Anyone had a problem with neuropathy after receiving the vaccine?
I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?
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The neurological symptoms associated with the Covid vaccines usually peak around 7 months. Hopefully, your symptoms will begin to improve soon. The shortage of neurologists is so challenging for both them and patients. I never thought patients in the U.S. would have such limited access to needed health care.
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3 ReactionsThanks for that re Vacine- induced immune system reactions! Started with 2nd COVID vaccine and has never stopped- after more than a year! Any pills etc. I take ApCodein and it helps a bit.
Is Gabapentin better? Used to take it for arthritis but it made me dizzy!?’ Neurologist/podiatrist say it’s all my arthritis!?!
Any suggestions?
What is EMG? Any answers? Thanks
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1 ReactionRe reaction to COVID vaccine! Yes! Started immediately after 2nd Moderna Vax. And still have pain/ neuropathy daily! Docs say it’s just my arthritis and give me ApCodein. Okay but not good enough!
What about Eyusheld? I read that you should take it right after reaction?!? Byway I always test negative to COVID. The neuropathy is constant! Boohoo!😭
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2 ReactionsSo very sorry. I have similar. Started after second vaccine. Numbness, pins and needles, lots of sensory sensations. My neurologist agrees that the vaccine has “over activated the nervous system” in some patients. It’s like a form of fibromyalgia. I’m 63. I had NO symptoms prior to vaccine. Great health. I still have symptoms. …about 16 months later. No weakness, nor lack of coordination, no pain… just “paresthesia”. It cycles… gets real bad, the entire left side of my body, then subsides. Affects sleep. It sucks yet most days i can totally ignore it. I have to actively manage the “fear” component in my thinking. If I distract myself well, I feel better. I am sorry for us, and hope you feel better soon. 🙏🏻
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2 ReactionsThank you for your response. I do know that stress makes everything worse. Good luck to you.
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1 ReactionThank you for this information. I am hoping you are right. Yes, so challenging to get an appointment with a neurologist. Also, here in my area, challenging for a cardiologist or gastroenterologist appointment, even orthopedics. Most likely your first appointment will be with a PA or NP. With all due respect, when I make a doctor's appointment, I want to see the doctor. And I am an RN. Good luck to you.
I used to feel the same way re: PA vs MD to see me; if I was given a choice, I picked MD because I feel my total health picture is too complicated and needs MD. However, I’ve come to accept that I will (and do) have many PA’s, and they’ve become front line expectation in these parts anymore. I’m happy to report I’ve had great experience with them, often better than MD! Yes, I do have waits after my appointments because there are things they need to followup with the MDs on before getting back with me, but c’est la vie. I had an MD Cardiologist appointment 2 weeks ago and he coached me to get used to PA’s, that he was sad to report that “Corporate Medical Care” has the cost cutting strategy of recruiting and employing more PAs now vs MDs and PAs will be frontline, MDs further removed. Being former corporate, I know how it was done to accountants, engineers, and many other disciplines. So now it’s in medicine in some parts; some believe that PAs are as good as doctors, just paid less. I’m thinking positive since I’ve had great PAs, trust the MDs are in the background and available for emergencies, and hoping they might even be being freed up to help with research and cures for mystery illnesses like our own!
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1 ReactionIt all depends who you get. I have had great PA and MDs and vice versa.
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2 ReactionsYes, you are correct. This is the way medicine is going now. Some of the practices have had the same PA for years and they are great, but many, like the cardiologists in my town, have rotating PAs that are not familiar with the speciality at all. It's the luck of the draw around here. And even the PAs have month long waiting lists. They also utilize alot of nurse practitioners in my area and in New Mexico and Colorado they are independent practitioners who do not report back or collaborate with anyone.
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1 ReactionIf you haven't joined yet, I recommend joining the Neuro V Long-Haulers Facebook group. There is a lot of educational information about neurological injuries due to the Covid vaccines and it is continually updated by patients. Many of the patients have small-fiber neuropathy, which can be difficult to diagnose. I have Pfizer vaccine-associated nerve damage that could be documented easily by EMG.
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