Anyone had a problem with neuropathy after receiving the vaccine?
I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?
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Yes had neurological symptoms emerge after 2nd shot
I got neuropathy( numbness and burning sensation) on my feet , 3 weeks after getting 2nd Moderna vaccine since march 2021
What are you doing about the vaccine and protection. I can’t get anymore vaccines
Have u stopped vaccines?
Definitely . I found other ways of protection
Another update: Brain MRI totally normal. Have a video appointment with a University Hospital neurologist in 6 weeks. Tingling continues, sometimes easy to ignore, sometimes not. I think no one will ever figure this out . Many people who have either had covid, or the vaccine , have reported numbness, tingling and other neurological issues. Some have continuing brain fatigue or respiratory or cardiac issues. Viruses are NOT our friends . But having had friends and colleagues die horrible deaths due to covid before there was a vaccine, I will continue to keep my vaccinations up to date, and yes, I will get another one if it comes around. As I have mentioned before, I think my deceased friends would gladly put up with the numbness and tingling to be alive again. My 2 cents.
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3 ReactionsI am a 50 year old male who has been experiencing neuropathy in my feet ever since I received the third COVID (Pfizer) shot. I have never experienced neuropathy symptoms, prior. Within a day of receiving the booster shot I had a lymph node in my arm pit swell and then I lost feeling in my right foot, the shot was given on my right side. This happened in October of 2021 and It has not gone away. I am starting to loose feeling in my left foot now. None of the doctors I’ve seen have offered any explanation or treatment options. I’ve tested negative for diabetes recently and I’ve gone to an orthopedic doctor and had an mri on my back done with no connection to neuropathy found. I Do not know where to turn next. Is there anyone who can suggest another course of action? Where can I go to get a real diagnosis if this is related to the booster shot? Where can I go to get the proper treatment before it gets worse?
Hi @freemanstrees, this must be very concerning for you. You'll notice that I moved your message to this existing discussion about
- COVID vaccines and neuropathy: https://connect.mayoclinic.org/discussion/covid-vaccines-and-neuropathy/
I did this so you can see previous posts and more easily connect with others who have experienced neuropathy either as a possible side effect of the vaccine or of an infection from Covid.
For some people, neuropathy from the vaccine has receded with time. I hope this proves to be true for you too. Do you have neuropathic pain or numbness or both?
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1 ReactionHas anyone ever had a neurologist or other doctor that was actually able to diagnosis what this post covid vaccination neuropathy actually is? I've seen my GP, a neurologist, a physiatrist and an orthopedic doctor who all ordered multiple tests, MRIs, xrays. Everything has come back normal so far ,so they just shrug their shoulders, say "who knows" and "It'll go away" and that's the end of it. Meanwhile it's been 6 months and today my skin feels like it is crawling from my toes to calves to thighs with very heavy legs walking. Would love just an actual diagnosis, let alone a treatment plan.
If you are able I would suggest a visit with a neurologist and have them order an EMG. This might pinpoint or rule out something. The doctors I have seen so far have been less than helpful. One suggested that it might be a small fiber neuropathy. That would be diagnosed by a skin biopsy, but you would have to be at a place where they knew what they were doing, like a university hospital or Mayo if you are in the US. And even if it were to be diagnosed, there is very little it seems that they could do for it besides prescribe Gabapentin. Also, from what I have read small fiber neuropathy is idiopathic more than 40% of the time, meaning they don't know what has caused it. But I think a good neurologist could be your next step.
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