Hi Tula (again) lol,
I have tried taking Serrapeptase and a high dosage of it. My Pulmonologist has never heard of it, but didn't discourage me from it. I tired it for two months but didn't see and improvement so I stopped. Not saying is doesn't work (guess I'm impatient) but for the cost with no scientific proof of success, well I'm somewhat skeptical. I do understand and use homeopathic ideas for other things (my sisters and daughter is totally sold on the homeopathic stuff). I know may daughter has come across with an essential oil that helps alleviate migraines with her daughter (11 yrs old now 13) and my sister says it works for her too. So I 'm not so closed minded on other things that can help people for conditions they/we suffer with. I guess I was at least expecting so little improvement on my breathing after using it (serrapeptase). I do hope you find something that helps you, and if it does please drop me a post.

Of course, I will keep positive or not so positive info I learn as we continue this journey to better info and better health Thanks for the info re:serrapeptase. Have a good day.@tula

Hi spicegirl, I tried serrapetase for two months and didn't feel any different, (maybe expecting to much to soon, I don't know). IF you CT showed the fibrosis was gone did you feel an increase in your lung capacity for breathing again? How long was your period of taking the enzyme?

you might try the mayo clinic transplant department. in general transplants candidates have strictt criteria.

you can investigate sites like this but the bottom line is that there is currently no cure for iPF. There is a lot of drug trials going on that look promising. there is a weekly IPF newsletter that list current and proposed drug trials. The government has a listing of all current and proposed studies and drug trials. do a search for government drug trials to get the url. this site won't all me to post it.

I am taking the drug for over a year now. there is no way to tell if it is doing anything. it is very expensive and i have to take 9 caps a day. the only thing i can say is that it sees to have slowed down the progression. I was dx in 2008 and am still alive. the main things i have found useful is exercise, treadmill 15 or 20 minutes a day. I have recently stated on 02 which helps quite a bit when excepting.

Hi @rayhastings, welcome to Connect.
As a security feature, first-time posters are not allowed to post URLs. This helps us minimize spam. You will be able to post the link to the newsletter in a couple of days. I encourage you to do so, as it will certainly interest the others here.

Do you have IPF? Have you had a transplant?

I do have upf. I was dx about 5years ago. I started on Esbert about a year ago. I started on O2 about 4 months ago. I only use it for when I am doing things like excerise, walking, ect.

Should be IPF. Spell check got me.

I was diagnosed with IPF in may 2016 I cannot hardly do anything I walk my dogs a half block on 4 liters o2 and I still have to walk slow and need to stop to do deep breathing I don't understand when I read people exercise am I doing something wrong ?