New long COVID symptoms? Have you encountered new ones?
Hello friends, I am in month 8 of long covid. I have seen seen reduced severity of original symptoms, but also find new ones that I can not find any other cause for. Here's one: food that I have eaten my whole life now is starting to irritate my tongue and the roof of my mouth. My tongue burns and the roof of my mouth feels raw like I rubbed it with sandpaper. All spicy seasoning has long been eliminated. Maybe an allergic reaction that is aggravated by the autoimmune aspect of Long Covid? Speaking of which, my seasonal juniper allergies have been terrible this year, much worse than ever before. Same function?
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I'm going on 16 months and still have my mouth sensitive to anything that might be warm. I've had to even cut out small amounts of pepper. I have never had allergies this bad my whole life it is terrible. I had bad shaking but now its only when I get to tired. I have not been able to sleep through the night since I had covid. I have fibromyalgia and since covid that pain has really increased, Now all my joints are painful. God Bless you all suffering with this long haul crap
I saw my pulmonologist in Thursday, he said my lungs were from night to day from my last visit three weeks ago from trying to get rid of a sinus infection.
I was in the hospital for covid pneumonia for 3 weeks back in January of 2022, I was on 40 mg prednisone until I came home the beginning of February and the pulmonologist switched me to 8 mg of methyl prednisone, plus added 16 mg with a sliding scale 3 weeks ago for a sinus infection. Aa of 2 days ago we switched me from 8mg of methyl prednisone each day to 4 mg every other day.
I noticed I have been very tired with joint pain, and I’m running a fever of 99.73 which my normal temp runs between 95.3- 97
So I have actually been on some kind of prednisone since January 15.
Has anyone else had withdrawal symptoms from methyl prednisone?
If so please share if you would.
I have had the opposite with my nails now growing beyond lateral borders, (started with concurrent ingrown bilateral borders on fingernails, then "dip" inward growth of nail base, skin growing over top of nails, along with horrific all over body brusing(we are talking like 15 to 20 on each arm between 1/2 inch to 3 inch diameter sizing on upper extremities to softball size hematomas on the lower without injury and is worsening.
My veins and arteries hurt whether I stand or sit, both veins and arteries blowing on entire body. No history of PAD, modeling severe bilateral lower extremities inguinal to toe, up to pitting 2 edema intermittent, hypersensitivity to heat/cold in feet and hands, intermittent myofascial pain random pattern and locations, intermittent neuropathy again multiple locations, cognitive impact, Raynaud's presented 2 months ago, lost 30lbs from mid Sept to beginning of January, smell issue is a vinegar, metalic combo, heart palps, (echo unremarkable), I currently am producing 2-5 PVC per heat beat(no HX of any heart rythem issues with thorough and extensive past work up for prevention in the past, failed stress test. Dispena for no reason, however O2 saturation normal, debilitating acute onset short intervolt fatigue and exhaustion usually immediate following of heart palpitation s and only last about an hour or so. I am a 50 yr old very healthy very active woman who has worked in medicine 30 yrs and have never seen what I have experienced to date since COVID. I have never witnessed nor come accross a case with so much systemic involvement, yet noncorrolating symptomology. My providers are totally stumped. Running every blood test under the sun. Have had an echocardiogram, stress ekg, scheduled for MRI stress test. I have integrated extensive mindfulness practices, with relaxation techniques, mental body scans to try to positively reduce severe symptoms and self talk as well to greatly decrease intensity of symptoms and the pain or incredible discomfort experienced at the time. I am allergic to steroids and most pain medications, so this practice has been used many, many times with very positive results thru my life to get thru injuries, post surgical recovery, and so forth. With the post COVID issues it is has been very challenging and to my total surprise not very impacting. After now 9 months, my sprit is taking a beating and my usually very positive outlook and approach is losing the battle.
So sorry to hear all that you are going through. I also have lost weight, 47 pds to date, have had severe insomnia, pressure in head, headaches, severe food intolerances, couldn’t pass a stress test was on it for only 1:12 minutes. I am going to a pulmonologist in a few weeks been to a lot of doctors and e. R. Rooms. This Covid is a nightmare, I go to stores and I can’t breathe, to go shopping , have dizziness on and off. Please don’t give up, there will be better days, there has to be some sort of resolution for this. I understand I am going through the same thing as you we all are in this Covid fight but some are the same symptoms some are different. Have faith we will get better.
The not sleeping is the worse, we can’t function without sleep, I am with you on that. Hopefully some relief will come soon to all us with long Covid.
I relate to your feelings about being a positive person to feeling like your losing the battle. I’ll keep you in my thoughts!
Thank you, all we can do is keeping pushing on and make sure our providers
as well as us as individuals report where we can. COVID and it's residual
effects are still so very unknown. I know that medicine and science push to
keep thinks on the down low to maintain decorum, however it always [roves
to be the wrong approach. People need to know ALL the facts and data to
empower them as well as to get answers and solutions moving forward to
achieve a stay healthy and prevention of health decline/impact and not a
react after the fact approach. If COVID taught us anything, it is that. We
are the only country that addresses health this way.
Yes you are absolutely right about all that you said. Yesterday I went to a Covid pulmonologist and he didn’t offfer me any sage advice he just told me that they were the first Covid place to open up and what has that solved in over two years. Nothing by the way it is New York Langone hospital , isn’t it supposed to be the mega center for Covid, they do not offer me anything different. I wish they would just say they don’t know anything or they don’t want to tell us anything to make us feel better we are all suffering.I finished my degree and was about yo go on to another college and I have been suffering from Covid ( long) Covid for over five months. What is there answer to this nothing, I have been going from doctor to doctor with no answer just more questions.
This is the same for me, and instead of improving at times it seems as if I am getting worse. All they want to do is push different meds which either give you temporary relief or exacerbate the symptoms you are already having. I just want to feel better, be able to do more and at least resemble the person I was prior to this just a little bit. This is very depressing and draining. It's like everything I do leads me to my bed for days. I am tired
Yes, I agree with you , my blood pressure went up , why I don’t know they didn’t know either the doctor gave me 50mg of blood pressure medicine and my heart was beating so fast nonstop I couldn’t do anything I was in another zone , I felt like I felt like I was going to die. I called the doctor and he gave me a lower dosage I never took it, It took me weeks to come to myself, we have to be very careful what medicines we take with this long Covid. I get medicines from each doctor I go to , I don’t take them anymore they are shooting in the dark, and playing with our lives.