Anyone with PMR have experience with 4th COVID vax jab?

Posted by klpintx @klpintx, Jan 28, 2022

I just got notification from UTSW that I was eligible to receive my 4th Pfizer vaccine. I was wondering if anyone has does that yet? I have an appointment with my rheumatoligist next week, so I will ask her. But I was just wondering about anyone's experience with this.

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

I had the booster’s booster 4 months after the booster. Virtually no response. I had Evusheld two weeks later and then the dreaded flare and now I am up to 20mg of steroid. Yo-yo disease.

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@alexmemphis

I believe that my PMR was started by Covid vaccines also. You are not alone.

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Mine was also.

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Funny ... several have posted that their PMR began with Covid vax. My PMR began a week or two BEFORE first Covid vax ... Moderna ... and I had no I'll effect with the second shot or first booster. I've always been convinced that my PMR was brought on by anxiety and negative life style changes. Now considering the fourth jab.

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I had the 4th shot two weeks ago. No problems. Arm was a little sore (this was the first time that happened, nothing on the first 3). Am currently on 3 mgs. of prednisone.

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Hi I had my 2nd Pfizer booster 4/20/22 4:00PM on 4/21/22 by 5:00PM I was exhausted, in bed by 7:00, next morning I retuned to my normal routine. My prior history follows:
2/6/21 1st dose Pfizer
2/27/21 2nd dose Pfizer
9/24/21 PMR onset 40MG Prednisone for 2 weeks
10/15/21 1st Pfizer Booster NO reaction @ 15MG Prednisone
4/20/22 2nd Pfizer Booster @6.5MG Prednisone split 4.5AM/2MGPM
I have no idea if any of this is important because family and friends report different responses to different doses. The journey continues.

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Got the 4th in March. No problem

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@karinaph

So, it’s now April and I just received my second booster yesterday. No real reaction, sore arm, alittle more tired but nothing so far to make note of.
From the Jan post I made, here’s an update. I WAS in fact having a relapse and had to go back up to 40 mg for a few days, I’ve been tapering ( somewhat aggressively) to 9 mg now. I’m now slowly tapering 1/2 mg / week. Hoping I can get down to less than 5 … I’m in over two years now and like many of you sick of being less than and taking these meds.

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Ok thanks for this. My Neurologist wanted me to start tapering 2.5 mg every other week. I cannot do it (which is a 1/2 a 5 mg. pill). We don't have 2.5 mg pills here. This week it's going to be down 1.25 (not 2.5), so 1/4 of a pill less. Would rather try the slower taper. I have to work in the mornings, so a migraine all night long and waking up with a migrane is not conducive to good work. I hope the Neurologist gets it. I feel ya. Take good care.

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You could inquire at your pharmacy if they could cut your 5 mg pills in half. A number of pharmacists sell 'pill cutters' that you could use at home. The other possibility is to see if they could order 1 mg pills. Then, you could use the 1 mg pills as part of your tapering routine. Good luck and hope it goes well.

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I’ve been searching for authoritative data on what the range is for upper level of Prednisone Dose to cut off a flare of PMR. There is not any data. I wonder if we here at Connect can do some “citizen science” data collection. Just reply with the highest dose you have ever been given to cut off a flare of PMR.
Highest dose=
Time to taper=

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Yes, had fourth shot three weeks ago. No change in PMR, still in remission (six months now).

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