Botox for Migranes

Posted by Sundance(RB) @sundance6, May 6, 2019

Despite some of you saying not to try Botox Therapy for Migranes, I did anyway! What a mistake! Toxins such as Botox don't set well in my body.
It has been almost three weeks since my treatment. I have been having the worse headaches than before I started. I have been having severe nick and shoulder pain. I get very lathargic and depressed because I have them all the time. Doctor said it just happens.
Can someone give me some feedback as to if they have had the treatment and any side effects you may experienced. I go to bed with a headache and wake up with one.
I won't do another treatment!
Sundance

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I understand you, Botox has ruined my life, I had Botox shots last Aug. the first shots didn't help much the Dr. said to come back and I got another set of shots on my forehead, after the second session i developed a pain in my head, worse than migraines, I've had it for almost a year, when I cough its excruciating pain have been to 4 Neurologists and because it doesn't show up on the Cat Scan or MRI they just don't know how to treat this, it is so demoralizing I am living with pain every day, and on top of it I still get the migraines.
I would never get Botox again it ruined my life.
Icart

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I have been getting them and if I am correct I didn't have any serious side effects but if you don't feel comfortable with them yourself. You have the choice to say no. It is ultimately up to you.

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@icart

I understand you, Botox has ruined my life, I had Botox shots last Aug. the first shots didn't help much the Dr. said to come back and I got another set of shots on my forehead, after the second session i developed a pain in my head, worse than migraines, I've had it for almost a year, when I cough its excruciating pain have been to 4 Neurologists and because it doesn't show up on the Cat Scan or MRI they just don't know how to treat this, it is so demoralizing I am living with pain every day, and on top of it I still get the migraines.
I would never get Botox again it ruined my life.
Icart

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Hello @icart. I'm sorry that you've experienced more pain since receiving botox for migraine. Given MRI and CT scans are normal and 4 neurologists have no answer about your pain, Central Sensitization Syndrome (CSS) might be worth researching. Are you familiar with CSS?

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@rwinney

Hello @icart. I'm sorry that you've experienced more pain since receiving botox for migraine. Given MRI and CT scans are normal and 4 neurologists have no answer about your pain, Central Sensitization Syndrome (CSS) might be worth researching. Are you familiar with CSS?

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Hello Rachel,
No I am not familiar with CSS. Some things don't show up on tests, and if they don't most doctors cannot see the problem, it takes a very good diagnostician to pin point something that is out of the box, this is what I am counting on, to the day when a Dr. finds my problem and once he does only then can it be treated, I realize that I have an isolated case.
thank you for your advise
Icart

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@icart

Hello Rachel,
No I am not familiar with CSS. Some things don't show up on tests, and if they don't most doctors cannot see the problem, it takes a very good diagnostician to pin point something that is out of the box, this is what I am counting on, to the day when a Dr. finds my problem and once he does only then can it be treated, I realize that I have an isolated case.
thank you for your advise
Icart

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Here's a video presentation on CSS by Dr. Sletten from the Mayo Clinic Pain Rehabilitation Center:


Perhaps what he explains will resonate as to why you have unexplainable pain from a very routine botox injection that typically does not cause pain as you describe.

Are you taking medications for the pain? Do you have pain anywhere else or is it isolated to your head?

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@rwinney

Here's a video presentation on CSS by Dr. Sletten from the Mayo Clinic Pain Rehabilitation Center:


Perhaps what he explains will resonate as to why you have unexplainable pain from a very routine botox injection that typically does not cause pain as you describe.

Are you taking medications for the pain? Do you have pain anywhere else or is it isolated to your head?

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I am finding it frustrating that they ask for my email address and password each time, I thought if I was a registered member,
I would be able to access everything with no trouble.
Dana
________________________________

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@icart

I am finding it frustrating that they ask for my email address and password each time, I thought if I was a registered member,
I would be able to access everything with no trouble.
Dana
________________________________

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@icart Hi Dana, what are you having trouble accessing?

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@migizii

@migizi….I have chronic migraines and have had Botox injections for many years with much success. It took about 3-4 rounds of injections before I had a positive reaction, but it was well worth the wait. I have gone from approximately 18 to 6 migraines a month now! I also follow a regular routine, take preventative and abortive medication, and am gluten free. There are factors I can’t control but I do the best I can….we live our best lives with what we have in front of us and try to keep our spirits positive. Most of the time I am fortunate to be able to do this.. good luck in each person’s migraine journey. It’s a challenging one

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may i ask if before the botox started working it took 3 tries u mean around the 9th month? The earlier months u had no effect what so ever? I had botox a month ago for the first time and still seeing no effect at all... Thank you

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@rwinney

Here's a video presentation on CSS by Dr. Sletten from the Mayo Clinic Pain Rehabilitation Center:


Perhaps what he explains will resonate as to why you have unexplainable pain from a very routine botox injection that typically does not cause pain as you describe.

Are you taking medications for the pain? Do you have pain anywhere else or is it isolated to your head?

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Excellent video. Very informative and I sure appreciate this!

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@benchi300

may i ask if before the botox started working it took 3 tries u mean around the 9th month? The earlier months u had no effect what so ever? I had botox a month ago for the first time and still seeing no effect at all... Thank you

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In reply to @benchi300 …. Yes, this was correct for me. I saw no results from Botox until about the 9th month, following the 3rd round of injections. My chronic migraines were at 15-20 a month and my neurologist had stated that sometimes people can get results after a few rounds. I was desperate and ready to endure all those shots in hope of something changing. I have tried so many things over my lifetime and was accustomed to giving my various attempts at least 6-9 months. That was why I kept trying. Good luck in your journey. It is a long and difficult road💕

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