1. < Polymyalgia Rheumatica (PMR)

Anyone with PMR have experience with 4th COVID vax jab?

Posted by klpintx @klpintx, Jan 28, 2022

I just got notification from UTSW that I was eligible to receive my 4th Pfizer vaccine. I was wondering if anyone has does that yet? I have an appointment with my rheumatoligist next week, so I will ask her. But I was just wondering about anyone's experience with this.

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

Mentor
John, Volunteer Mentor | @johnbishop | May 17, 2022
In reply to @suetex "Hi, new to this site (but not new to PMR) and saw the questions about the..." + (show)
@suetex

Hi, new to this site (but not new to PMR) and saw the questions about the Covid Vaccine. I also have Crohn's and my husband has Thyroid auto immune disease and we have had the Moderna series and two boosters, to date. Since the PMR predated the vaccine, I am sure that it wasn't responsible. We have had only expected side effects and the piece of mind is well worth it. We will take a third booster (hopefully for varients) should it become available. I reccommend that everyone take it who can. I am 75 and didn't like my odds with this disease.

I would also be interested in hearing about others experience using low dose naltrexone (LDN). It helps me at least not hurt when I don't move. Whereas, before I hurt all the time, even when I was trying to sleep. Has it helped anyone else?

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Welcome @suetex, I've had 2 occurrences of PMR prior to COVID vaccines but the PMR is currently in remission. I have had both Pfizer shots and the first booster and I got COVID. I had the monoclonal antibody infusion as a treatment and I probably will not get the 2nd COVID booster. I also only had the expected side effects from the vaccines.

There is another discussion where you can read through and learn what others haved shared about their experience using LDN --- Anyone with experience using Low Dose Naltrexone?: https://connect.mayoclinic.org/discussion/anyone-with-experience-using-low-dose-naltrexone/

Are you still being treated for your PMR and looking to see if low dose naltrexone will help?

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1 reply
suetex | @suetex | May 17, 2022
In reply to @johnbishop "Welcome @suetex, I've had 2 occurrences of PMR prior to COVID vaccines but the PMR is..." + (show)
@johnbishop

Welcome @suetex, I've had 2 occurrences of PMR prior to COVID vaccines but the PMR is currently in remission. I have had both Pfizer shots and the first booster and I got COVID. I had the monoclonal antibody infusion as a treatment and I probably will not get the 2nd COVID booster. I also only had the expected side effects from the vaccines.

There is another discussion where you can read through and learn what others haved shared about their experience using LDN --- Anyone with experience using Low Dose Naltrexone?: https://connect.mayoclinic.org/discussion/anyone-with-experience-using-low-dose-naltrexone/

Are you still being treated for your PMR and looking to see if low dose naltrexone will help?

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I was with another rheumy who didn't diagnose me after 4 yrs and talked the PA into giving me the LDN for the pain. (Also thought it might help the Crohn's, which it did). In 2 days the non moving pain was gone. Finally went to another rheumy who diagnosed me in 15 minutes. (I had brought my labs and told him my symptoms.) I was reponding very well to the pred until 8 mg when I started having some slight symptoms and went to 4 mgs and now it is full blown. I go in tomorrow to give him the bad news. Will cling to the LDN regardless because it did help my Crohn's so much. My last colonoscopy was normal!

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novabill | @novabill | May 19, 2022

It's very coincidental that my PMR started the time I took the first and second Moderna COVID-19 injections...I have since rec'd the first booster last Sept and got the second booster this week...experiencing a slightly sore arm and maybe a slight increase in "back ground pain & stiffness" in the late evening and during sleep...but that happens often. So in summary I'd submit no real change in symptoms since the 2nd booster (knock on wood)....

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1 reply
juneh | @juneh | May 20, 2022
In reply to @novabill "It's very coincidental that my PMR started the time I took the first and second Moderna..." + (show)
@novabill

It's very coincidental that my PMR started the time I took the first and second Moderna COVID-19 injections...I have since rec'd the first booster last Sept and got the second booster this week...experiencing a slightly sore arm and maybe a slight increase in "back ground pain & stiffness" in the late evening and during sleep...but that happens often. So in summary I'd submit no real change in symptoms since the 2nd booster (knock on wood)....

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Got my second booster last week. All went fine, thankfully!

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loyal | @loyal | May 21, 2022

My PMR came after my 1st Moderna booster in November. So I am not getting a 2nd booster at this time.

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mikeshell | @mikeshell | May 21, 2022

I got my second booster this week. I'm currently taking 17.5mg of prednisone. I had no effects from the shot. Previous shots made me very tired for one day. I attribute the fact that prednisone suppresses the immune system as the reason for my lack of response. Just my opinion. Soon I will be getting my second shingles shot.

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anniekirby | @anniekirby | May 22, 2022
In reply to @kathleenkapes "My PMR started a week after my J and J vaccine. I will never get another..." + (show)
@kathleenkapes

My PMR started a week after my J and J vaccine. I will never get another vaccine of any type.
I though I saw an article that Pfizer is now listing PMR as a symptom of their vaxx? True?

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Yes I’ve seen it myself on their - very long - list of conditions triggered by their vax.

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1 reply
kathleenkapes | @kathleenkapes | May 22, 2022

Mine also started exactly 7 days after my J and J vaccine. What do we do about it? There are lawyers willing to do class action suits.
Has anyone reported it to the VAERS Site?

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1 reply
kathleenkapes | @kathleenkapes | May 22, 2022
In reply to @anniekirby "Yes I’ve seen it myself on their - very long - list of conditions triggered by..." + (show)
@anniekirby

Yes I’ve seen it myself on their - very long - list of conditions triggered by their vax.

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Can you send the link?

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anniekirby | @anniekirby | May 22, 2022

I’ll have to search for it as it was a few months ago.

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