Struggling with making an osteoporosis treatment decision

I have been advised by my doctor that my bone density is very low and I should begin treatment of one either Prolia or Evenity. The mention of heart attack scares me for the Evenity and the Prolia side effects are both scaring me. Has anyone used any of these recently.

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I have been advised by my doctor that my bone density is very low and I should begin treatment of one either Prolia or Evenity. The mention of heart attack scares me for the Evenity and the Prolia side effects are both scaring me. Has anyone used any of these recently.

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I'm not taking any of these but have been researching them in case I need to if my current osteopenia takes a darker turn (as I consider osteoporosis). Ivevalso consulted with two endocrinologist about the current array of drugs for osteoporosis and some promising alternatives to DEXA scans in the future as they are less than optimally accurate.

Did your doctor discuss the array of choices for meds and explain the benefits (and side effects) of the categories or just give you the two options?

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Hi. Has anyone taken the drug Evenity for osteoporosis? Have you experienced side effects? Thank you.

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I started Evenity in June 2021 and have just completed the course and had a bone density test. Evenity really helped. I had undiagnosed celiac disease with no symptoms that was only discovered when I was 61 years old. This is a reason why I had severe osteoporosis. For 20 years I was taking Actonel, Fosomax and finally Prolia with only a slight improvement in my hips; none in my spine. My one Prolia injection had an unusual side effect, a messed up sense of taste, so I never took it again. Finally my primary provider sent me to a Enterologist. I was put on Evenity after getting the OK from my dentist to assure I had no dental problems. I wasn't aware of other side effects. I have now gone from severe osteoporosis to a slight reading just above osteopenia, so the treatment was a great success. I'm delighted; my only possible side effect to date was a rash after my eighth treatment (I have a mild sulfa allergy). I was the first patient in the practice to finish the year-long course. It was expensive ($420 co-pay per month), but I took a hard fall a few weeks ago and had a really banged-up swollen and bloody knee and a swollen, bruised ankle, so no broken bones was worth the cost.

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I started Evenity in June 2021 and have just completed the course and had a bone density test. Evenity really helped. I had undiagnosed celiac disease with no symptoms that was only discovered when I was 61 years old. This is a reason why I had severe osteoporosis. For 20 years I was taking Actonel, Fosomax and finally Prolia with only a slight improvement in my hips; none in my spine. My one Prolia injection had an unusual side effect, a messed up sense of taste, so I never took it again. Finally my primary provider sent me to a Enterologist. I was put on Evenity after getting the OK from my dentist to assure I had no dental problems. I wasn't aware of other side effects. I have now gone from severe osteoporosis to a slight reading just above osteopenia, so the treatment was a great success. I'm delighted; my only possible side effect to date was a rash after my eighth treatment (I have a mild sulfa allergy). I was the first patient in the practice to finish the year-long course. It was expensive ($420 co-pay per month), but I took a hard fall a few weeks ago and had a really banged-up swollen and bloody knee and a swollen, bruised ankle, so no broken bones was worth the cost.

Jump to this post

I started Evenity in June 2021 and have just completed the course and had a bone density test. Evenity really helped. I had undiagnosed celiac disease with no symptoms that was only discovered when I was 61 years old. This is a reason why I had severe osteoporosis. For 20 years I was taking Actonel, Fosomax and finally Prolia with only a slight improvement in my hips; none in my spine. My one Prolia injection had an unusual side effect, a messed up sense of taste, so I never took it again. Finally my primary provider sent me to a Enterologist. I was put on Evenity after getting the OK from my dentist to assure I had no dental problems. I wasn't aware of other side effects. I have now gone from severe osteoporosis to a slight reading just above osteopenia, so the treatment was a great success. I'm delighted; my only possible side effect to date was a rash after my eighth treatment (I have a mild sulfa allergy). I was the first patient in the practice to finish the year-long course. It was expensive ($420 co-pay per month), but I took a hard fall a few weeks ago and had a really banged-up swollen and bloody knee and a swollen, bruised ankle, so no broken bones was worth the cost.

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Any bone building program whether medical or physical takes two years to rebuild bone significantly. See if you can find a clinic that uses Echolight sonogram bone density which measures bone strength as well as bone density. (I found one in Asheville NC)
Better Bones with Dr Susan Brown offers a list of tests to request from your doctor to determine why you are losing bone. My endocrinologist discovered I had a kidney condition that was spilling calcium and a simple medication is treating that. I requested physical therapy sessions and now have an exercise program designed to build bone. Hope these ideas help. To motivate me I have a card by my bed that says “Forteo injections every night or do your exercises?”

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