1. < Brain Tumor

Olfactory groove meningioma

Posted by averagewoman @averagewoman, Jun 18, 2018

I've been having regular MRI's for almost 10 years. My last two have shown growth, and my neurologist says it's time to have it removed. Since I am having parathyroid surgery Friday, he said it's okay for it to wait a year. Has anyone had olfactory groove meningioma surgery?

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Moderator
Lisa Lucier, Moderator | @lisalucier | Jul 30, 2018

Hi, @averagewoman — firstly, I wanted to apologize that your post has somehow escaped notice till now. Welcome to Mayo Clinic Connect. Glad you posted here.

Sounds like you and your neurologist have been very vigilant with actively watching and monitoring your situation, which is wise.

You may also wish to view these discussions:
– Watching a Meningioma Brain Tumor https://connect.mayoclinic.org/discussion/watching-a-meningioma-brain-tumor/
– MayoClinicNeuroChat Live from American Association of Neurological Surgeons Annual Meeting https://connect.mayoclinic.org/webinar/mayoclinicneurochat-live-from-american-association-of-neurological-surgeons-annual-meeting/

I'd like to invite @robinem @lindajean @nancye3 @cnesselroad @pranas @wkindel into this discussion to share their insights. I'd also like for you to meet @kdubois and @dawn_giacabazi, who may also have some thoughts for you.

How did your parathyroid surgery go, @averagewoman? How are you feeling about the olfactory groove meningioma surgery coming up next year?

REPLY
averagewoman | @averagewoman | Dec 2, 2018

The parathyroid surgery went okay on June 22, but it resulted in Graves Disease and Thyroid Eye Disease (double vision, distorted poor vision, yuck). So, I've been dealing with that with the pending doom of the meningioma surgery in the back of my mind. I get an MRI in May and will see what the surgeon says is necessary at that time. I hope it doesn't grow again. Thanks for writing to me. I'll be checking out the links.

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1 reply
averagewoman | @averagewoman | May 20, 2019
In reply to @averagewoman "The parathyroid surgery went okay on June 22, but it resulted in Graves Disease and Thyroid..." + (show)
@averagewoman

The parathyroid surgery went okay on June 22, but it resulted in Graves Disease and Thyroid Eye Disease (double vision, distorted poor vision, yuck). So, I've been dealing with that with the pending doom of the meningioma surgery in the back of my mind. I get an MRI in May and will see what the surgeon says is necessary at that time. I hope it doesn't grow again. Thanks for writing to me. I'll be checking out the links.

Jump to this post

Tumor has been stable since last year. Surgeon said I can have surgery or watch and wait a year. I opt not to have my skull cut open. Another MRI May 2020. 😬

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2 replies
Moderator
Colleen Young, Connect Director | @colleenyoung | May 26, 2019
In reply to @averagewoman "Tumor has been stable since last year. Surgeon said I can have surgery or watch and..." + (show)
@averagewoman

Tumor has been stable since last year. Surgeon said I can have surgery or watch and wait a year. I opt not to have my skull cut open. Another MRI May 2020. 😬

Jump to this post

I can empathize with not wanting to have surgery. Watch and wait is common with some brain tumors. You may wish to connect with others who have chose this option in this discussion group:
– Watching a Meningioma Brain Tumor https://connect.mayoclinic.org/discussion/watching-a-meningioma-brain-tumor/

REPLY
Lindajean | @lindajean | May 26, 2019
In reply to @averagewoman "Tumor has been stable since last year. Surgeon said I can have surgery or watch and..." + (show)
@averagewoman

Tumor has been stable since last year. Surgeon said I can have surgery or watch and wait a year. I opt not to have my skull cut open. Another MRI May 2020. 😬

Jump to this post

Congrats...all of us on watch and wait LOVE stable tumors! I have been on watch and wait so long, I am down to an MRI every 3 years to avoid any more contrast than needed. Haven't gotten my results back yet, but I hope I am as lucky as you! Check back in with us next year and let us know how your 2020 one goes....we LOVE to cheer each other on 🙂

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cpidgeon59 | @cpidgeon59 | May 23, 2022

Hi. I’m 62 years old and just diagnosed with a 7mm Olfactory Groove Meningioma. Watching till August and the scheduled for another MRI to see if it has any growth. Would like to hear from anyone that has been diagnosed with this type of tumor, symptoms and if you have had surgery.
Thank you!!🥰

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Amanda Roe | @amandajro | May 27, 2022

Hello @cpidgeon59. You will notice that I have moved your post into an existing discussion on olfactory groove meningiomas, which you can find here: https://connect.mayoclinic.org/discussion/olfactory-groove-meningioma/

Members such as @lindajean and @averagewoman have been shared previously in this discussion and may be able to come back and connect with you for support.

Are you considering a recommended surgery at the moment?

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1 reply
cpidgeon59 | @cpidgeon59 | May 27, 2022
In reply to @amandajro "Hello @cpidgeon59. You will notice that I have moved your post into an existing discussion on..." + (show)
@amandajro

Hello @cpidgeon59. You will notice that I have moved your post into an existing discussion on olfactory groove meningiomas, which you can find here: https://connect.mayoclinic.org/discussion/olfactory-groove-meningioma/

Members such as @lindajean and @averagewoman have been shared previously in this discussion and may be able to come back and connect with you for support.

Are you considering a recommended surgery at the moment?

Jump to this post

Thank you for connecting to others. I am having another MRI in August 2022 to see if any growth as I’m having continued headaches. Will know more at that time.

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