COVID vaccines and neuropathy

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

Interested in more discussions like this? Go to the Neuropathy Support Group.

Lanni Solochek | @lannisolochek | Jul 14, 2022

In reply to @beegie "My neuropathy gets worse when I have COVID vaccine. I also get muscle weakness. Has anyone..." + (show)

Hi @beegie - thanks for your question. I've merged your discussion here as I think you'll be able to find some answers and some good comments in this thread. Please let me know if you have any additional questions!

ron55 | @ron55 | Jul 15, 2022

In reply to @beegie "My neuropathy gets worse when I have COVID vaccine. I also get muscle weakness. Has anyone..." + (show)

Yes several people myself included

ron55 | @ron55 | Jul 15, 2022

In reply to @mike26 "After second shot. Of maderna, my neuropathy started." + (show)

After my second Pfizer my involuntary movements started !!

ron55 | @ron55 | Jul 15, 2022

Yes had neurological symptoms emerge after 2nd shot

mike26 | @mike26 | Jul 16, 2022

I got neuropathy( numbness and burning sensation) on my feet , 3 weeks after getting 2nd Moderna vaccine since march 2021

beegie | @beegie | Jul 17, 2022

In reply to @ron55 "Yes several people myself included" + (show)

What are you doing about the vaccine and protection. I can’t get anymore vaccines

beegie | @beegie | Jul 17, 2022

In reply to @ron55 "Yes several people myself included" + (show)

Have u stopped vaccines?

ron55 | @ron55 | Jul 17, 2022

In reply to @beegie "Have u stopped vaccines?" + (show)

Definitely . I found other ways of protection

selene53 | @selene53 | Jul 18, 2022

Another update: Brain MRI totally normal. Have a video appointment with a University Hospital neurologist in 6 weeks. Tingling continues, sometimes easy to ignore, sometimes not. I think no one will ever figure this out . Many people who have either had covid, or the vaccine , have reported numbness, tingling and other neurological issues. Some have continuing brain fatigue or respiratory or cardiac issues. Viruses are NOT our friends . But having had friends and colleagues die horrible deaths due to covid before there was a vaccine, I will continue to keep my vaccinations up to date, and yes, I will get another one if it comes around. As I have mentioned before, I think my deceased friends would gladly put up with the numbness and tingling to be alive again. My 2 cents.

freemanstrees | @freemanstrees | Jul 25, 2022

I am a 50 year old male who has been experiencing neuropathy in my feet ever since I received the third COVID (Pfizer) shot. I have never experienced neuropathy symptoms, prior. Within a day of receiving the booster shot I had a lymph node in my arm pit swell and then I lost feeling in my right foot, the shot was given on my right side. This happened in October of 2021 and It has not gone away. I am starting to loose feeling in my left foot now. None of the doctors I’ve seen have offered any explanation or treatment options. I’ve tested negative for diabetes recently and I’ve gone to an orthopedic doctor and had an mri on my back done with no connection to neuropathy found. I Do not know where to turn next. Is there anyone who can suggest another course of action? Where can I go to get a real diagnosis if this is related to the booster shot? Where can I go to get the proper treatment before it gets worse?