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Anyone out there with Erythromelalgia?
Autoimmune Diseases | Last Active: May 12 7:45am | Replies (298)Comment receiving replies
Take pictures of your flares, and document all your symptoms. I have kept a photo-log since the beginning. It has been invaluable when discussing, or proving, what you are referring to.
Alternatively, I have made it a point to drive myself 50 miles to the closest walk-in clinic while the flares are happening. As soon as the attending physician enters the room, pull off your socks and show them. There seems to be a hesitancy these days towards “hands on” . But if they won’t look....then you have to show.
Replies to "Take pictures of your flares, and document all your symptoms. I have kept a photo-log since..."
Here, in Canada, we have what they call “minor emergency” walk-in clinics as an alternative to going for a hospital visit. Takes a load off the hospitals.
You need no appointment, first come first served. But the details of your visit are still logged into your medical records that your family doctor can see,
Such a good idea to take photos of medical problems if visible.... i even take them of my urine analysis sticks because they are different each time; also now many medical appointments are over telephone since Covid so I can email a photo... even last visit the nurse took photo of the patch on my scalp to show another doctor... only thing is i am having burning different parts of body but not always showing pink/red...also a rash top of chest and around neck that no one can see but i can feel with fingertips so hard to take photo... but yes good idea!
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Thanks for this -- but what kind.of a walk in clinic? I've been to see a number of podiatrists and general physicians as well as my rheumatologist and none of them ever steered me toward EM - it's as if it wasn't even an option that they considered. But whenever its hot out and I'm walking a lot I develop these incredibly painful hot inflammatory red areas on the sides of my heels. Very painful -- and I'm in good shape: 5’7” and 124 pounds and a runner who weight trains and eats a plant based diet. I do think it's gotten better as I've phased out animal.products.