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My name is Larry - I have recently been diagnosed with Interstitial lung disease, which I think is the same thing. My condition improved when I quit taking statins. I started taking the statins after a heart attach about 8 years ago.
My shortness of breath and congestion are still there.
Have you found anything that helps or can relieve?
Replies to "My name is Larry - I have recently been diagnosed with Interstitial lung disease, which I..."
Did @rayhastings ever post the site for the gov. drug trials
@francko ClinicalTrials.gov
Here is the link to the Clinical Trials database https://clinicaltrials.gov/
THANK YOU FOR THE INFO FRANCKO
how are your scans looking now? Do you get out of breath? I am amazed your fibrosis is gone as well
Do you use the O2 when exercising? I agree exercising and lifting weights for muscles strenth have helped me maintain my physical capability.
Hello Spicegirl. Thanks for posting this. I'll be telling my dr. about it. I've been a member of this group for only about 6 months and it seems all of us are given different diagnoses, different treatments, and different prognoses. I find this very troubling. It's almost as if we are all guinea pigs. Thank you for letting me vent.
Just read this thread. How are you doing today? Are the scars gone and how is your breathing
@alexander , Just a note. I went to Mayo in Phoenix 6 years ago. They put in my record: "Your Fibrosis is getting worse rather rapidly." Interesting, because I have never actually been diagnosed with any kind of Fibrosis, especially Pulmonary. That came later, A YEAR AFTER the Mayo trip, and before I actually read the Mayo scrap. oldkarl
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I am only 9 months into IPF. Your post was very helpful and informative. Thanks !