Sudden Hearing Loss: Want to connect with others

Thank you for sharing this article. Health care workers and hospitals need to be more aware and provide compassionate care to the hearing impaired and family members, especially during a hospitalization. The visitation restrictions during the pandemic have left many families to battle for health care procedures and visiting modifications and rights the in recognizing hearing impairment as a disability under the ADA law.
The hearing organizations need to send infomation to all hospitals as a reminder and education concerning the rights of individuals under ADA

I couldn't be more pleased with the Osia. It is comfortable and the sound is natural. One downside is that there are MRI restrictions once you have an implant. And then the only other bad part that I can think of is that I'm not really clear on how long I can expect the external processor to last and what happens when it's time to replace it. Regardless, it's worth it!!

Best of luck at your appointment today!

Yes, this is so true. Healthcare workers at all levels do not understand the ramifications of hearing loss on their patients. It should start at the training level, but for whatever reason, it doesn't. Consequently, many don't have a clue how to help us. This is exacerbated by denial and refusal to talk about it by so many who have hearing loss.

Organizations like The Hearing Loss Association of America work hard to get information out on this topic, and strongly promote the rights of people with hearing loss under the Americans with Disabilities Act.

It's important for people to know that while HLAA is called 'The voice of people with hearing loss", it is a non profit with a very small dedicated staff. Much of what HLAA does is done by volunteers who live with hearing loss themselves who participate in chapters around the country.

HLAA depends on people like us to get involved in sharing information, educating those who need a better understanding of what hearing loss does to people, and also to advocate for changes that help make hearing loss a greater issue of concern. Unfortunately, far too many people who are affected by hearing loss; theirs or someone else's, don't step up to help.

HLAA is a 'membership' organization. However, it represents all people with hearing loss, regardless of affiliation. If HLAA had more members it could do much more. The organization is working to promote legislation for insurance and Medicare coverage for hearing technologies. HLAA is also planning a national convention in June that will share a ton of information with attendees to bring back home. http://www.hearingloss.org

Have you ever attended an HLAA event? Chapter meeting? Convention, etc.?

I experience sudden hearing loss in my right ear about 4 days after an airplane flight. Both my ears were muffled for 4 days- my left ear went back to normal- my right ear went deaf. They can’t explain why this happened so they said it must be a virus. I had a audio test done & a MRI. MRI was normal. Left ear good/right profound hearing loss. Both ears were fine before the flight. I didn’t have Covid either. I had a test right before my flight and it was negative. The ENT said no fluid or wax built- up. No rhyme or reason for this to have happened. Very scary and still I’m checking out other options in hopes my hearing comes back. I need to find the root cause of this. I’m in good shape for my age of 68- take no medications and lead a active life style. If I find an alternative solution I will surely let you know. Just trying to cope- day by day with all of this.

My story is almost identical to yours. Just this past Feb as I sat in my car I suddenly went deaf in my left ear and all hearing replaced with tinnitus. Treatments didn't work. I'm through the shock, still grieving the loss, but trying to get back to somewhat normal. Looking into Osia implant.

I’m sorry to hear that. I don’t know what an Osia implant is but I hope it helps with your hearing loss and tinnitus. Please let us know your experience with it. Good luck!

Thanks for your reply. Sorry for your loss of hearing. Kinda the same thing with the ENT- no real reason they could give me for the loss- must of been a virus that attacked your inner ear. Well it just seems unreal. Just looking for alternative care that might help- can’t hurt. The ENT come back in 6 mo for another hearing test. They really didn’t help me or go outside the box for answers. Well good vibes to all for a solution to help with their hearing loss. No one understands until it has happened to them.

I had same thing happen. Woke up one am and couldn’t hear out of left ear. Got bad advice at urgent care and was told it was a blocked eustation tube. Later tested and steroids did not help. I wear a phonak cross. Sound picked it by damaged ear and fed to better ear. What is the bone anchored hearing device? I use a com pilot for elevated sound paired to my hearing aid. The only thing I have not been able to solve is listening to my radio while driving. Too much background noise but I drive a Scion which is a cargo car.

I am 62 and I loss my hearing in my right ear suddenly too. I have pretty good hearing in my left ear. I am new to this group also. I lost it 1 yr ago and nothing worked. I wear bi cros hearing aid which help but am toying with getting a cochlear implant.
There is a single sided deafness group on Facebook that has been helpful,

Sorry about your hearing loss. I will think more about the implant after exploring more options. Can I ask you what things did you try to get your hearing back? I would love to even get partial hearing back where you could wear one hearing aid and adjust it when necessary. I’m willing to try alternative options too. What could it hurt at this point.