225 @plugger may have some experience with over active bladder (OAB) to share.

Birdieman, is your over-active bladder a new symptom? Or have you had it for years?

Jump to this post

Fellow bladder cancer survivors @spooz2 @predictable @blades @sue225 @plugger. Any comment? Not sure I'm reaching you but thought I'd try again.

REPLY
1 reply
Martin Jensen, Volunteer Mentor | @predictable | Aug 4, 2022
In reply to @birdieman "Correction. It wasn't TURPT procedure. Just cystectomy. Some may call it TURBT." + (show)
@birdieman

Correction. It wasn't TURPT procedure. Just cystectomy. Some may call it TURBT.

Jump to this post

@birdieman, did your cystectomy remove part of your bladder? If so, that could reduce its volume and cause a urination signal to go to your brain earlier. My surgery started with a TURP followed by Cystectomy to remove papillary tumors on the lining of my bladder. Urge to urinate developed several years later, probably as new growth in my prostate. Have you seen this article? https://www.mayoclinic.org/symptoms/frequent-urination/basics/causes/sym-20050712

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1 reply
sue225 | @sue225 | Aug 4, 2022
In reply to @birdieman "Fellow bladder cancer survivors @spooz2 @predictable @blades @sue225 @plugger. Any comment? Not sure I'm reaching you..." + (show)
@birdieman

Fellow bladder cancer survivors @spooz2 @predictable @blades @sue225 @plugger. Any comment? Not sure I'm reaching you but thought I'd try again.

Jump to this post

Sorry cant help. Its my husband who had a total radical cystectomy and prostate removed as well. So no he doesnt have that issue.

REPLY
birdieman | @birdieman | Aug 4, 2022
In reply to @predictable "@birdieman, did your cystectomy remove part of your bladder? If so, that could reduce its volume..." + (show)
@predictable

@birdieman, did your cystectomy remove part of your bladder? If so, that could reduce its volume and cause a urination signal to go to your brain earlier. My surgery started with a TURP followed by Cystectomy to remove papillary tumors on the lining of my bladder. Urge to urinate developed several years later, probably as new growth in my prostate. Have you seen this article? https://www.mayoclinic.org/symptoms/frequent-urination/basics/causes/sym-20050712

Jump to this post

Thanks for the article!

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