1. < Hypertrophic Cardiomyopathy (HCM)

Post septum myectomy: How did you feel 9 weeks after surgery?

Posted by angiev18 @angiev18, Sep 24, 2020

Hi. Just wondering how those who have had septum myectomy feel 9 weeks post op? Still have any symptoms like before surgery gor HOCM? Had surgery in July at Rochester, MN. Just curious to how others felt 9 weeks out and beyond. Thanks in advance.

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servant1966 | @servant1966 | May 1, 2022
In reply to @stall6js "Thank you for responding and telling me of your experience! I have a positive outlook on..." + (show)
@stall6js

Thank you for responding and telling me of your experience! I have a positive outlook on this too and can’t wait to feel better! I’m a 61 year old female, so hopefully my experience is as good as yours!

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I hope so too.
If I may ask, who is your Dr., mine was Dr. Dearani and I can't express how pleased I was with him & his staff.

dg

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1 reply
thomasandmichelle | @thomasandmichelle | May 26, 2022
In reply to @stall6js "Hi everyone! I live with HCM and I’m going to be having septal myectomy sometime in..." + (show)
@stall6js

Hi everyone! I live with HCM and I’m going to be having septal myectomy sometime in June. I try not to think about the surgery but the outcome and how much better I will feel. Has anyone had the surgery and how do you feel now?

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A month or so after I was wondering why I did this to myself, know 7 months out what a relief I feel 90% better , still have different aches but getting better

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stall6js | @stall6js | May 26, 2022
In reply to @servant1966 "I hope so too. If I may ask, who is your Dr., mine was Dr. Dearani..." + (show)
@servant1966

I hope so too.
If I may ask, who is your Dr., mine was Dr. Dearani and I can't express how pleased I was with him & his staff.

dg

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Dr Geske is my heart doctor. I can’t remember the name of the surgeon right and I haven’t met him yet, but surgery is planned for June 23rd and I will meet him on the 22nd.

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dbrima | @dbrima | Jun 15, 2023

My 33 year old daughter was on camzyos for 6 months. She sometimes had a low gradient but the gradient would also go back up. She is exhausted and can’t do anything. She is being scheduled for a septal myectomy. Will she ever feel better than she did when hcm went to obstructive? We were hoping she would feel like a new person.

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1 reply
Mentor
Debra, Volunteer Mentor | @karukgirl | Jun 24, 2023
In reply to @dbrima "My 33 year old daughter was on camzyos for 6 months. She sometimes had a low..." + (show)
@dbrima

My 33 year old daughter was on camzyos for 6 months. She sometimes had a low gradient but the gradient would also go back up. She is exhausted and can’t do anything. She is being scheduled for a septal myectomy. Will she ever feel better than she did when hcm went to obstructive? We were hoping she would feel like a new person.

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Hi @dbrima, I was wondering how things are going for your daughter and you and grandson? I sent a note to you a couple of weeks ago, but did not see a response and figured you had your hands full. Has your daughter's surgery been scheduled? Has she had it already? Hoping for the best news possible for you all...

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Jootzy | @jootzy | Aug 28, 2023

I am 69 and had HCM surgery on March 7th. Before surgery I couldn't walk for more than 10 minutes without being short of breath and needing to sit down. Stairs were especially difficult. Now, coming up to 6 months post-op I have very gradually worked up to walking 30 to 45 minutes with no symptoms. The only thing that still bothers me is some sensitivity and discomfort in my incision. At my follow with the surgeon in June he said that was normal. Hopefully it will clear up eventually. Due to my local hospital having a backlog I'm not starting cardiac rehab until Sept. 18th.

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1 reply
Mentor
Debra, Volunteer Mentor | @karukgirl | Aug 28, 2023
In reply to @jootzy "I am 69 and had HCM surgery on March 7th. Before surgery I couldn't walk for..." + (show)
@jootzy

I am 69 and had HCM surgery on March 7th. Before surgery I couldn't walk for more than 10 minutes without being short of breath and needing to sit down. Stairs were especially difficult. Now, coming up to 6 months post-op I have very gradually worked up to walking 30 to 45 minutes with no symptoms. The only thing that still bothers me is some sensitivity and discomfort in my incision. At my follow with the surgeon in June he said that was normal. Hopefully it will clear up eventually. Due to my local hospital having a backlog I'm not starting cardiac rehab until Sept. 18th.

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I am glad to hear how you are doing @jootzy! It sounds like you are doing really well, especially walking. I found that the more I walked, the better I felt. I feel like I am unrestricted now with walking. I too had the super sensitive scar. It was so sensitive even the softest tee shirts were irritating. I wore V-neck shirts for several months before it calmed down. I hope that happens for you soon too. I am also happy to hear you will be going to rehab. Too bad you have to wait so long though... that's a bummer. It sounds like you will breeze through it. The arm machines were what helped me the most, but all the equipment was helpful...and I met some really nice people there too. Having a sensitive or irritable scar is probably normal, and part of the program in open heart surgery. It just takes time, and we all heal differently. What surprised you the most about going through this surgery?

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jeenz | @jeenz | Sep 27, 2023
In reply to @rrowner2 "Hello, My husband had septal myectomy on October 4 2018, he was extremely compromised before surgery.but..." + (show)
@rrowner2

Hello, My husband had septal myectomy on October 4 2018, he was extremely compromised before surgery.but he did exercise daily and was not overweight. He was discharged 4 days post op and we flew home to San Diego 2 days later, apart from discomfort from the surgery he did amazingly well and was able to walk 4 miles per day with ease after 6 weeks and no symptoms, he takes 50 mgms of Atenolol daily I'm sure if you had other preexisting conditions the recovery is longer. he is 76 now.

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Why was he recommended septal myectomy. Did he get an icd or pacemaker.

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tami | @tamis | Sep 28, 2023
In reply to @karukgirl "I am glad to hear how you are doing @jootzy! It sounds like you are doing..." + (show)
@karukgirl

I am glad to hear how you are doing @jootzy! It sounds like you are doing really well, especially walking. I found that the more I walked, the better I felt. I feel like I am unrestricted now with walking. I too had the super sensitive scar. It was so sensitive even the softest tee shirts were irritating. I wore V-neck shirts for several months before it calmed down. I hope that happens for you soon too. I am also happy to hear you will be going to rehab. Too bad you have to wait so long though... that's a bummer. It sounds like you will breeze through it. The arm machines were what helped me the most, but all the equipment was helpful...and I met some really nice people there too. Having a sensitive or irritable scar is probably normal, and part of the program in open heart surgery. It just takes time, and we all heal differently. What surprised you the most about going through this surgery?

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I also had a septal myectomy in 2018. I felt like a brand new person after that surgical procedure and cardiac rehab. Then had the defibrillator/ pacemaker put in 2019. I'm so glad I had it done. It was a long time before my pain went away from the incision I had from surgery, it was almost 12 months.

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