Recently my rheumatologist prescribed a cream for my feet for treatment of Erythromelagia. The cream is made at a Compounding Pharmacy. It is not covered by any insurance. The cream contains Amytriptoline, Ketamine and Lidocaine.
I’ve used the cream about 6 weeks , it took a while but it is helping . At least the severe swelling has gone down and I can wear some coffee my shoes again.
I would love to see a thread dedicated to this. I have not been diagnosed because I have not been able to get into the doctor while a flare was still active but my symptoms match everything I've read. I have psoriasis as well.
I would love to see a thread dedicated to this. I have not been diagnosed because I have not been able to get into the doctor while a flare was still active but my symptoms match everything I've read. I have psoriasis as well.
Take pictures of your flares, and document all your symptoms. I have kept a photo-log since the beginning. It has been invaluable when discussing, or proving, what you are referring to.
Alternatively, I have made it a point to drive myself 50 miles to the closest walk-in clinic while the flares are happening. As soon as the attending physician enters the room, pull off your socks and show them. There seems to be a hesitancy these days towards “hands on” . But if they won’t look....then you have to show.
I know that it is tempting to do, and give immediate relieve. But cold water immersion is not recommended because of rebound circulation issues and tissue breakdown. It may actually make the condition worsen over time.
Take pictures of your flares, and document all your symptoms. I have kept a photo-log since the beginning. It has been invaluable when discussing, or proving, what you are referring to.
Alternatively, I have made it a point to drive myself 50 miles to the closest walk-in clinic while the flares are happening. As soon as the attending physician enters the room, pull off your socks and show them. There seems to be a hesitancy these days towards “hands on” . But if they won’t look....then you have to show.
Thanks for this -- but what kind.of a walk in clinic? I've been to see a number of podiatrists and general physicians as well as my rheumatologist and none of them ever steered me toward EM - it's as if it wasn't even an option that they considered. But whenever its hot out and I'm walking a lot I develop these incredibly painful hot inflammatory red areas on the sides of my heels. Very painful -- and I'm in good shape: 5’7” and 124 pounds and a runner who weight trains and eats a plant based diet. I do think it's gotten better as I've phased out animal.products.
Take pictures of your flares, and document all your symptoms. I have kept a photo-log since the beginning. It has been invaluable when discussing, or proving, what you are referring to.
Alternatively, I have made it a point to drive myself 50 miles to the closest walk-in clinic while the flares are happening. As soon as the attending physician enters the room, pull off your socks and show them. There seems to be a hesitancy these days towards “hands on” . But if they won’t look....then you have to show.
Here, in Canada, we have what they call “minor emergency” walk-in clinics as an alternative to going for a hospital visit. Takes a load off the hospitals.
You need no appointment, first come first served. But the details of your visit are still logged into your medical records that your family doctor can see,
Thanks for this -- but what kind.of a walk in clinic? I've been to see a number of podiatrists and general physicians as well as my rheumatologist and none of them ever steered me toward EM - it's as if it wasn't even an option that they considered. But whenever its hot out and I'm walking a lot I develop these incredibly painful hot inflammatory red areas on the sides of my heels. Very painful -- and I'm in good shape: 5’7” and 124 pounds and a runner who weight trains and eats a plant based diet. I do think it's gotten better as I've phased out animal.products.
My hands sting and burn in heat, but my feet are th worse. I have been diagnosed since April 2018 with Erythromelalgia, and also Peripheral Neuropathy. I am taking Gabapentin and CBD oil, but nothing but “cold” helps!
I had bad side effect from gabapentin. CBC oil is helpful. I also take a proprietary blend of B vitamins and Alpha Lipoic Acid. I sleep with a fan blowing on my feet, and have one under my desk too! Going outside on hot days is so painful, sometimes the only relief is to soak in cold water for a few minutes.
I would love to see a thread dedicated to this. I have not been diagnosed because I have not been able to get into the doctor while a flare was still active but my symptoms match everything I've read. I have psoriasis as well.
I suffered for years because every doctor I went to about my symptoms couldn't "see" the flareups. Taking photos helps. I can't wear socks or close-toed shoes, even in winter unless it's freezing and there's snow on the ground! Sometimes I'd like to just walk in the snow!
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Sorry for the typo error. I meant to say I can wear some of my shoes now that the swelling has gone
down some
I would love to see a thread dedicated to this. I have not been diagnosed because I have not been able to get into the doctor while a flare was still active but my symptoms match everything I've read. I have psoriasis as well.
Take pictures of your flares, and document all your symptoms. I have kept a photo-log since the beginning. It has been invaluable when discussing, or proving, what you are referring to.
Alternatively, I have made it a point to drive myself 50 miles to the closest walk-in clinic while the flares are happening. As soon as the attending physician enters the room, pull off your socks and show them. There seems to be a hesitancy these days towards “hands on” . But if they won’t look....then you have to show.
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2 ReactionsI know that it is tempting to do, and give immediate relieve. But cold water immersion is not recommended because of rebound circulation issues and tissue breakdown. It may actually make the condition worsen over time.
Thanks for this -- but what kind.of a walk in clinic? I've been to see a number of podiatrists and general physicians as well as my rheumatologist and none of them ever steered me toward EM - it's as if it wasn't even an option that they considered. But whenever its hot out and I'm walking a lot I develop these incredibly painful hot inflammatory red areas on the sides of my heels. Very painful -- and I'm in good shape: 5’7” and 124 pounds and a runner who weight trains and eats a plant based diet. I do think it's gotten better as I've phased out animal.products.
Here, in Canada, we have what they call “minor emergency” walk-in clinics as an alternative to going for a hospital visit. Takes a load off the hospitals.
You need no appointment, first come first served. But the details of your visit are still logged into your medical records that your family doctor can see,
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1 Reaction@susanop. Do you have an Urgent Care in your area? Most of these are connected to a hospital. Hope you can find some help
I had bad side effect from gabapentin. CBC oil is helpful. I also take a proprietary blend of B vitamins and Alpha Lipoic Acid. I sleep with a fan blowing on my feet, and have one under my desk too! Going outside on hot days is so painful, sometimes the only relief is to soak in cold water for a few minutes.
-
Like -
Helpful -
Hug
1 ReactionI suffered for years because every doctor I went to about my symptoms couldn't "see" the flareups. Taking photos helps. I can't wear socks or close-toed shoes, even in winter unless it's freezing and there's snow on the ground! Sometimes I'd like to just walk in the snow!
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Helpful -
Hug
1 Reaction@susanop Were you able to find an Urgent Care Clinic? There should be a few in your area.
Have you found any relief?